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Chronic leukaemia
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Aggressive CLL - Richter's Transformation
Hi Everyone, My father was diagnosed with aggressive CLL with PLL (prolymphocytic leukemia--where the cancer is present in immature white cells) and paraimmunoblastic features in March 2020. The first-line treatment was obinutuzumab/venetoclax but after a year on this treatment, his disease has turned
Hi Everyone, My father was diagnosed with aggressive CLL with PLL (prolymphocytic leukemia--where the cancer is present in immature white cells) and paraimmunoblastic features in March 2020. The first-line treatment was obinutuzumab/venetoclax but after a year on this treatment, his disease has turned
Phs2385
in
CLL Support
3 years ago
Trying to be in the moment for once
So I am pregnant, and just found out yesterday. Tomorrow we'll go for our third HCG test to see if it has come close to doubling again and if things look viable. I am so keenly aware that this could be taken away from us at any moment, so I'm really just trying to be present for it now. I am pregnant
So I am pregnant, and just found out yesterday. Tomorrow we'll go for our third HCG test to see if it has come close to doubling again and if things look viable. I am so keenly aware that this could be taken away from us at any moment, so I'm really just trying to be present for it now. I am pregnant
LuxFleur
in
Fertility Network UK
3 years ago
So confused and losing confidence in my body
I’ve been testing since 9dp5dt, my OTD was Sunday 25th (11dp5dt) and I’ve had a faint positives on each day on a frer test. Called the clinic and scan booked for 17th Aug, but also told to retest as an option. This morning (13dp5dt) I tested using a clear blue digital, and it came up as ‘not pregnant
I’ve been testing since 9dp5dt, my OTD was Sunday 25th (11dp5dt) and I’ve had a faint positives on each day on a frer test. Called the clinic and scan booked for 17th Aug, but also told to retest as an option. This morning (13dp5dt) I tested using a clear blue digital, and it came up as ‘not pregnant
Becatoms
in
Fertility Network UK
3 years ago
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Leukaemia Care and Lymphoma Action - CLL treatment update webinars – 26th April and 5th May 2021
Dr Munir’s main clinical and research special interests are in
chronic
lymphocytic
leukaemia
, particularly in the assessment of the mechanism of action of novel targeted therapies. • Lianne Palmer, CLL-specific CNS at Oxford University Hospitals.
Dr Munir’s main clinical and research special interests are in
chronic
lymphocytic
leukaemia
, particularly in the assessment of the mechanism of action of novel targeted therapies. • Lianne Palmer, CLL-specific CNS at Oxford University Hospitals.
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Radiotherapy for sarcomatoid sccs related to ruxolitinib: would welcome dosage experiences
Hi. Thank you in advance for your time. I’m having 50 grays of radiation split into 20 doses ( 5 days a week) to prevent further recurrences of SCCs. on my face. Removed surgically. . Nasty stuff , and face is already sore and itchy after 6 treatments. Can’t find any evidence base for that level of
Hi. Thank you in advance for your time. I’m having 50 grays of radiation split into 20 doses ( 5 days a week) to prevent further recurrences of SCCs. on my face. Removed surgically. . Nasty stuff , and face is already sore and itchy after 6 treatments. Can’t find any evidence base for that level of
Rachelthepotter
in
MPN Voice
3 years ago
2nd HCG results back: from 76 to 139, is this enough??????
Hello, and thank you to the people who have been supportive on here. I am currently 14dp5dt. FET. Age 42. I had my first beta test on Saturday at 12dp5dt and the results (which only arrived today due to the weekend) was 76. Then today, two days later, at the same time in the morning, it was 139. It
Hello, and thank you to the people who have been supportive on here. I am currently 14dp5dt. FET. Age 42. I had my first beta test on Saturday at 12dp5dt and the results (which only arrived today due to the weekend) was 76. Then today, two days later, at the same time in the morning, it was 139. It
LuxFleur
in
Fertility Network UK
3 years ago
Supporting you to make decisions around clinical trials - a free online webinar - Friday 18th June at 3pm
Clinical trials are an important part of the treatment of blood cancers, and for some people can offer access to new treatments that aren’t available routinely. Some people may be invited to participate in a clinical trial by their healthcare team, and some may like to raise the question of suitability
Clinical trials are an important part of the treatment of blood cancers, and for some people can offer access to new treatments that aren’t available routinely. Some people may be invited to participate in a clinical trial by their healthcare team, and some may like to raise the question of suitability
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
*Sensitive* BFP???? Positive but low HCG
Hello. So I finally got my results back after having my HCG test on 12dp5dt, and it is positive, but only 76. Does this mean I am having a chemical? Has anyone gotten this low a number and gone on to have a successful pregnancy? I am going to get another test now. Thanks xo
Hello. So I finally got my results back after having my HCG test on 12dp5dt, and it is positive, but only 76. Does this mean I am having a chemical? Has anyone gotten this low a number and gone on to have a successful pregnancy? I am going to get another test now. Thanks xo
LuxFleur
in
Fertility Network UK
3 years ago
Has anyone that’s prone to depression taken PEG INF / Pegasys?
I guess I’m clutching at straws here but I’m not keen and will probably decide to not start Ruxolitinib at this time, so that just leaves Peg. I will post an update as to what’s going on since my last haem apt which was a couple of days ago but as always the monthly appointments tend to upset me so
I guess I’m clutching at straws here but I’m not keen and will probably decide to not start Ruxolitinib at this time, so that just leaves Peg. I will post an update as to what’s going on since my last haem apt which was a couple of days ago but as always the monthly appointments tend to upset me so
Magentas
in
MPN Voice
3 years ago
Webinar for blood cancer patients - 3.30pm 30th March - Next steps with shielding and vaccination for COVID-19
Professor Fegan will focus on
chronic
leukaemia
Dr Tobias Menne, Newcastle University and Consultant Haematologist Newcastle Hospitals. Dr Menne will focus on acute leukaemia You can register here: https://us02web.zoom.us/webinar/register/WN_rp5koCMlSOWgyNYdpoA8wQ
Professor Fegan will focus on
chronic
leukaemia
Dr Tobias Menne, Newcastle University and Consultant Haematologist Newcastle Hospitals. Dr Menne will focus on acute leukaemia You can register here: https://us02web.zoom.us/webinar/register/WN_rp5koCMlSOWgyNYdpoA8wQ
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Chronic Constipation
I have been on PD since Jan 2016. Recently, my issues with constipation have gotten to a very frustrating level. I have tried: Prunes; more fruits/veggies; OTC softeners; laxatives; yogurt; probiotics; exercise.....and it is to a chronic stage. If I take prescription Linzess or Trulance provided
I have been on PD since Jan 2016. Recently, my issues with constipation have gotten to a very frustrating level. I have tried: Prunes; more fruits/veggies; OTC softeners; laxatives; yogurt; probiotics; exercise.....and it is to a chronic stage. If I take prescription Linzess or Trulance provided
TaffyTwoshoes27
in
Kidney Dialysis
3 years ago
Results are still not ready!!!
I went for my HCG test yesterday at 12dp5dt. But the results never came in yesterday. There's a website where you have to log in to see the results, and it just says the file is still waiting to be updated. So I don't know if I have to wait until tomorrow, since its Sunday, or what.
I went for my HCG test yesterday at 12dp5dt. But the results never came in yesterday. There's a website where you have to log in to see the results, and it just says the file is still waiting to be updated. So I don't know if I have to wait until tomorrow, since its Sunday, or what.
LuxFleur
in
Fertility Network UK
3 years ago
HCG injections after embryo transfer
Hi Ladies Has anyone used HCG injections after a transfer and had success? This is my first time trying this so just looking for others experiences. Thanks so much 💕
Hi Ladies Has anyone used HCG injections after a transfer and had success? This is my first time trying this so just looking for others experiences. Thanks so much 💕
Beclp
in
Fertility Network UK
3 years ago
Doctor wants to start Venetoclax today but recent blood work shows evidence of AIHA but Doctor still says start Ven
shouldn't AIHA be treated first? hemoglobin dropping weekly down from 14.7 2 months ago now 10.7 Haptoglobin less than 31 LDH almost 700 Doctor says still start Venclexta tomorrow but why not hold off until AIHA is controlled with steroids or Rituxan? I think the Rituxan will put him in control of
shouldn't AIHA be treated first? hemoglobin dropping weekly down from 14.7 2 months ago now 10.7 Haptoglobin less than 31 LDH almost 700 Doctor says still start Venclexta tomorrow but why not hold off until AIHA is controlled with steroids or Rituxan? I think the Rituxan will put him in control of
Palmetto
in
CLL Support
3 years ago
Does the haematologist really know what he's talking about?!
So? Does he? CLL ten years, W&W. Ivig every 4 weeks. Last November, kidney biopsy. Cryoglobulinemia! So the cryo kicks up symptoms not necessarily related to CLL. Blood test numbers all roughly within perimeters, except immunoglobulin, 1.49! The haem just shrugs his shoulders when I ask cryo questions
So? Does he? CLL ten years, W&W. Ivig every 4 weeks. Last November, kidney biopsy. Cryoglobulinemia! So the cryo kicks up symptoms not necessarily related to CLL. Blood test numbers all roughly within perimeters, except immunoglobulin, 1.49! The haem just shrugs his shoulders when I ask cryo questions
happyclappy
in
CLL Support
3 years ago
12dp5dt, OTD today
I am supposed to test today, since this was the date that ended up being on the prescription for the HCG test, even though my doctor had just said basically whenever. I am feeling so depressed and negative. I saw someone else's post saying that they didn't even want to TRY because they were ALMOST my
I am supposed to test today, since this was the date that ended up being on the prescription for the HCG test, even though my doctor had just said basically whenever. I am feeling so depressed and negative. I saw someone else's post saying that they didn't even want to TRY because they were ALMOST my
LuxFleur
in
Fertility Network UK
3 years ago
Pre-fibrotic MF
So I finally seen my Hemo, and the results show I've got Pre-fibrotic MF. Im JAK2 positive. So he would like to put me on ruxolitinib on my next visit. Approval is needed due to my age? I'm 36. My current symptoms are fevers, sweats, burning feet, blurred vision, no appetite, underweight sitting at 47kg
So I finally seen my Hemo, and the results show I've got Pre-fibrotic MF. Im JAK2 positive. So he would like to put me on ruxolitinib on my next visit. Approval is needed due to my age? I'm 36. My current symptoms are fevers, sweats, burning feet, blurred vision, no appetite, underweight sitting at 47kg
Kriddle01
in
MPN Voice
3 years ago
COVID-19 vaccine and CLL patients: An analysis of the first published UK results
The first results of a key study on vaccine responses in
chronic
lymphocytic
leukaemia
patients has been published in preprint in Lancet. [i]"In summary, this study has shed some light on those most at risk in the CLL population and gives others cause for hope.
The first results of a key study on vaccine responses in
chronic
lymphocytic
leukaemia
patients has been published in preprint in Lancet. [i]"In summary, this study has shed some light on those most at risk in the CLL population and gives others cause for hope.
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Spike Antibody Test Results
I got the results of my Semi-Quantitative Covid Spike Antibody test (LabCorp). I DO NOT have CLL. I am a healthy 66 year old. I took the test 6 weeks after my second Pfizer shot. The result was >250. (Interpretation says <0.8 is negative, >0.79 is positive. I guess that means I am very positive.
I got the results of my Semi-Quantitative Covid Spike Antibody test (LabCorp). I DO NOT have CLL. I am a healthy 66 year old. I took the test 6 weeks after my second Pfizer shot. The result was >250. (Interpretation says <0.8 is negative, >0.79 is positive. I guess that means I am very positive.
Ibru
in
CLL Support
3 years ago
BETA HCG results. Can I have some advice please
I had a beta blood test for some peace of mind after some brown spotting (that happened on one occasion), but had no more blood since. My beta is 20801iu/l. Is this a good number ? My Dr said it's high and I don't need to repeat the beta and to wait for my viability scan on the 3rd or August. What were
I had a beta blood test for some peace of mind after some brown spotting (that happened on one occasion), but had no more blood since. My beta is 20801iu/l. Is this a good number ? My Dr said it's high and I don't need to repeat the beta and to wait for my viability scan on the 3rd or August. What were
Hope_1234
in
Fertility Network UK
3 years ago
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