So after 8 months on Ibrutinib my spleen is close to normal size, my blood count is normal, but 1/4 to 1/3 of my lymphocytes are still CLL. Side effects are gone, although I do get the odd day with stiff joints. Great progress, and my life is almost normal again. I didn’t respond to the Covid vaccines, no antibodies. That’s a worry, but I’m not going to let it stop me living a normal life.
For those just diagnosed, we all know personally how devastating it is. However, there is so many positives now with the new treatments. Most of us can expect to live long happy lives and die with CLL, and It not from it.
My advise, stay healthy, stay fit, and stay positive. Do not let CLL define who you are.