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UK Webinar this Friday - 3.30pm GMT 17th December - Making the best of your CLL medical appointments
Hi friends a reminder - You may find this Leukaemia Care webinar of interest. The webinar will focus on how CLL patients can get the most out of their medical appointments, regardless of purpose, format and at whatever stage of your pathway. You can join us and the discussion by registering here:
Hi friends a reminder - You may find this Leukaemia Care webinar of interest. The webinar will focus on how CLL patients can get the most out of their medical appointments, regardless of purpose, format and at whatever stage of your pathway. You can join us and the discussion by registering here:
HAIRBEAR_UK
Founder Admin
in
CLL Support
2 years ago
CLL Society ASH 2021 Highlights from Day 2 of ASH 2021! Dr. Brian Koffman gives up updates
ASH 2021 Highlights from Day 2 of ASH 2021! Dr. Brian Koffman gives up updates on the reversible non-covalently binding BTKi (Bruton’s tyrosine kinase inhibitor) pirtobrutinib (formerly LOXO-305), another reversable BTKi known as MK-1026 (formerly ARQ-531), 3-year follow-up data from the Ascend Trial
ASH 2021 Highlights from Day 2 of ASH 2021! Dr. Brian Koffman gives up updates on the reversible non-covalently binding BTKi (Bruton’s tyrosine kinase inhibitor) pirtobrutinib (formerly LOXO-305), another reversable BTKi known as MK-1026 (formerly ARQ-531), 3-year follow-up data from the Ascend Trial
bkoffman
CLL CURE Hero
in
CLL Support
2 years ago
7th time unlucky ❤️
Hey my sweet lovely people hope you are all doing well ❤️ So I had my scan and doctor confirmed what I've already knew in my heart. I wish I didn't know my body so well! Doc was so shocked and disappointed I felt like he was going to cry, the nurse too bless their hearts ❤️ Looking at the bright side
Hey my sweet lovely people hope you are all doing well ❤️ So I had my scan and doctor confirmed what I've already knew in my heart. I wish I didn't know my body so well! Doc was so shocked and disappointed I felt like he was going to cry, the nurse too bless their hearts ❤️ Looking at the bright side
Klndmr
in
Fertility Network UK
2 years ago
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Spotting
Hi ladies! You’re all so wonderful and I’m hoping I can pick your brains please! I have been spotting (light brown - sometimes a bit darker) since Monday afternoon. It’s only occasionally and I know spotting is ‘quite normal’, but it’s scaring me quite a bit. My second beta suggests my hcg has almost
Hi ladies! You’re all so wonderful and I’m hoping I can pick your brains please! I have been spotting (light brown - sometimes a bit darker) since Monday afternoon. It’s only occasionally and I know spotting is ‘quite normal’, but it’s scaring me quite a bit. My second beta suggests my hcg has almost
Hopingforbaby_
in
Fertility Network UK
2 years ago
A little update 😃🌻🙏
Heyy my lovely ladies hope you are all well! I just thought I'll share a little update with you all. So HCG on Monday was 684, Wednesday over 1300 which doctor was happy with. As I'm flying back to UK tomorrow he wanted to see me today and did an early scan just for his peace of mind and mine if course
Heyy my lovely ladies hope you are all well! I just thought I'll share a little update with you all. So HCG on Monday was 684, Wednesday over 1300 which doctor was happy with. As I'm flying back to UK tomorrow he wanted to see me today and did an early scan just for his peace of mind and mine if course
Klndmr
in
Fertility Network UK
2 years ago
FET
Does anyone have any advise please. I have never been given any injection or meds to prevent ovulation before I start FET. Is that normal? I don’t have pcos so don’t have regular cycles but my first failed FET I had a dominant follicle and just before starting progesterone was given a hcg trigger?
Does anyone have any advise please. I have never been given any injection or meds to prevent ovulation before I start FET. Is that normal? I don’t have pcos so don’t have regular cycles but my first failed FET I had a dominant follicle and just before starting progesterone was given a hcg trigger?
Bump12
in
Fertility Network UK
2 years ago
Period started 7dpt 5dt
Good day ladies, Just looking for some advice really. I had my first fresh transfer on 30th April. My official test date was supposed to be today. However I started bleeding heavily on day 7 post transfer and this was the exact date that my natural cycle was supposed to start. I couldn’t believe the
Good day ladies, Just looking for some advice really. I had my first fresh transfer on 30th April. My official test date was supposed to be today. However I started bleeding heavily on day 7 post transfer and this was the exact date that my natural cycle was supposed to start. I couldn’t believe the
Tracy45_6
in
Fertility Network UK
2 years ago
First scan at 5+5: measuring spot on and there is a hearbeat 💓 At what stage they measure the heartbeat frequency?
Hi ladies, yesterday I had a huge scare as my breast tenderness and fullness disappeared all of a sudden. Today then did hcg again and a scan. Not sure about the bloods but the scan went well. One question, when do they measure the heart rate and when is it possible to hear the heartbeat rather that
Hi ladies, yesterday I had a huge scare as my breast tenderness and fullness disappeared all of a sudden. Today then did hcg again and a scan. Not sure about the bloods but the scan went well. One question, when do they measure the heart rate and when is it possible to hear the heartbeat rather that
FrancyItaly
in
Fertility Network UK
2 years ago
Start of a bfp...? One step strips..
These are my hcg and lh tests, the top 5 are yesterday and the bottom is from this morning (fmu) I think the bottom two both have lines Is this a horrible evap:( or a start of a bfp? Thoughts are appreciated Clear blue early dect was negative so feeling doubtful I have high blood levels of prolactin
These are my hcg and lh tests, the top 5 are yesterday and the bottom is from this morning (fmu) I think the bottom two both have lines Is this a horrible evap:( or a start of a bfp? Thoughts are appreciated Clear blue early dect was negative so feeling doubtful I have high blood levels of prolactin
Charlottem
in
Fertility Network UK
2 years ago
11dp5dt negative hpt .. can I still hope?
Dear ladies, Tested this morning bfn on 11dp5dt embryo frozen transfer... had some symptoms ie bloating bladder pressure headache back pain but no sore boobs...from Thursday all them symptoms dissapeared. Only on and off period like pain ... Can I still hope my hcg comes positive or not really?? Im booked
Dear ladies, Tested this morning bfn on 11dp5dt embryo frozen transfer... had some symptoms ie bloating bladder pressure headache back pain but no sore boobs...from Thursday all them symptoms dissapeared. Only on and off period like pain ... Can I still hope my hcg comes positive or not really?? Im booked
Balsora
in
Fertility Network UK - Pregnancy Support
2 years ago
😢 it’s a no go
Hi all, Little update it’s a true squinter of a line this morning so I’ve lost all hope now Thank you so much for all of your kind words and support it means so so much to have you all alongside me for the one of the worst outcomes of this journey that we all put ourselves through I’ve contacted my
Hi all, Little update it’s a true squinter of a line this morning so I’ve lost all hope now Thank you so much for all of your kind words and support it means so so much to have you all alongside me for the one of the worst outcomes of this journey that we all put ourselves through I’ve contacted my
Emilye92x
in
Fertility Network UK
2 years ago
Probable chemical
Hi lovelies, Today is my OTD (11dp5dt) and as pictured I’m 99% sure this round has ended in a chemical and I’m absolutely devastated 😢 I called my clinic this morning and told them about the change in line strength, they’ve told me that a positive is a positive and not to retest and have booked my in
Hi lovelies, Today is my OTD (11dp5dt) and as pictured I’m 99% sure this round has ended in a chemical and I’m absolutely devastated 😢 I called my clinic this morning and told them about the change in line strength, they’ve told me that a positive is a positive and not to retest and have booked my in
Emilye92x
in
Fertility Network UK
2 years ago
Ports?
Good morning, I have Polycythemia Vera. I am having regular phlebotomy and do not have the best veins. I am wondering if anyone out there, who is having phlebotomy, had a port put in instead of having arm phlebotomy and how that is working out for you? I welcome all thoughts/comments about this. Thanks
Good morning, I have Polycythemia Vera. I am having regular phlebotomy and do not have the best veins. I am wondering if anyone out there, who is having phlebotomy, had a port put in instead of having arm phlebotomy and how that is working out for you? I welcome all thoughts/comments about this. Thanks
Bluetoday1
in
MPN Voice
2 years ago
Need a 2nd 3rd 4th and 5th pair of eyes please! *Potentially sensitive*
Hi lovely ladies hope you are all well 💕 I know I should have listened to you all when you said to wait for my OTD but I just haven’t been able too!! And now I see why because I’m super worried I’m having a chemical pregnancy 🤦♀️ It’s my OTD tomorrow morning and I’m sure the line today looks lighter
Hi lovely ladies hope you are all well 💕 I know I should have listened to you all when you said to wait for my OTD but I just haven’t been able too!! And now I see why because I’m super worried I’m having a chemical pregnancy 🤦♀️ It’s my OTD tomorrow morning and I’m sure the line today looks lighter
Emilye92x
in
Fertility Network UK
2 years ago
HCG and HPT? *maybe sensitive*
Good morning lovelies! I’m 6DP5DT (frozen). My impatient self started testing at 4DPT😆. I saw the faintest line ever and have watched it get darker every morning since. Yesterday the camera barely picked it up but today it’s quite a lot darker! I’m so excited 🤩 I know it’s early yet and anything could
Good morning lovelies! I’m 6DP5DT (frozen). My impatient self started testing at 4DPT😆. I saw the faintest line ever and have watched it get darker every morning since. Yesterday the camera barely picked it up but today it’s quite a lot darker! I’m so excited 🤩 I know it’s early yet and anything could
Hopingforbaby_
in
Fertility Network UK
2 years ago
PV and CML?
I was diagnosed with PV, Jak 2+ several years ago. I have been here on MPN Voice for most of that time. I appreciate how everyone shares their experiences and now I have a new one to share! My newest hematologist, MD Anderson Cancer Center where I live has been through several changes in Dr.s, is having
I was diagnosed with PV, Jak 2+ several years ago. I have been here on MPN Voice for most of that time. I appreciate how everyone shares their experiences and now I have a new one to share! My newest hematologist, MD Anderson Cancer Center where I live has been through several changes in Dr.s, is having
Jsb45
in
MPN Voice
2 years ago
Adult blood cancer-causing mutations occur in early childhood
The paper, published today (19 January 2022) in Nature, suggests that these mutations will cause blood cells to multiply at different rates in different people, and those in whom these mutations cause faster growth have cancer symptoms appearing earlier. If these mutations proliferate slowly, it is possible
The paper, published today (19 January 2022) in Nature, suggests that these mutations will cause blood cells to multiply at different rates in different people, and those in whom these mutations cause faster growth have cancer symptoms appearing earlier. If these mutations proliferate slowly, it is possible
Manouche
in
MPN Voice
2 years ago
Treating autoimmune hemolytic anemia (AIHA)
Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients. Any experience or knowledge about it would help. My Haptoglobin has gone from 39 in September to 14 this past week. As I understand it, when it
Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients. Any experience or knowledge about it would help. My Haptoglobin has gone from 39 in September to 14 this past week. As I understand it, when it
SantaZia
in
CLL Support
2 years ago
Two things. White blood count creeping up. And waiting for results from spike protein test.
I just went for my regular hematologist appointment. My white blood count hovered between 18 and 20. Today it was 23. My doctor isn't worried but is having me come back in 3 months instead of 4. She said not to worry but I see a slight upward trend. Any advice? Also I'm waiting for my results from
I just went for my regular hematologist appointment. My white blood count hovered between 18 and 20. Today it was 23. My doctor isn't worried but is having me come back in 3 months instead of 4. She said not to worry but I see a slight upward trend. Any advice? Also I'm waiting for my results from
elm1
in
CLL Support
2 years ago
Myelo fibrosis
Hi I am in the intermediate stage, level 2 of the disease and go onto ruxolitinib tomorrow. I have looked on several forums and never managed to connect with any fellow sufferers from this mpn variant. Can't get any real information on immunosuppression or even what to expect or look for in the future
Hi I am in the intermediate stage, level 2 of the disease and go onto ruxolitinib tomorrow. I have looked on several forums and never managed to connect with any fellow sufferers from this mpn variant. Can't get any real information on immunosuppression or even what to expect or look for in the future
Carpangler
in
MPN Voice
2 years ago
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