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Chorionic villus sampling (CVS)
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B CELL lymphoma
Hello friends, Question- had a fish test done and the test revealed negative for B Cell lymphoma has anyone had this reading before and still have CLL? lol I’m totally confused.. nothing new there! I did call the Doc to see what he thinks haven’t heard anything yet. Thought I would ask to see if you
Hello friends, Question- had a fish test done and the test revealed negative for B Cell lymphoma has anyone had this reading before and still have CLL? lol I’m totally confused.. nothing new there! I did call the Doc to see what he thinks haven’t heard anything yet. Thought I would ask to see if you
Tchapman
in
CLL Support
10 months ago
Viability scan on Monday and terrified, symptoms come and go
Hi ladies, I guess just looking for some reassurance really. I got a positive a few weeks ago after 3 years of IVF, this was my third transfer with donor eggs. My HCG was in the late 500’s. They said they wouldn’t test it again as it was good, the day after test day. Since then I have had very sore
Hi ladies, I guess just looking for some reassurance really. I got a positive a few weeks ago after 3 years of IVF, this was my third transfer with donor eggs. My HCG was in the late 500’s. They said they wouldn’t test it again as it was good, the day after test day. Since then I have had very sore
Yellowlove
in
Fertility Network UK
10 months ago
Petechia
I have been treated with Ibrutinib for 16 months and have responded to treatment really well. My white blood count was 148.7 when I started treatment now I am 14.7. I have Petechia on arms and legs. My platelets are 278. Just wondering what could be causing this. This is my first time to post and
I have been treated with Ibrutinib for 16 months and have responded to treatment really well. My white blood count was 148.7 when I started treatment now I am 14.7. I have Petechia on arms and legs. My platelets are 278. Just wondering what could be causing this. This is my first time to post and
Glasstop
in
CLL Support
10 months ago
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shingles vaccine
Hi folks This is a brilliant site has keep me steady since my husband’s diagnosis of SLL now CLL. My Husband had been W&W for 6 years, now on acalabrutinib for two years with no side affect and doing well. He has been offered the shingles vaccine but he hasn’t had chickenpox’s, is it safe to get the
Hi folks This is a brilliant site has keep me steady since my husband’s diagnosis of SLL now CLL. My Husband had been W&W for 6 years, now on acalabrutinib for two years with no side affect and doing well. He has been offered the shingles vaccine but he hasn’t had chickenpox’s, is it safe to get the
Charles4
in
CLL Support
9 months ago
My hcg bloods are extremely low (6.34)
Can anyone provide reassurance things will be OK if any ladies have had or know of anyone who has had very low beta hcg results? It was 6.34 today @ 3 weeks. But that's very bad. 😔they will retest Friday, feeling sad, o\s.
Can anyone provide reassurance things will be OK if any ladies have had or know of anyone who has had very low beta hcg results? It was 6.34 today @ 3 weeks. But that's very bad. 😔they will retest Friday, feeling sad, o\s.
Flutterbby
in
Fertility Network UK
10 months ago
Pneumonia vaccination
Hi all. I have recently returned to Spain for the foreseeable future and managed to get my covid vaccination shortly after my arrival a few weeks ago. I had my flu vaccination in the UK just before we came out. I have to say that I have responded well to both vaccinations with no adverse side effects
Hi all. I have recently returned to Spain for the foreseeable future and managed to get my covid vaccination shortly after my arrival a few weeks ago. I had my flu vaccination in the UK just before we came out. I have to say that I have responded well to both vaccinations with no adverse side effects
Elispeth
in
PMRGCAuk
9 months ago
Scared I messed up
Tested home 8dp5dt Tues BFN Tested home 10dp5dt Thurs vv faint line Blood test 11dp5dt Fri Tested home 12dp5dt Sat BFN - stopped meds Started bleeding last night Doctors called today to say HCG was 49 on Fri test 😰😰 Clinic said probably a chemical but I can’t stop thinking it’s my fault for stopping
Tested home 8dp5dt Tues BFN Tested home 10dp5dt Thurs vv faint line Blood test 11dp5dt Fri Tested home 12dp5dt Sat BFN - stopped meds Started bleeding last night Doctors called today to say HCG was 49 on Fri test 😰😰 Clinic said probably a chemical but I can’t stop thinking it’s my fault for stopping
Doodlebug23
in
Fertility Network UK
10 months ago
CLL/SLL and ischemic bowel death
My brother had untreated SLL. He died March 2022, after a week of omicron Covid infection that seemed to pass mid January of that year. We have heard rumors that many with CLL/SLL die of blood clot/ischemia, but I have been unable to confirm. Are there data to confirm this? I myself have CLL, which
My brother had untreated SLL. He died March 2022, after a week of omicron Covid infection that seemed to pass mid January of that year. We have heard rumors that many with CLL/SLL die of blood clot/ischemia, but I have been unable to confirm. Are there data to confirm this? I myself have CLL, which
prichman
in
CLL Support
10 months ago
Methotrexate and sinus/nasal issues
I've been on MTX for a year now and over the months I keep saying I feel like I'm coming down with a cold but it doesn't happen. I get a blockage in the back of my nasal passage and that causes post nasal drip and a sore throat. I was taking sulphasalazine but have stopped that as I felt so tired on
I've been on MTX for a year now and over the months I keep saying I feel like I'm coming down with a cold but it doesn't happen. I get a blockage in the back of my nasal passage and that causes post nasal drip and a sore throat. I was taking sulphasalazine but have stopped that as I felt so tired on
Gottarelax
in
NRAS
9 months ago
Transfer number 5…. Adding HCG/double transfer
After 4th failed transfer with optimum lining and progesterone levels. The only thing different my clinic want to do is add HCG a couple of days before the next transfer. To mimic the signals your body would naturally send when an egg is released (using DE). Anyone heard of/experienced this? They are
After 4th failed transfer with optimum lining and progesterone levels. The only thing different my clinic want to do is add HCG a couple of days before the next transfer. To mimic the signals your body would naturally send when an egg is released (using DE). Anyone heard of/experienced this? They are
Doodlebug23
in
Fertility Network UK
10 months ago
Failed IVF 😭
I checked again for hcg level and it showed negative. Cycle failed. I don't know what and where went wrong. Mine was a fresh embryo transfer of 5AB quality. Thickness was good. Did showed some symptoms of implantation in the beging. But after 10days resulted in negative. Its really painful seeing the
I checked again for hcg level and it showed negative. Cycle failed. I don't know what and where went wrong. Mine was a fresh embryo transfer of 5AB quality. Thickness was good. Did showed some symptoms of implantation in the beging. But after 10days resulted in negative. Its really painful seeing the
Kaarma
in
Fertility Network UK
10 months ago
Small pouch or bag
Can anyone recommend a small pouch that would clip on to a belt or one with a strap already on that I can carry a couple of inhalers in and a pulse /0ximeter when I go out, thanks.
Can anyone recommend a small pouch that would clip on to a belt or one with a strap already on that I can carry a couple of inhalers in and a pulse /0ximeter when I go out, thanks.
6538
in
Lung Conditions Community Forum
2 months ago
one year olds vaccines
Our grandson aged one is having jabs. I looked up and these are scheduled for one year olds. MMR is a weakened vaccine. Does anyone know if it’s safe to be around him as a immunosuppressed or where to find out in green book please ? Hib/MenC Pneumococcal conjugate vaccine (PCV13) Meningococcal
Our grandson aged one is having jabs. I looked up and these are scheduled for one year olds. MMR is a weakened vaccine. Does anyone know if it’s safe to be around him as a immunosuppressed or where to find out in green book please ? Hib/MenC Pneumococcal conjugate vaccine (PCV13) Meningococcal
Mozart150
in
NRAS
9 months ago
Am I at risk of shingles
Hello - i'm about to go and spend a weekend with my in laws and they have just announced they have shingles. Am I at risk of this having ET?
Hello - i'm about to go and spend a weekend with my in laws and they have just announced they have shingles. Am I at risk of this having ET?
Fjdjdjdjd
in
MPN Voice
9 months ago
Oxygen levels after pneumonia
I was discharged from hospital one week ago having suffered a bout of pneumonia and a RSV I was treated in isolation. I know it will take weeks to recover, but I’m concerned about my oxygen level which hovers around 87-89. Any advice?
I was discharged from hospital one week ago having suffered a bout of pneumonia and a RSV I was treated in isolation. I know it will take weeks to recover, but I’m concerned about my oxygen level which hovers around 87-89. Any advice?
Nanny49
in
Lung Conditions Community Forum
9 months ago
More steroids my third course 😭
My asthma is the worst it's ever been anything sets it off, I had to go to the doctors again today and good job I did needed yet another inhaler I'm on fostair, tiotropium and salbutamol now so yeah alot and the prednisolone tablets so hopefully this should help clear up what ever is aggrevating my breathing
My asthma is the worst it's ever been anything sets it off, I had to go to the doctors again today and good job I did needed yet another inhaler I'm on fostair, tiotropium and salbutamol now so yeah alot and the prednisolone tablets so hopefully this should help clear up what ever is aggrevating my breathing
Yumz199725
in
Lung Conditions Community Forum
2 months ago
Treatment for life?
Hello. First time posting here. Diagnosed with CLL in July by flow test and Fish test. Although still technically in lymphocytosis. My chart says diagnosis: CLL. During the discussion in July my Dr told me of things they will be keeping an eye on. Then he said he won't discuss particular treatment plans
Hello. First time posting here. Diagnosed with CLL in July by flow test and Fish test. Although still technically in lymphocytosis. My chart says diagnosis: CLL. During the discussion in July my Dr told me of things they will be keeping an eye on. Then he said he won't discuss particular treatment plans
Quiltingone
in
CLL Support
10 months ago
MtX or am I just unlucky?
I have been on 20 mg MtX for now 3 weeks, titrating up over 3 months. I just recvered from an UTI that has needed 2 rounds of antibiotics (hope to be clear now) and 3 weeks of a milder cold virus! Then for 2-3 days I was well and then again down with a severe cold, lasting now 2 weeks and it is progressing
I have been on 20 mg MtX for now 3 weeks, titrating up over 3 months. I just recvered from an UTI that has needed 2 rounds of antibiotics (hope to be clear now) and 3 weeks of a milder cold virus! Then for 2-3 days I was well and then again down with a severe cold, lasting now 2 weeks and it is progressing
krillemy
in
PMRGCAuk
9 months ago
Prolia
I have just received an email from my GP who has arranged for a F2F appointment to see me beginning January to discuss me starting to take Prolia. My last Dexascan in 2021 did show that I have osteoporosis, and I did take Alendronic Acid for the first two years of having Polymyalgia. Since then I have
I have just received an email from my GP who has arranged for a F2F appointment to see me beginning January to discuss me starting to take Prolia. My last Dexascan in 2021 did show that I have osteoporosis, and I did take Alendronic Acid for the first two years of having Polymyalgia. Since then I have
Purplegloss
in
PMRGCAuk
8 months ago
Chickenpox
Hi, Just wondered what your recommended hints and tips are for relief from chickenpox for my DD who is 2! How long did your children have chicken pox for and how unwell did they become? Unsettled nights etc. Thanks in advance x
Hi, Just wondered what your recommended hints and tips are for relief from chickenpox for my DD who is 2! How long did your children have chicken pox for and how unwell did they become? Unsettled nights etc. Thanks in advance x
NicoJono
in
Pregnancy and Parenting Support
9 months ago
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