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What does having a NEW KIDNEY feel like?
Hi All, I have been in the transplant list for a year now and still waiting to get called. I can’t just help to wonder what having a kidney transplant will feel like. Apart from the fact that it will be a gift of life and freedom from being tied down to dialysis. What does it feel like? Will you
Hi All, I have been in the transplant list for a year now and still waiting to get called. I can’t just help to wonder what having a kidney transplant will feel like. Apart from the fact that it will be a gift of life and freedom from being tied down to dialysis. What does it feel like? Will you
Imaanforever
in
Kidney Dialysis
7 months ago
p17 deletion. Can anyone advise or cheer me up?!
Hi! I’m 79, living in UK and 18 months into being diagnosed with Chronic lymphocytic leukaemia (CLL) and suspected Chronic myelomonocytic leukaemia (CMML), I have been still at early stage and not needing treatment. However, yesterday I received a copy of my consultant’s latest report with new blood
Hi! I’m 79, living in UK and 18 months into being diagnosed with Chronic lymphocytic leukaemia (CLL) and suspected Chronic myelomonocytic leukaemia (CMML), I have been still at early stage and not needing treatment. However, yesterday I received a copy of my consultant’s latest report with new blood
Fogey
in
CLL Support
9 months ago
I'm scared.
Is.ms
chronic
dizziness? I felt like this with vestibular
migraine
, I'm so scared. Any one for some advice? Hugs from Australia 🇦🇺
Is.ms
chronic
dizziness? I felt like this with vestibular
migraine
, I'm so scared. Any one for some advice? Hugs from Australia 🇦🇺
Contra21
in
My MSAA Community
7 months ago
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Medically induced zombie looking for help!
Is anyone else on Pregabalin and if so, how do you cope with 'zombiefying' side effects? I spend most of my working day on a computer and sometimes I feel like I can barely keep my eyes open. I'm also on Celecoxib and Topiramate.
Is anyone else on Pregabalin and if so, how do you cope with 'zombiefying' side effects? I spend most of my working day on a computer and sometimes I feel like I can barely keep my eyes open. I'm also on Celecoxib and Topiramate.
Fibro_warrior
in
Fibromyalgia Action UK
1 year ago
Hemiplegic migraine
Hello, I have suffered from Migraines with aura for 11 years now. I mainly get the visual disturbances. But two weeks ago after my usual funny eyes my left side went very weak. I ended up in a&e where I was diagnosed with a hemiplegic. I’ve been resting up at home since then. My question is how long
Hello, I have suffered from Migraines with aura for 11 years now. I mainly get the visual disturbances. But two weeks ago after my usual funny eyes my left side went very weak. I ended up in a&e where I was diagnosed with a hemiplegic. I’ve been resting up at home since then. My question is how long
Coco1381
in
National Migraine Centre
1 year ago
Update.
Had my last infusion of Rituximab today. A doctor came to speak with me, apparently my cll is not responding to the infusions. They are hoping that this last dose will trigger a reaction but she is doubtful. She asked if I had ever taken acalabrutinib to which I said no and I think i have heard that
Had my last infusion of Rituximab today. A doctor came to speak with me, apparently my cll is not responding to the infusions. They are hoping that this last dose will trigger a reaction but she is doubtful. She asked if I had ever taken acalabrutinib to which I said no and I think i have heard that
Jacksc06
in
CLL Support
10 months ago
Lymphatic drainage massages
After reading CLL is dormant in the blood stream but active in the lymph nodes I wondered if it might be be beneficial to keep the cells circulating out of the lymph nodes as much as possible. It seems intuitive exercise and hydration would be good for this potentially but should have no real negative
After reading CLL is dormant in the blood stream but active in the lymph nodes I wondered if it might be be beneficial to keep the cells circulating out of the lymph nodes as much as possible. It seems intuitive exercise and hydration would be good for this potentially but should have no real negative
Rando21
in
CLL Support
10 months ago
voltarol
I have a really bad back pain and I know I cannot take ibuprofen but is is ok to use the gel once or twice? It is so painful 😣
I have a really bad back pain and I know I cannot take ibuprofen but is is ok to use the gel once or twice? It is so painful 😣
Gertsen
in
Atrial Fibrillation Support
1 year ago
A ‘wobble’ caused by subset 6 CLL.
Hi all, a very ocasional póster here but avid reader of the many highly informed contributors that make this site what it is. I was diagnosed with stage ‘A’ CLL in 2021 and continue to be on W & W. I have many of the classic symptoms but not severe enough to warrant treatment - yet! I’ve recently been
Hi all, a very ocasional póster here but avid reader of the many highly informed contributors that make this site what it is. I was diagnosed with stage ‘A’ CLL in 2021 and continue to be on W & W. I have many of the classic symptoms but not severe enough to warrant treatment - yet! I’ve recently been
Petroc
in
CLL Support
10 months ago
1 Year Anniversary (Nov 16)
Good evening, Yesterday, Nov 16, 2023, was the one year anniversary for my kidney transplant. Cindy (my donor kidney named after my good friend who helped me decide to pursue transplant eligibility testing) has been a trooper this year. She has soldiered forward without faltering as we’ve battled very
Good evening, Yesterday, Nov 16, 2023, was the one year anniversary for my kidney transplant. Cindy (my donor kidney named after my good friend who helped me decide to pursue transplant eligibility testing) has been a trooper this year. She has soldiered forward without faltering as we’ve battled very
Jayhawker
in
Kidney Dialysis
8 months ago
COVID
Am fully vaccinated for COVID. Had close contact with two people who had positive COVID self tests. Determined self testing if positive is reliable. Was not feeling unwell to a degree could not be attributed to 'B12'. Sent a clear informed message to my GP in the morning which is yet to be answered
Am fully vaccinated for COVID. Had close contact with two people who had positive COVID self tests. Determined self testing if positive is reliable. Was not feeling unwell to a degree could not be attributed to 'B12'. Sent a clear informed message to my GP in the morning which is yet to be answered
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
I make trying to suppress EBV a leg of my supplement strategy.
I replied to a comment with this comment, then decided to share it as a post also:
As somebody who has been exposed to EBV (mono), I make trying to suppress EBV a leg of my supplement strategy. I need to write up everything I think helps with EBV, but here is a short list: -
Lactobacillus
I replied to a comment with this comment, then decided to share it as a post also:
As somebody who has been exposed to EBV (mono), I make trying to suppress EBV a leg of my supplement strategy. I need to write up everything I think helps with EBV, but here is a short list: -
Lactobacillus
Bolt_Upright
in
Cure Parkinson's
5 months ago
Magnesium taurine
Hi all I read a post about people taking magnesium with taurine, but they were having trouble finding it together in one product. I found that dolphin fitness do a combined capsule. I use the firm often and I find them to be very reliable and well priced. Below is, hopefully, the link. I hope this
Hi all I read a post about people taking magnesium with taurine, but they were having trouble finding it together in one product. I found that dolphin fitness do a combined capsule. I use the firm often and I find them to be very reliable and well priced. Below is, hopefully, the link. I hope this
pkc05
in
AF Association
1 year ago
Small pouch or bag
Can anyone recommend a small pouch that would clip on to a belt or one with a strap already on that I can carry a couple of inhalers in and a pulse /0ximeter when I go out, thanks.
Can anyone recommend a small pouch that would clip on to a belt or one with a strap already on that I can carry a couple of inhalers in and a pulse /0ximeter when I go out, thanks.
6538
in
Lung Conditions Community Forum
4 days ago
More steroids my third course 😭
My asthma is the worst it's ever been anything sets it off, I had to go to the doctors again today and good job I did needed yet another inhaler I'm on fostair, tiotropium and salbutamol now so yeah alot and the prednisolone tablets so hopefully this should help clear up what ever is aggrevating my breathing
My asthma is the worst it's ever been anything sets it off, I had to go to the doctors again today and good job I did needed yet another inhaler I'm on fostair, tiotropium and salbutamol now so yeah alot and the prednisolone tablets so hopefully this should help clear up what ever is aggrevating my breathing
Yumz199725
in
Lung Conditions Community Forum
17 days ago
Check out our Kidney Disease Education courses on the Kidney Learning Center!
Want to know more about your choices for kidney failure treatment? Sign up for our NEW, self-paced education program to learn more ALL of your options, including kidney transplant, both kinds of dialysis (peritoneal dialysis and hemodialysis), and medical management, or no treatment. https://learningcenter.kidney.org
Want to know more about your choices for kidney failure treatment? Sign up for our NEW, self-paced education program to learn more ALL of your options, including kidney transplant, both kinds of dialysis (peritoneal dialysis and hemodialysis), and medical management, or no treatment. https://learningcenter.kidney.org
KateyC_NKF
Partner
in
Kidney Dialysis
8 months ago
Venetoclax has been added to the Pharmaceutical Benefits Scheme in Australia for use as a retreatment for CLL/SLL
In more good news, today the Pharmaceutical Benefits Scheme (PBS) in Australia added venetoclax to its listings for the retreatment of CLL/SLL in those whose disease relapses/progresses after an initial venetoclax-based therapy has controlled it. The PBS Listing states: [i]"Chronic lymphocytic leukaemia
In more good news, today the Pharmaceutical Benefits Scheme (PBS) in Australia added venetoclax to its listings for the retreatment of CLL/SLL in those whose disease relapses/progresses after an initial venetoclax-based therapy has controlled it. The PBS Listing states: [i]"Chronic lymphocytic leukaemia
CLLerinOz
Administrator
in
CLL Support
10 months ago
42 days post ablation
Hi, Recovery from my cyro-ablation for AFIB was non-stop terrible. I had a migraines with aura EVERY. SINGLE. Day for 37 days. Nothing stopped them: steroids, migraine medication, etc. They have suddenly stopped. I've had migraines my whole life, but never a run like that after a procedure (and they
Hi, Recovery from my cyro-ablation for AFIB was non-stop terrible. I had a migraines with aura EVERY. SINGLE. Day for 37 days. Nothing stopped them: steroids, migraine medication, etc. They have suddenly stopped. I've had migraines my whole life, but never a run like that after a procedure (and they
Elizka
in
AF Association
1 year ago
Little Laughter 😂
Well today I go to pain specialist to look at MRI’s and see if there’s anything we can do 🙏 I am really tired of migraines and dizziness 😣 Still waiting on approval for daily meds 🤷♂️ I just got notice that prescription for Nurtec is ready to pickup and my price has doubled, dang the crazy drug
Well today I go to pain specialist to look at MRI’s and see if there’s anything we can do 🙏 I am really tired of migraines and dizziness 😣 Still waiting on approval for daily meds 🤷♂️ I just got notice that prescription for Nurtec is ready to pickup and my price has doubled, dang the crazy drug
Kenu
in
My MSAA Community
1 year ago
Rytary and Deep Brain Stimulation
my husband has been taking Rytary for a year. We noticed his veins get large and tingle which he says at time hurts. It gives him a terrible headache more then the the plain C/L. The Dr wants him to consider DBS now . He said it has benefits but won’t last forever then back to square one. He doesn’
my husband has been taking Rytary for a year. We noticed his veins get large and tingle which he says at time hurts. It gives him a terrible headache more then the the plain C/L. The Dr wants him to consider DBS now . He said it has benefits but won’t last forever then back to square one. He doesn’
Blueyedgirlky
in
Cure Parkinson's
1 year ago
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