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Bladder Cancer with CLL
CLL since 2012 ( Ibrutinib 5 years , Gayzva 6 months , Acalabrutinib 2 years ) now bladder cancer , high grade , no wall penetration .... advised to take BCG for 6 weeks every 3 months for a year ... anyone shed light on what I can physically expect from the BCG ?
CLL since 2012 ( Ibrutinib 5 years , Gayzva 6 months , Acalabrutinib 2 years ) now bladder cancer , high grade , no wall penetration .... advised to take BCG for 6 weeks every 3 months for a year ... anyone shed light on what I can physically expect from the BCG ?
fish61
in
CLL Support
3 years ago
Anti inflammatory eating..
Morning.. I am a MF patient, (52 working full time), and for a while have been interested in how nutrition can help me. I can be very good about a varied diet, and then get bored of it, or the perceived effort of planning and doing etc.... However lockdown has made eating well harder, shopping online
Morning.. I am a MF patient, (52 working full time), and for a while have been interested in how nutrition can help me. I can be very good about a varied diet, and then get bored of it, or the perceived effort of planning and doing etc.... However lockdown has made eating well harder, shopping online
Mrs_Average
in
MPN Voice
3 years ago
ET OR MYELOFIBROSIS
Hi! I am new to this. You guys Who have ET, did you have any raising levels in LDH? Or anything else other than high platelets? How is the prognosis with prefibrotic myelofibrosis? Do everyone get myelofibrosis? Thank you!
Hi! I am new to this. You guys Who have ET, did you have any raising levels in LDH? Or anything else other than high platelets? How is the prognosis with prefibrotic myelofibrosis? Do everyone get myelofibrosis? Thank you!
Johan2021
in
MPN Voice
3 years ago
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Awaiting 6 week scan, no symptoms.
Hi ladies, can anyone give any advice. I should be 6+1 today. I know it’s early for symptoms but I’ve spotted brown almost every day since 4 days after transfer. I had HCG bloods taken last weds & Friday (today is Friday) so exactly 1 week ago bloods were ok, HCG went from 4485 to 8847, 8847 when I was
Hi ladies, can anyone give any advice. I should be 6+1 today. I know it’s early for symptoms but I’ve spotted brown almost every day since 4 days after transfer. I had HCG bloods taken last weds & Friday (today is Friday) so exactly 1 week ago bloods were ok, HCG went from 4485 to 8847, 8847 when I was
Rcs11
in
Fertility Network UK
3 years ago
Spotted for 2 days at 6wks am I still pregnant?
Hi all. I spotted for 2 days, light brown, only when I wipe. Am currently 6 weeks pregnant. HCG at 5 wks 5 days was 21445 up from 1175 eight days prior. Pregnancy symptoms still there. My dr said I’m heading for a miscarriage. Help, please! I am so confused.
Hi all. I spotted for 2 days, light brown, only when I wipe. Am currently 6 weeks pregnant. HCG at 5 wks 5 days was 21445 up from 1175 eight days prior. Pregnancy symptoms still there. My dr said I’m heading for a miscarriage. Help, please! I am so confused.
SophiaBlu
in
Pregnancy and Parenting Support
3 years ago
Early pregnancy scan ( After IVF)
Hi everyone, I want some advice about the pregnancy scan. I am in the UK, I just found out that I am 4weeks pregnant. My first scan at my clinic is when I am about 7-8weeks. I know the scan at clinic is early scan but I am thinking of having another scan before 7 weeks at a different clinic. Do you
Hi everyone, I want some advice about the pregnancy scan. I am in the UK, I just found out that I am 4weeks pregnant. My first scan at my clinic is when I am about 7-8weeks. I know the scan at clinic is early scan but I am thinking of having another scan before 7 weeks at a different clinic. Do you
Ome867
in
Fertility Network UK
3 years ago
HCG Levels - Singleton and Multiple Pregnancy
I thought we could share our HCG levels with one another. What were your HCG levels, and how many babies have you conceived? At 10 dpo my HCG level was 27, and at 20 dpo, it came in at 4018. It basically trippled every 48 hours. I will go for my first ultrasound tomorrow. Thinking one healthy singleton
I thought we could share our HCG levels with one another. What were your HCG levels, and how many babies have you conceived? At 10 dpo my HCG level was 27, and at 20 dpo, it came in at 4018. It basically trippled every 48 hours. I will go for my first ultrasound tomorrow. Thinking one healthy singleton
Ellie505
in
Fertility Network UK
3 years ago
Hcg levels at 5+4?
At 5+4 my hcg level is only 2077, I’m feeling like that’s really low. Did anyone else have a number like this at 5 + 4? 😔❤️
At 5+4 my hcg level is only 2077, I’m feeling like that’s really low. Did anyone else have a number like this at 5 + 4? 😔❤️
Suzyyyyyyy
in
Fertility Network UK
3 years ago
Richter Syndrome
Hello Everybody, My boyfriend was just diagnosed with Richter Syndrome about 2 hours ago. Those have been 2 hours where I have felt myself losing my mind! They told him not to google anything in regards to the diagnosis as they are doing more tests. Of course, I didn’t listen! Everything I have read
Hello Everybody, My boyfriend was just diagnosed with Richter Syndrome about 2 hours ago. Those have been 2 hours where I have felt myself losing my mind! They told him not to google anything in regards to the diagnosis as they are doing more tests. Of course, I didn’t listen! Everything I have read
Bee4028
in
CLL Support
3 years ago
*sensitive* pregnancy test control line fluctuations dark back to light
Hi all, I just wanted to create this post to reassure anyone that does the ridiculous thing that I did this morning and continue to POAS. Yesterday 27/04 my first response test with FMU had a dark test line and a light control line. When i stupidly did one again this morning at 28/04, that control line
Hi all, I just wanted to create this post to reassure anyone that does the ridiculous thing that I did this morning and continue to POAS. Yesterday 27/04 my first response test with FMU had a dark test line and a light control line. When i stupidly did one again this morning at 28/04, that control line
Dani87
in
Fertility Network UK
3 years ago
Sore scalp
Hi all Has anyone who’s on Tacrolimus suffered from an itching sore scalp? Am coming up 3 years post transplant and in good health but for past 3/4 months my scalp is really itchy
Hi all Has anyone who’s on Tacrolimus suffered from an itching sore scalp? Am coming up 3 years post transplant and in good health but for past 3/4 months my scalp is really itchy
1football
in
British Liver Trust
3 years ago
COPD & Showers
Thank you everyone for your repsonses, I am most grateful for your taking time to respond. It's almost a relief to know that I am not alone in finding water vapour in the bathroom, and the outdoors an issue. I am not sure whether that this is something that the medical profession are aware of, or even
Thank you everyone for your repsonses, I am most grateful for your taking time to respond. It's almost a relief to know that I am not alone in finding water vapour in the bathroom, and the outdoors an issue. I am not sure whether that this is something that the medical profession are aware of, or even
philipjr
in
Lung Conditions Community Forum
3 years ago
CEV letter v2.0, NI edition.
So lots of posts on here from people getting CEV letters again. Mostly England I think however our wee country got to deal with the serious arguments about transfer tests (I guess they are, not if you're youngest is 20 though) before they issue the guidance and letters. Just yesterday, Friday 8th I received
So lots of posts on here from people getting CEV letters again. Mostly England I think however our wee country got to deal with the serious arguments about transfer tests (I guess they are, not if you're youngest is 20 though) before they issue the guidance and letters. Just yesterday, Friday 8th I received
Belfastbees
in
CLL Support
3 years ago
Passive vaping: an impending threat to bystanders.
Electronic cigarettes (e-cigarettes), also known as vapes, are gaining popularity among youths in many parts of the world, including the US and Europe. These young vapers are often unaware their e-cigarettes contain nicotine, an addictive substance that is also present in tobacco cigarettes. Little
Electronic cigarettes (e-cigarettes), also known as vapes, are gaining popularity among youths in many parts of the world, including the US and Europe. These young vapers are often unaware their e-cigarettes contain nicotine, an addictive substance that is also present in tobacco cigarettes. Little
2greys
in
Lung Conditions Community Forum
3 years ago
1st IVF cycle
Hey everyone, I am new here. I need some hopefully good news but of course the truth. This is my first IVF cycle. We got 8 eggs and 8 embryos. Only 6 made it too blastocyst. We transferred one on 4/12 and the others were frozen. Everything was going great until 6dp5dt. I started bleeding. Nothing like
Hey everyone, I am new here. I need some hopefully good news but of course the truth. This is my first IVF cycle. We got 8 eggs and 8 embryos. Only 6 made it too blastocyst. We transferred one on 4/12 and the others were frozen. Everything was going great until 6dp5dt. I started bleeding. Nothing like
MyersMom1518
in
Fertility Network UK
3 years ago
Expert Answers to Frequently Asked Questions About Chronic Lymphocytic Leukemia and COVID-19, including vaccination
Interesting 'conversation' with CLL experts on a variety of topics including: Do patients with CLL have worse outcomes if they develop COVID‑19? Are data available on COVID-19 outcomes in younger patients with CLL? Would it be possible for CLL-associated lymphocytosis to counteract COVID-19–associated
Interesting 'conversation' with CLL experts on a variety of topics including: Do patients with CLL have worse outcomes if they develop COVID‑19? Are data available on COVID-19 outcomes in younger patients with CLL? Would it be possible for CLL-associated lymphocytosis to counteract COVID-19–associated
Jm954
Administrator
in
CLL Support
3 years ago
Organic apple cider vinegar "unpasteurized and unfiltered" ?
I am starting to use a very small quantity (spoons full ) of organic apple cider vinegar to spice-up vegetable puree. Can I use the "organic apple cider vinegar" which "unpasteurized and unfiltered" ? I have CLL under near normal CBC control with IMBRUVICA. Also, what if any benefit would any small
I am starting to use a very small quantity (spoons full ) of organic apple cider vinegar to spice-up vegetable puree. Can I use the "organic apple cider vinegar" which "unpasteurized and unfiltered" ? I have CLL under near normal CBC control with IMBRUVICA. Also, what if any benefit would any small
janvog
in
CLL Support
3 years ago
Fibromyalgia vs Chronic Fatigue
Can anyone help me with identifying the differences between Fibromyalgia and Chronic Fatigue Syndrome? Are they the same thing? Can you have both? Thank You
Can anyone help me with identifying the differences between Fibromyalgia and Chronic Fatigue Syndrome? Are they the same thing? Can you have both? Thank You
Fizzwizz35
in
Fibromyalgia Action UK
3 years ago
WARWICK's ASCT Journey Begins Today...
Post by MPN-MATE Admin » Mon Feb 08, 2021 4:23 pm Hey everyone... :D As the subject of this Post is about Warwick's Allogenic Stem Cell Transplant journey, he will come back as he progresses through each stage of this journey to share the experience w/ ALL MPNers, who might have an interest... I met
Post by MPN-MATE Admin » Mon Feb 08, 2021 4:23 pm Hey everyone... :D As the subject of this Post is about Warwick's Allogenic Stem Cell Transplant journey, he will come back as he progresses through each stage of this journey to share the experience w/ ALL MPNers, who might have an interest... I met
socrates_8
in
MPN Voice
3 years ago
Early scan after heavy bleed - IVF FET
Hi everyone, posting this to give others hope as it’s what I was looking for this weekend. Last Monday we had a scan which showed a 6 week baby with a heartbeat. Thursday I had very painful cramps for a few hours then a large gush of blood, ended up in a&e where I bled for 3 hours. Cervix checked and
Hi everyone, posting this to give others hope as it’s what I was looking for this weekend. Last Monday we had a scan which showed a 6 week baby with a heartbeat. Thursday I had very painful cramps for a few hours then a large gush of blood, ended up in a&e where I bled for 3 hours. Cervix checked and
Minnie92
in
Fertility Network UK
3 years ago
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