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Tiredness
Hi, Can anyone help please. I am under Haemotology at the hospital for active monitoring as a bone marrow biopsy showed I have Weinstrom M( a type of Lymphoma) I have a three monthly B12 inj and am on 75 mcg of Levothyroxine for my thyroid. My bloods last week at the Haemotology dept showed all my bloodwork
Hi, Can anyone help please. I am under Haemotology at the hospital for active monitoring as a bone marrow biopsy showed I have Weinstrom M( a type of Lymphoma) I have a three monthly B12 inj and am on 75 mcg of Levothyroxine for my thyroid. My bloods last week at the Haemotology dept showed all my bloodwork
PamBow
in
Thyroid UK
5 months ago
Allele Burden -- Polycythemia Vera
Can someone please explain what is the Allele Burden ? Should I be having a regular measurement, by means of a blood test ,to monitor the progress of the disease? What would be the normal range? I was diagnosed with PV in May 2024 had two venesections then a platelet crash ( down to 7) after 10 days
Can someone please explain what is the Allele Burden ? Should I be having a regular measurement, by means of a blood test ,to monitor the progress of the disease? What would be the normal range? I was diagnosed with PV in May 2024 had two venesections then a platelet crash ( down to 7) after 10 days
Hilary777
in
MPN Voice
2 days ago
types of T3
Hi all I currently take Roma T3 capsules my prescription is due for renewal and I’m interested to know what other types of T3 are available and what people’s experience is with them. I’m not 100% sure the Roma capsules agree with me, it is also hard to split doses before blood tests. As always, very
Hi all I currently take Roma T3 capsules my prescription is due for renewal and I’m interested to know what other types of T3 are available and what people’s experience is with them. I’m not 100% sure the Roma capsules agree with me, it is also hard to split doses before blood tests. As always, very
Topes009
in
Thyroid UK
3 days ago
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Ovulation strips exp 02/23 and 10/23
So, I know I’m the lunatic that tested with a very out of date pregnancy test not so long ago… which tbf gave an accurate BFN 🙁 I am trying modified natural for my next FET and am waiting for my next period to start using ovulation tests on day 8 of my cycle. I’m nervous using my natural cycle, but
So, I know I’m the lunatic that tested with a very out of date pregnancy test not so long ago… which tbf gave an accurate BFN 🙁 I am trying modified natural for my next FET and am waiting for my next period to start using ovulation tests on day 8 of my cycle. I’m nervous using my natural cycle, but
Doodlebug23
in
Fertility Network UK
5 months ago
Bone health follow-up they want to start urgently Zoledronate (zoledronic acid)
my DEXA is -3.7 severe osteoporosis and I’m 48 - started low dose Oestrogel . Saw rheumatologist yesterday who was very rude actually and told me to stop googling He said I will do this yearly infusion. Reading horrific side effect. I’m very weak and fragile and will start some training . I am
my DEXA is -3.7 severe osteoporosis and I’m 48 - started low dose Oestrogel . Saw rheumatologist yesterday who was very rude actually and told me to stop googling He said I will do this yearly infusion. Reading horrific side effect. I’m very weak and fragile and will start some training . I am
Chouchou1234
in
Thyroid UK
5 months ago
Timings of NDT and iron supplements
Hi all, I'm struggling to maintain ferritin levels whilst also trying to adhere to the timings of iron supplements around my NDT and other vitamins. My ferritin is rarely higher than 20s (in the last ten years the highest it has been was 52 just once). I've been on NDT for a year and am gradually
Hi all, I'm struggling to maintain ferritin levels whilst also trying to adhere to the timings of iron supplements around my NDT and other vitamins. My ferritin is rarely higher than 20s (in the last ten years the highest it has been was 52 just once). I've been on NDT for a year and am gradually
Maldeerum
in
Thyroid UK
5 months ago
Diet and B vitamins
Hello, I take a daily supplement dose of plant based vitamin B12 Complex and try to eat a range of foods that are healthy. I drink alcohol - maybe 5 units four/five times a week and I read that maybe I should take additional B vitamins to cover myself against there being insufficient to counteract this
Hello, I take a daily supplement dose of plant based vitamin B12 Complex and try to eat a range of foods that are healthy. I drink alcohol - maybe 5 units four/five times a week and I read that maybe I should take additional B vitamins to cover myself against there being insufficient to counteract this
Fishing_fred
in
Healthy Eating
6 days ago
New blood test results after 2 months on Levo
Hi, I posted a while back before I first saw a private GP and was put on 50mg of levothyroxine. Weeks 1-3 or there abouts I felt that things were going well. I felt rested after a nights sleep for the first time in years, increased mental acuity, diminished itching of the skin, decreased thirst,
Hi, I posted a while back before I first saw a private GP and was put on 50mg of levothyroxine. Weeks 1-3 or there abouts I felt that things were going well. I felt rested after a nights sleep for the first time in years, increased mental acuity, diminished itching of the skin, decreased thirst,
TheMudRunner
in
Thyroid UK
7 days ago
Iron problem?
Hi,I have a low iron saturation - latest blood tests show range = just out (low side). Apologies I haven't got details atm. Although I do supplement with iron it's obviously not enough? I'm not too sure regarding Folate and Ferritin? What exactly do I purchase? Love to you all
Hi,I have a low iron saturation - latest blood tests show range = just out (low side). Apologies I haven't got details atm. Although I do supplement with iron it's obviously not enough? I'm not too sure regarding Folate and Ferritin? What exactly do I purchase? Love to you all
Booblet
in
Thyroid UK
9 days ago
Overmedication question
Hi all, I have been feeling really weird over the past couple of weeks and I wonder if I'm overmedicated. I take 100mcg levo daily following hemithyroidectomy in Dec. I had been feeling much better since starting the tablets in March. But over the past few weeks I've had hot sweats, very easy to lose
Hi all, I have been feeling really weird over the past couple of weeks and I wonder if I'm overmedicated. I take 100mcg levo daily following hemithyroidectomy in Dec. I had been feeling much better since starting the tablets in March. But over the past few weeks I've had hot sweats, very easy to lose
Astrido
in
Thyroid UK
9 days ago
New member -Dexa query
Background I was diagnosed with PMR in June 2024. Fortunate in having very supportive GP who quickly started me on 15 mg Predisolone which brought about dramatic improvement. Dose has been reduced to 14 mg after 1 month. GP plan is to reduce by about 1mg a month, depending on monthly blood test results
Background I was diagnosed with PMR in June 2024. Fortunate in having very supportive GP who quickly started me on 15 mg Predisolone which brought about dramatic improvement. Dose has been reduced to 14 mg after 1 month. GP plan is to reduce by about 1mg a month, depending on monthly blood test results
Crosswordsolver
in
PMRGCAuk
9 days ago
Not good
Sorry for the long post. For the last few months I haven't been good with this pain in my ear/eye/teeth that the neurologist put down to trigeminal neuralgia and gave me epilepsy tablets that have made me very tired and haven't really stopped the pain. About a month ago I had a really bad pain in my
Sorry for the long post. For the last few months I haven't been good with this pain in my ear/eye/teeth that the neurologist put down to trigeminal neuralgia and gave me epilepsy tablets that have made me very tired and haven't really stopped the pain. About a month ago I had a really bad pain in my
Izb1
in
Lung Conditions Community Forum
9 days ago
Help to updose T3
Hi Lovely people, I haven't been on for a while after one issue after another. I am on Liothyronine 20mcg 3 times a day. I have found my T3 dropping although still in range as my endo says so not concerned. I only started putting weight on just before being diagnosed with hypothyroidism. That was
Hi Lovely people, I haven't been on for a while after one issue after another. I am on Liothyronine 20mcg 3 times a day. I have found my T3 dropping although still in range as my endo says so not concerned. I only started putting weight on just before being diagnosed with hypothyroidism. That was
debsmitch60
in
Thyroid UK
11 days ago
Hyperthyroidism blood results.
Morning all, I posted here several weeks ago as I had been taken off Levothyroxine after high t4 results. I have half a thyroid as had a benign growth. I paid for a blood test and after a couple of issues with the finger prick tests, I got a nurse friend to take my bloods. I got the results this morning
Morning all, I posted here several weeks ago as I had been taken off Levothyroxine after high t4 results. I have half a thyroid as had a benign growth. I paid for a blood test and after a couple of issues with the finger prick tests, I got a nurse friend to take my bloods. I got the results this morning
Battlecat
in
Thyroid UK
11 days ago
Hashimoto flare up
Hello all, I've been posting on this board for the last week or so fairly regularly to get some support/help from the all of you great people here...for this i am eternally grateful as i self medicate and really have no Dr to turn to. I'm at a point where i need to make a decision now and seeking some
Hello all, I've been posting on this board for the last week or so fairly regularly to get some support/help from the all of you great people here...for this i am eternally grateful as i self medicate and really have no Dr to turn to. I'm at a point where i need to make a decision now and seeking some
ci00aaj
in
Thyroid UK
11 days ago
A night in the life of RLS
Hi All Just wanted to post an update following all of the helpful comments: Contacted pain clinic about referral to neurology- that has been actioned but will take time. GP has issued blood tests to check ferritin - last reading was 117 in March. I have increased Pregabalin to 100mg with iron supplement
Hi All Just wanted to post an update following all of the helpful comments: Contacted pain clinic about referral to neurology- that has been actioned but will take time. GP has issued blood tests to check ferritin - last reading was 117 in March. I have increased Pregabalin to 100mg with iron supplement
careerSquirrel
in
Restless Legs Syndrome
12 days ago
Thyroid blood test and splitting T3
I have a thyroid blood test on Thursday AM and am taking T3. I know I split the dose the day before but am currently on 15mcg (so 3/4 of a tablet). Am I ok to take half (10mcg) and then a quarter (5mcg) 8-12 hours before? Splitting in half will be tricky. Many thanks in advance!
I have a thyroid blood test on Thursday AM and am taking T3. I know I split the dose the day before but am currently on 15mcg (so 3/4 of a tablet). Am I ok to take half (10mcg) and then a quarter (5mcg) 8-12 hours before? Splitting in half will be tricky. Many thanks in advance!
MiniMum97
in
Thyroid UK
12 days ago
bleeding coming of prostap
can anyone help…. so I stopped taking prostap in October (last injection end of October) and had no period yet but I did have some signs of ovulation! 2 weeks ago I got a positive pregnancy test but since then have done several tests and they have all been negative so I am assuming it’s a false positive
can anyone help…. so I stopped taking prostap in October (last injection end of October) and had no period yet but I did have some signs of ovulation! 2 weeks ago I got a positive pregnancy test but since then have done several tests and they have all been negative so I am assuming it’s a false positive
Elisamatthews11
in
Endometriosis UK
5 months ago
Help please with test results. Needing to adjust thyroid replacement due to huge weight loss...
Background.* Hashimotos, for which I take Bovine replacement "Metavive". I am allergic to Thyroxine and cannot tolerate Porcine. * Sjogren's. * 17 different food allergies. * Gall bladder issues. * HRT replacement. * Huge stress; mother very unwell post Covid / PMR & GCA, and other huge stress issues
Background.* Hashimotos, for which I take Bovine replacement "Metavive". I am allergic to Thyroxine and cannot tolerate Porcine. * Sjogren's. * 17 different food allergies. * Gall bladder issues. * HRT replacement. * Huge stress; mother very unwell post Covid / PMR & GCA, and other huge stress issues
Poppy_the_cat
in
Thyroid UK
6 days ago
please help .. DEXA -3.7 - 48 years old and only offered Intravenous Zoledronate
my DEXA is -3.7 severe osteoporosis and I’m 48 - stsrtrd low dose Oestrogel . Saw rheumatologist who was very rude actually and told me to stop googling. He said I will do this yearly infusion. Reading horrific side effect. I’m very weak and fragile and started jumping everyday. will start some
my DEXA is -3.7 severe osteoporosis and I’m 48 - stsrtrd low dose Oestrogel . Saw rheumatologist who was very rude actually and told me to stop googling. He said I will do this yearly infusion. Reading horrific side effect. I’m very weak and fragile and started jumping everyday. will start some
Chouchou1234
in
Bone Health and Osteoporosis UK
5 months ago
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