Experiences with

Chronic obstructive pulmonary disease (COPD)

I earned a degree in Electrical Engineering from the University of California, Berkeley. Worked in Silicon Valley for several years and managed to join a start up company prior to it going public that was very successful. During 2015 I started seeing a Naturopathic doctor and became impressed with

Hello,Im wondering how this whole suppressed immune system works? My husband and I have got covid (6 weeks post TP for him). The whole household has pretty much had it all at the same time, but how will hubbys recovery differ? Is he less likely to recover as quick, more prone to secondary infection

I have CLL diagnosed a year ago, just had my bloods done last week, the results have come back with lymphocytic leucocytosis does anyone know if this is a bad thing not heard if this before. Donnax

Thank you everyone for your replies. I have lots of information to read and questions for my GP tomorrow. I'm feeling far more in control with the knowledge I now have from you on this group. Really appreciate all the time you've taken to respond to my question. Thank you all once again. I'll sign

Been on prednisolone (UK) since 01/11/2022. I'm currently taking 3mgs/4mgs on alternate days. 3mgs was too much for me. Anyway if on pred, can we take cod liver oil supplements please? The tablets are ginormous so my husband has bought the liquid. Don't want to start unless it's OK to do so. Any opinions

Hello! I was diagnosed with CLL (11Q) in 2013. On Ibrutinib since 2015 and have very thankfully done very well with basically zero problems. CT scans have showed some mild increase in nodes over the last several years. Doctor ordered a PET Scan. I have the results. What would indicated Richter's

I was diagnosed with PV in November 2020. Initially, I had a few phlebotomies to reduce my hematocrit but thankfully I've passed my last three blood tests and haven't had one since January 2023. I take aspirin, a spoonful of cod liver oil and half a tin of grapefruit every day to keep my haematocrit

Hi , i was detected with cll in march 2021 at that time my wbc was 30k but with no symptoms so i was on wait and watch,after few months i got brain hamerroage and i was in hospital for 1 month after that i recovered but still my left side is weak , my wbc increased gradually and after 3 years it has

Hi everyone, I posted this same message in my previous post but I don't think it has been seen by anyone so creating a new post here... I got my blood test results back this morning. Here they are – TSH mIU/L: <0.005 (range 0.27 - 4.2) FT3 pmol/L: 7.7 (range 3.1 – 6.8) FT4 pmol/L: 18.2 (range 12 –

Hi, I am currently working with my rheumatologist to plan for second pregnancy. My daughter is 3.5 years old and I was on tacrolimus during my pregnancy (I usually take MMF). I remained relatively well and stable throughout but there were alot of issues with maintaining the tacrolimus concentration

My dr. approved the buprenorphine for me. I am thinking positive that it will work. She is giving me the patch. I am excited. I have to discontinue the horizant though which surprised me and of course discontinue the oxycodone. Hopefully now you won't have to listen to me complaining and I will

I had a transplant 18 months ago and 6 days ago the hospital reduced my Tacrolimus and increased my Prednisolone to improve my kidney function (although it was no worse than it has been since the transplant). I’m gradually increasing the Tac and decreasing the Prednisolone but today lve started itching

https://gofund.me/d9593044 If I get offered NHS surgery, great and all monies raised on my gofundme will be donated to lung Disease charities

Hi looking for ABIT advice, my partner was diagnosed with CLL in 2016 he finished O&V treatment 2022 and all has been well with now 6 monthly review with his consultant. he's recently started to suffer from recurring coldsores and some joint pain that don't seem to be healing, he has no other previous

I am taking Vimerson Health's Tumeric/Quercetin/Bromelain combination. Presently only taking the recommended two capsules per day in the morning. Been on Watch and Wait since 2019. White count is slowly creeping up (now at 30.8 - a year ago I was at 20.9). Other numbers Lymphs at #25, MCV at 96.9

Every two years, the Lymphoma Coalition, a worldwide network of patient groups with a full or partial focus on providing support to lymphoma patients, including those with CLL, undertakes a Global Patient Survey. The 2024 survey gives you an opportunity to share your experience with CLL

Has anyone with GPA or MPA been diagnosed with pancreatic issues due to vasculitis? Hubby had has GPA for 15 years, kidney transplant and sinus involvement and most often in remission until now. He has lost 40 pounds( not trying) and must take enzymes to digest food with a very bland diet. All this happened

Hello guys, I’ve found the advice from you folks to be really helpful since I’ve been on here moaning and groaning so I just wondered if any of you have experienced any measurable improvement in arthritis symptoms using supplements and lifestyle changes? I have just been recommended for TKR surgery

Folks just a quickie, does anyone know of hot and cold sweats with fibromyalgia as I am at work now but the pain is bad and I am getting hot and cold sweats

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