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THE THIRD SHOT
lymphoid
leukaemia
, myeloma, Waldenstrom’s macroglobulinemia and other plasma cell dyscrasias (note: this list is not exhaustive)" from the NHS letter, Annex A – JCVI list of eligible individuals I would be grateful if you would take urgent action to ensure that I, and all other eligible patients of
lymphoid
leukaemia
, myeloma, Waldenstrom’s macroglobulinemia and other plasma cell dyscrasias (note: this list is not exhaustive)" from the NHS letter, Annex A – JCVI list of eligible individuals I would be grateful if you would take urgent action to ensure that I, and all other eligible patients of
bennevisplace
in
CLL Support
3 years ago
Doubling of absolute Lymphoctes
It has been 11 months now since I was diagnosed with CLL. Thereafter I have been tracking my WBC and Lymphocytes . The trend curve over a year is in the attached picture. I was also taking green tea extract , curcumin , vitamin C and D since being diagnosed. Until now did not experience any B symptoms
It has been 11 months now since I was diagnosed with CLL. Thereafter I have been tracking my WBC and Lymphocytes . The trend curve over a year is in the attached picture. I was also taking green tea extract , curcumin , vitamin C and D since being diagnosed. Until now did not experience any B symptoms
WilliamTan
in
CLL Support
3 years ago
BTK inhibitors for the treatment of CLL - the current state of play of 'brutinibs'
-nicole-lamanna
UPDATE 25 Feb 2022:
Understanding mechanisms of resistance to Pirtobrutinib in
Chronic
Lymphocytic
Leukaemia
https://healthunlocked.com/cllsupport/posts/147628107/understanding-mechanisms-of-resistance-to-pirtobrutinib-in-
chronic
-lymphocytic-
leukaemia
UPDATE 22 March 2022: The
-nicole-lamanna
UPDATE 25 Feb 2022:
Understanding mechanisms of resistance to Pirtobrutinib in
Chronic
Lymphocytic
Leukaemia
https://healthunlocked.com/cllsupport/posts/147628107/understanding-mechanisms-of-resistance-to-pirtobrutinib-in-
chronic
-lymphocytic-
leukaemia
UPDATE 22 March 2022: The
CLLerinOz
Administrator
in
CLL Support
3 years ago
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Beta HCG doubling time was 1.7 days in week 4 but it increased to 2.5 days in 5th week
Beta HCG doubling time was 1.7 days in week 4 but it increased to 2.5 days in 5th week, today is day 19 post 5dt and observed spotting for 2mins. Hcg @ day 11-118 Day 14- 391 Day 19- 1604 Is it ok.. This one is my 6th IVF cycle. And 1st time I reached to this level. Is it ok or sth went wrong
Beta HCG doubling time was 1.7 days in week 4 but it increased to 2.5 days in 5th week, today is day 19 post 5dt and observed spotting for 2mins. Hcg @ day 11-118 Day 14- 391 Day 19- 1604 Is it ok.. This one is my 6th IVF cycle. And 1st time I reached to this level. Is it ok or sth went wrong
Priyasharma
in
Fertility Network UK
3 years ago
Not diagnosed, but suspected
Edit: letter from haematologist- BCR/ABL and JAK2 are negative m, awaiting rarer test results, but he thinks could be related to infection / endocrine issues. Relieved, but puzzled! Thank you everyone for replying, I guess I was premature in posting!! Hi. I’m just struggling today as I’m in that waiting
Edit: letter from haematologist- BCR/ABL and JAK2 are negative m, awaiting rarer test results, but he thinks could be related to infection / endocrine issues. Relieved, but puzzled! Thank you everyone for replying, I guess I was premature in posting!! Hi. I’m just struggling today as I’m in that waiting
KayS68
in
MPN Voice
3 years ago
Leukaemia Care Interview
Hello all, I have just finished recording an interview with Leukaemia Care for use in their Spot Leukaemia Early publicity in September. I think it went well and covered my story from pre diagnosis through to where I am now. I spoke about first finding a raised lymph node and the progression of ultra
Hello all, I have just finished recording an interview with Leukaemia Care for use in their Spot Leukaemia Early publicity in September. I think it went well and covered my story from pre diagnosis through to where I am now. I spoke about first finding a raised lymph node and the progression of ultra
kitchengardener2
in
CLL Support
3 years ago
The Leukemia & Lymphoma Society’s (LLS) Co-Pay Assistance Program assists with out-of-pocket expenses up to $11,000
Co-Pay Assistance Program https://www.lls.org/support-resources/financial-support/co-pay-assistance-program - The Leukemia & Lymphoma Society’s (LLS) Patient Financial Assistance team is dedicated to removing barriers to care by providing financial support to blood cancer patients. Our Co-Pay Assistance
Co-Pay Assistance Program https://www.lls.org/support-resources/financial-support/co-pay-assistance-program - The Leukemia & Lymphoma Society’s (LLS) Patient Financial Assistance team is dedicated to removing barriers to care by providing financial support to blood cancer patients. Our Co-Pay Assistance
lankisterguy
Volunteer
in
CLL Support
3 years ago
Oh dear
Well last night I decided to go to the beach again on my quad sit on beach for an hour . Unfortunately things didn't turn out that way ! Going down the beach road and wasn't concentrating mind not on what I was doing anything I had a seizure and lost control of the quad it went one way upside down my
Well last night I decided to go to the beach again on my quad sit on beach for an hour . Unfortunately things didn't turn out that way ! Going down the beach road and wasn't concentrating mind not on what I was doing anything I had a seizure and lost control of the quad it went one way upside down my
Hidden
in
Lung Conditions Community Forum
3 years ago
Hairy cell leukaemia - 3 months after chemo
Hi, Telephone consultation with my haematologist this morning, rather stunning blood test results - haemoglobin up from 110 to 135 so now normal... white cell count up from 1.7 to 4.1 so now normal, neutrophils up from 1.2 to 2.4 so now normal, although platelets down from 138 to 106 so still not in
Hi, Telephone consultation with my haematologist this morning, rather stunning blood test results - haemoglobin up from 110 to 135 so now normal... white cell count up from 1.7 to 4.1 so now normal, neutrophils up from 1.2 to 2.4 so now normal, although platelets down from 138 to 106 so still not in
frankmok
in
Leukaemia Support
3 years ago
Understanding High Iron
Hi everyone. For those diagnosed with Leukemia, can you tell me what your Iron and Ferritin levels are? These are typically elevated in Leukemia patients. I have a follow-up and consultation with my doctor coming in a few weeks but am gathering a bit of information (aside from google searches) on my
Hi everyone. For those diagnosed with Leukemia, can you tell me what your Iron and Ferritin levels are? These are typically elevated in Leukemia patients. I have a follow-up and consultation with my doctor coming in a few weeks but am gathering a bit of information (aside from google searches) on my
UhOhCKD
in
Leukaemia Support
3 years ago
Nutrition and Cll
I was diagnosed with Cll 3 months ago but my GP doctor suspected it a year ago. I am on W&W. I am wondering if I need to be on any kind of special diet and what supplements to take or not to take? The hematologist asked for a list of prescriptions and supplements I take but did not comment on them.
I was diagnosed with Cll 3 months ago but my GP doctor suspected it a year ago. I am on W&W. I am wondering if I need to be on any kind of special diet and what supplements to take or not to take? The hematologist asked for a list of prescriptions and supplements I take but did not comment on them.
sugar03
in
CLL Support
3 years ago
MBL is now CLL
Hi all, My MBL has progressed to CLL stage 1 after 8 years which I am struggling to come to terms with. I am now 51. Small glands in neck and groin and possibly a slightly enlarged spleen my lymphocytes were around 12-14 For couple of years but shot up to 24 recently. I am getting scams in 3 months.
Hi all, My MBL has progressed to CLL stage 1 after 8 years which I am struggling to come to terms with. I am now 51. Small glands in neck and groin and possibly a slightly enlarged spleen my lymphocytes were around 12-14 For couple of years but shot up to 24 recently. I am getting scams in 3 months.
Billy_Oz
in
CLL Support
3 years ago
Screening and monitoring of the BTK C481S mutation in a real-world cohort of patients with relapsed/refractory chronic lymphocytic leukaemia
On line abstract report 21 May 2021 The Bruton's tyrosine kinase (BTK) inhibitor ibrutinib has revolutionised the therapeutic landscape of
chronic
lymphocytic
leukaemia
(CLL).
On line abstract report 21 May 2021 The Bruton's tyrosine kinase (BTK) inhibitor ibrutinib has revolutionised the therapeutic landscape of
chronic
lymphocytic
leukaemia
(CLL).
Jm954
Administrator
in
CLL Support
3 years ago
8 months
So after 8 months on Ibrutinib my spleen is close to normal size, my blood count is normal, but 1/4 to 1/3 of my lymphocytes are still CLL. Side effects are gone, although I do get the odd day with stiff joints. Great progress, and my life is almost normal again. I didn’t respond to the Covid vaccines
So after 8 months on Ibrutinib my spleen is close to normal size, my blood count is normal, but 1/4 to 1/3 of my lymphocytes are still CLL. Side effects are gone, although I do get the odd day with stiff joints. Great progress, and my life is almost normal again. I didn’t respond to the Covid vaccines
809123
in
CLL Support
3 years ago
Relapsing on Ibrutinib
Hello everyone, as I mention here a few weeks ago, my treatment with Ibrutinib is going to end soon due to (Dr. thinks) a mutation. I am going to see the Oncologist in 2 weeks and I have to make a decision which treatment I want to be put on. There are two options open for me. One is Venetoclax and
Hello everyone, as I mention here a few weeks ago, my treatment with Ibrutinib is going to end soon due to (Dr. thinks) a mutation. I am going to see the Oncologist in 2 weeks and I have to make a decision which treatment I want to be put on. There are two options open for me. One is Venetoclax and
Doremefasol
in
CLL Support
3 years ago
Tested early but deep down I know it’s over !
Gutted!! I know this comes ups all the time but I tested early at 6dp5dt and got a negative. I know it’s early and my advice to others is to not to loss hope just yet but it’s so difficult isn’t it. I kind want some reassurance that I’m not out but at the same time deep down I know it’s unlikely now.
Gutted!! I know this comes ups all the time but I tested early at 6dp5dt and got a negative. I know it’s early and my advice to others is to not to loss hope just yet but it’s so difficult isn’t it. I kind want some reassurance that I’m not out but at the same time deep down I know it’s unlikely now.
Coles2020
in
Fertility Network UK
3 years ago
From the CLL14 Study: Venetoclax Plus Obinutuzumab Prolongs Progression Free Survival, Not Overall Survival , in CLL
These results, from the CLL14 study (ClinicalTrials.gov Identifier: NCT02242942), were presented at the European Hematology Association (EHA) 2021 Virtual Congress. Extended follow-up suggests that venetoclax plus obinutuzumab prolongs progression-free survival (PFS), but not overall survival (OS), when
These results, from the CLL14 study (ClinicalTrials.gov Identifier: NCT02242942), were presented at the European Hematology Association (EHA) 2021 Virtual Congress. Extended follow-up suggests that venetoclax plus obinutuzumab prolongs progression-free survival (PFS), but not overall survival (OS), when
Jm954
Administrator
in
CLL Support
3 years ago
STELLAR Trial in the UK for Richter's
Just a reminder that there is a UK trial at 17 centres around the UK for patients who have a Richter's transformation of their CLL. The usual treatment for Richter’s syndrome is R-CHOP. This is a combination of chemotherapy drugs and a targeted drug called rituximab. This treatment can help and cure
Just a reminder that there is a UK trial at 17 centres around the UK for patients who have a Richter's transformation of their CLL. The usual treatment for Richter’s syndrome is R-CHOP. This is a combination of chemotherapy drugs and a targeted drug called rituximab. This treatment can help and cure
Jm954
Administrator
in
CLL Support
3 years ago
Low hcg help please
Hi everyone; My story is i had my period on the 13th of september, then on the 8th of october i thought i was having another period and had had a negative blood test 2 days before. Then on the 16th i started spotting, took a pregnancy test and it was faint. Went to the doctors, they immediately did
Hi everyone; My story is i had my period on the 13th of september, then on the 8th of october i thought i was having another period and had had a negative blood test 2 days before. Then on the 16th i started spotting, took a pregnancy test and it was faint. Went to the doctors, they immediately did
Rebecca7327
in
Baby and Us
3 years ago
Low hcg levels, unsure
Hi everyone; My story is i had my period on the 13th of september, then on the 8th of october i thought i was having another period and had had a negative blood test 2 days before. Then on the 16th i started spotting, took a pregnancy test and it was faint. Went to the doctors, they immediately did a
Hi everyone; My story is i had my period on the 13th of september, then on the 8th of october i thought i was having another period and had had a negative blood test 2 days before. Then on the 16th i started spotting, took a pregnancy test and it was faint. Went to the doctors, they immediately did a
Rebecca7327
in
Fertility, Miscarriage & IVF Support
3 years ago
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