42 days post ablation

[Elizka]

Hi,

Recovery from my cyro-ablation for AFIB was non-stop terrible. I had a migraines with aura EVERY. SINGLE. Day for 37 days.

Nothing stopped them: steroids, migraine medication, etc. They have suddenly stopped. I've had migraines my whole life, but never a run like that after a procedure (and they are largely controlled with CGRP inhibitors).

My EP said I'm only the third patient she's done an ablation on who has gotten migraines after in 18 years. Lucky me.

Starting to workout again, but still get tired easily. Emotionally, the migraines day and after day did me in mentally. I put on weight as I could no nothing and comfort food was all I cared about.

Time to control/alt delete sugar and get back to a healthy lifestyle.

[stoneyrosed]

Light at the end of the tunnel. I hope you keep improving, you have lots to look forward to 😊

[Elizka in reply to stoneyrosed]

Thank you!

[Gumbie_Cat]

Glad that it’s getting better, and hoping that it helped knock that AFib on the head.

I dreaded the idea of getting migraines afterwards, and I was one of the lucky ones as I didn't. However, I was only in sinus rhythm for two days, and have been advised that further procedures are not recommended. So, not entirely lucky.

[DawnTX in reply to Gumbie_Cat]

unfortunately, that is more common than they light on from what I understand. Everything is just temporary just a fix like a Band-Aid instead of stitches on a bad cut. That’s the way I view it I am glad I finally got the pacemaker. It seems to be the one sure way of having a life again. The others tease and show us how good we can feel than puff. They are gone and we are miserable again. My first to ablations lasted six months and the second a year. I did not know how lucky I was because I had no problems during those times. Even when I was told I needed the second I was still feeling OK.

have they mentioned pace and ablate to you yet? It wasn’t an overnight cure for me. If you’ve noticed, I’ve had some ups and downs, but evidently there is a blanking period for everything including pacemakers. Fingers crossed. I turned the final corner for now, but who knows? Thinking of you let us know what’s going on and how are you are

[Gumbie_Cat in reply to DawnTX]

It’s on the cards if the rate can’t be controlled. They were happy enough with the Holter monitor in April though - the rate averaged in the 80s. That’s on 2 x 2.25mg Bisoprolol and also the apixaban of course. Goes higher when exercising, but goes back down.

I’m doing ok in persistent A Fib now - legs get a bit tired at the top of hills and stairs, but no breathlessness. Walking further recently too, now that i feel properly recovered from the ablation.

If things were to get worse though, I would definitely go for it.

[DawnTX in reply to Gumbie_Cat]

It sounds like you’re doing pretty good without taking on more procedures, etc. if you can do it with meds and stay at that rate, I would be happy I know. We all go higher when we are active. I was confused about that when I got the pacemaker. I was told I was set at 80 so when I saw it in the 90s it scared me. I called to my nurse, who explained everyone has their heart rate increase when they are active And the number I am sit at is my resting heart rate. As of last week I am now set at 60 I can feel a difference and it’s good. I hope the same for you going forward.

[Gumbie_Cat in reply to DawnTX]

Thanks Dawn. My watch thinks that my resting rate is 52, but I don’t think it’s accurate. Anyway, feeling ok - cross fingers!

[DawnTX in reply to Gumbie_Cat]

🤗

[Elizka in reply to Gumbie_Cat]

Sorry to hear that. NSR is good for me. No afib so fingers crossed

[AnaCT]

Hi Elizka. Have you tried taking magnesium for migraines with aura? I’va had migraines with aura for many years until I started taking magnesium. They’ve gone away. Hope you feel better.

[Elizka in reply to AnaCT]

Yes.

[Mikeymike77]

I thought migraines with aura were a common problem with the ablation because of puncturing the septum? I certainly had them!

[kkatz]

So much sympathy with the migraines.Glad the've stopped.Re workouts.I found I wasn't ready for them at 8 weeks. However I upped my walking & crown green bowls.Been to exercise classes a few times in the last couple of weeks.Now 14 weeks post ablation.3 months check up on Monday.

Things aren't perfect but better in so many many ways.

[DawnTX]

I never got a migraine with all the procedures I have had until my last one when they ablated my AV node. Oh my goodness what a headache and yes, nothing helped for days. I wonder if it is actually the ablation or the general anesthesia. I was under longer than normal. Many people on here have also had the migraines, so we are not unique.

[Elizka in reply to DawnTX]

Not sure they will ever know.

[DawnTX in reply to Elizka]

true