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me again with the shingles questions! A specific one this time…
how long did you stop your arthritis meds when you had shingles? The a and e doc told me I could restart the Rinvoq once the blisters had crusted over…I’m keen not to be off it for too long … Thanks in advance all Bon X
how long did you stop your arthritis meds when you had shingles? The a and e doc told me I could restart the Rinvoq once the blisters had crusted over…I’m keen not to be off it for too long … Thanks in advance all Bon X
Bon1
in
NRAS
1 year ago
6 weeks pregnant and hardly any symptoms …
I am currently 6 weeks and 5 days pregnant with my ivf miracle baby. I don’t feel like I have many symptoms . I have sore breasts in the morning and occasional cramping was worse over the last few weeks . I sometimes feel sickly but not nauseous or being sick. I don’t feel like I’m really tired but do
I am currently 6 weeks and 5 days pregnant with my ivf miracle baby. I don’t feel like I have many symptoms . I have sore breasts in the morning and occasional cramping was worse over the last few weeks . I sometimes feel sickly but not nauseous or being sick. I don’t feel like I’m really tired but do
sazzyt123
in
Pregnancy and Parenting Support
1 year ago
so tired…
Good morning. I was diagnosed in December 2022 with mild CLL. My problem is that I am so tired all the time I just don’t feel myself. But the doctors tell me that I’m fine and that it’s not from the CLL. I looked on the Internet and I saw that fatigue is common in all stages of CLL. Not sure if there
Good morning. I was diagnosed in December 2022 with mild CLL. My problem is that I am so tired all the time I just don’t feel myself. But the doctors tell me that I’m fine and that it’s not from the CLL. I looked on the Internet and I saw that fatigue is common in all stages of CLL. Not sure if there
LG1948
in
CLL Support
1 year ago
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7dp5dt - progesterone levels have gone down?! And BFN...
Hello everyone,So I've been testing early since my FET (I know, but I've had 4 BFPs on prior transfers from as early as 3dpt and by 5dpt it'salways been very obvious) and apart from some misguided excitement over indent lines and faulty tests, it's been pretty clear that I'm out. I also just got my HCG
Hello everyone,So I've been testing early since my FET (I know, but I've had 4 BFPs on prior transfers from as early as 3dpt and by 5dpt it'salways been very obvious) and apart from some misguided excitement over indent lines and faulty tests, it's been pretty clear that I'm out. I also just got my HCG
MrsOrangejuice
in
Fertility Network UK
1 year ago
hcg only rising by 20% each time
Hi all, I’m in beta hell right now 😭. 1st beta (7dp6dt) 73.95 2nd beta (10dp6dt) 94.45 3rd beta (13dp6dt) 144.6 anyone have anything similar? Should I just call it quits?
Hi all, I’m in beta hell right now 😭. 1st beta (7dp6dt) 73.95 2nd beta (10dp6dt) 94.45 3rd beta (13dp6dt) 144.6 anyone have anything similar? Should I just call it quits?
Gigigigo
in
Fertility Network UK
1 year ago
Relative risk for secondary bone marrow cancer within 5 years after initial CLL chemoimmunotherapy treatment (typically BR or FCR)
In countries where targeted therapies ('brutinibs, venetoclax, obinutuzumab/rituximab) are now available, the remaining reason that FCR (Fludarabine+Cyclophosphamide+Rituximab) is still sometimes recommended for the treatment of CLL is that it can be curative* about 55% of the time - but [u]
only[
In countries where targeted therapies ('brutinibs, venetoclax, obinutuzumab/rituximab) are now available, the remaining reason that FCR (Fludarabine+Cyclophosphamide+Rituximab) is still sometimes recommended for the treatment of CLL is that it can be curative* about 55% of the time - but [u]
only[
AussieNeil
Partner
in
CLL Support
1 year ago
Boron
Hi AllHas anyone heard of taking boron supplements instead of alendronic acid? (I have some osteopenia and am on prednisolone for PMR.) Many thanks
Hi AllHas anyone heard of taking boron supplements instead of alendronic acid? (I have some osteopenia and am on prednisolone for PMR.) Many thanks
CaraDee
in
PMRGCAuk
11 months ago
EBV vaccine on the horizon
A vaccine has induced antibodies and other immune cells against the Epstein-Barr virus (EBV) in mice. EBV can cause flu-like symptoms but is also increasingly being linked to multiple sclerosis read more: https://www.newscientist.com/article/2386557-vaccine-shows-promise-against-the-virus-linked-to-multiple-sclerosis
A vaccine has induced antibodies and other immune cells against the Epstein-Barr virus (EBV) in mice. EBV can cause flu-like symptoms but is also increasingly being linked to multiple sclerosis read more: https://www.newscientist.com/article/2386557-vaccine-shows-promise-against-the-virus-linked-to-multiple-sclerosis
MovingForward4423
in
CLL Support
1 year ago
FRERs out of stock UK - alternatives?
Hi everyone - having always used FRERs to test and found them reliable, I can't find them in stock online and when I went to Boots their shelves were very sparse of everything but own brand and CBD. The double packs seem have gone completely and the singles now have a very long wait and also quite expensive
Hi everyone - having always used FRERs to test and found them reliable, I can't find them in stock online and when I went to Boots their shelves were very sparse of everything but own brand and CBD. The double packs seem have gone completely and the singles now have a very long wait and also quite expensive
MrsOrangejuice
in
Fertility Network UK
1 year ago
Shingles vacine
I have been offered a Shingles vacine and am Hypothyroid taking 75 m of Levo daily. Does anyone know if there are side effects because of the auto-immune disorder?
I have been offered a Shingles vacine and am Hypothyroid taking 75 m of Levo daily. Does anyone know if there are side effects because of the auto-immune disorder?
Dizzy938
in
Thyroid UK
1 year ago
shingles vaccine
no you can't have the shingles as it is a live vaccine. You don't get offered the shingles vaccine until you are 70
no you can't have the shingles as it is a live vaccine. You don't get offered the shingles vaccine until you are 70
bunnycaramel
in
NRAS
1 year ago
Progesterone levels?
Hey everyone - I think I’m out (just waiting on results of confirmatory blood hcg test before stopping my meds). However while still on them I got my progesterone checked at a private lab in Antrim. It’s coming up at 20.6 nmol/l - anyone who’s has theirs checked during tww, what did your doctor say the
Hey everyone - I think I’m out (just waiting on results of confirmatory blood hcg test before stopping my meds). However while still on them I got my progesterone checked at a private lab in Antrim. It’s coming up at 20.6 nmol/l - anyone who’s has theirs checked during tww, what did your doctor say the
ForABabyPanda
in
Fertility Network UK
1 year ago
Anoro
A few weeks ago I had a text to arrange my annual COPD review. This is normally with the practice nurse who can prescribe medications too. I was surprised to be given a Doctor appointment. I am mild COPD and was taking Salmeterol and Carbocisteine. It seemed quite effective. The doctor advised that I
A few weeks ago I had a text to arrange my annual COPD review. This is normally with the practice nurse who can prescribe medications too. I was surprised to be given a Doctor appointment. I am mild COPD and was taking Salmeterol and Carbocisteine. It seemed quite effective. The doctor advised that I
kc110
in
Lung Conditions Community Forum
9 months ago
Dietary Interventions and CLL - a case report
For those of you who are interested in dietary changes and CLL, I found an interesting clinical case report called "Stable improvement in classical B‐cell chronic lymphocytic leukemia with dietary interventions: A personal experience" by Dr. Pooij and his treating hematologist Dr. Raemaekers. The case
For those of you who are interested in dietary changes and CLL, I found an interesting clinical case report called "Stable improvement in classical B‐cell chronic lymphocytic leukemia with dietary interventions: A personal experience" by Dr. Pooij and his treating hematologist Dr. Raemaekers. The case
Minou1
in
CLL Support
1 year ago
Shingles Vaccine
I have RA and am currently taking hydroxychloroquin, methotrexate and amgevita. I’m trying to work out whether at age 61 with a compromised immune system, I will qualify for the new shingrix (shingles non-live) vaccine on the NHS? Does anyone know?
I have RA and am currently taking hydroxychloroquin, methotrexate and amgevita. I’m trying to work out whether at age 61 with a compromised immune system, I will qualify for the new shingrix (shingles non-live) vaccine on the NHS? Does anyone know?
CagneysMum
in
NRAS
1 year ago
Surrogate is 9 weeks pregnant but measured 2 days behind at 7 week scan... should I be worried?
Hi everyone, so after 15 failed embryo transfers in my own body, we moved onto surrogacy. By some miracle our surrogate fell pregnant on our 16th transfer but her FIRST. Hcg numbers were great and she has been suffering every day with morning sickness, which obviously I wouldn't wish on anyone but it
Hi everyone, so after 15 failed embryo transfers in my own body, we moved onto surrogacy. By some miracle our surrogate fell pregnant on our 16th transfer but her FIRST. Hcg numbers were great and she has been suffering every day with morning sickness, which obviously I wouldn't wish on anyone but it
Kimbob82
in
Fertility Network UK - Pregnancy Support
1 year ago
Dialysis / RLS
Wow, this sub is a lot more active than the Kidney Disease sub, one would think it would be the other way around. I guess RLS is a lot more prevalent than people think? I never experienced or even heard of RLS before starting dialysis but boy did it hit me hard. It's already hard to sleep while doing
Wow, this sub is a lot more active than the Kidney Disease sub, one would think it would be the other way around. I guess RLS is a lot more prevalent than people think? I never experienced or even heard of RLS before starting dialysis but boy did it hit me hard. It's already hard to sleep while doing
bumblebee_tuna
in
Restless Legs Syndrome
1 year ago
Shingles Vaccine
Shingles Vaccine From September 2023 you will be eligible for vaccine from age 65. Advertised on TV yesterday Rose
Shingles Vaccine From September 2023 you will be eligible for vaccine from age 65. Advertised on TV yesterday Rose
Rose54
in
PMRGCAuk
1 year ago
Stage 5 Chronic Kidney Disease (CKD)
Dialysis and kidney transplant are the only two treatments for people with kidney failure. It is also important for patients to continue managing any other health conditions they may have, including high blood pressure and/or diabetes. Learn more at: https://www.kidney.org/atoz/content/stage-5-chronic-kidney-disease-ckd
Dialysis and kidney transplant are the only two treatments for people with kidney failure. It is also important for patients to continue managing any other health conditions they may have, including high blood pressure and/or diabetes. Learn more at: https://www.kidney.org/atoz/content/stage-5-chronic-kidney-disease-ckd
JackieJ_NKF
Partner
in
Kidney Dialysis
1 year ago
Chicken pox
Hello all, A question more for people post transplant. We have all been told to keep away from kids with chicken pox, well I was working in someone’s house today when they happened to mention their daughter had chicken pox!!! She was not around, and I was able to make my excuses and leave without coming
Hello all, A question more for people post transplant. We have all been told to keep away from kids with chicken pox, well I was working in someone’s house today when they happened to mention their daughter had chicken pox!!! She was not around, and I was able to make my excuses and leave without coming
Huggy7614
in
British Liver Trust
1 year ago
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