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I have been dealing with a skin condition for almost 3 years. I have seen other posts like mine. One person was even trying to get on a talk show. I too have been dismissed by health providers. I have had one person mention Reactive perforating collagenosis (RPC) Reactive perforating collagenosis (RPC
I have been dealing with a skin condition for almost 3 years. I have seen other posts like mine. One person was even trying to get on a talk show. I too have been dismissed by health providers. I have had one person mention Reactive perforating collagenosis (RPC) Reactive perforating collagenosis (RPC
Mystery20
in
MY SKIN
7 months ago
Mirapexin Oxycodone
Hi, I have just had an appointment with a neurologist at UCL neurological hospital in London Queens Sq. I need to come off Mirapexin for the second time and ha ve been managing the withdrawals myself with the help of TramadolI had set such store to this appointment but came away so disappointed. The
Hi, I have just had an appointment with a neurologist at UCL neurological hospital in London Queens Sq. I need to come off Mirapexin for the second time and ha ve been managing the withdrawals myself with the help of TramadolI had set such store to this appointment but came away so disappointed. The
keiralee
in
Restless Legs Syndrome
3 months ago
Covid vaccine
Hi haven’t been on for a while -all the Healthunlocked notifications going into junk - so not been prompted! Does anyone know when we can get next Covid booster -my lady was 6 months ago. I seem to recall something about a spring booster ? Thank you ! Happy Easter—have a lovely April x
Hi haven’t been on for a while -all the Healthunlocked notifications going into junk - so not been prompted! Does anyone know when we can get next Covid booster -my lady was 6 months ago. I seem to recall something about a spring booster ? Thank you ! Happy Easter—have a lovely April x
Mozart150
in
NRAS
5 months ago
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Is this gastritis???
Hello, I'm new to this group. I caught (1st time) covid 19 this past Christmas 2023. It took me 3 weeks to recover. On the tail end I notice I pretty much lost my appetite then my symptoms upper middle abdomen area (diaphragm) daily bloating, fullness, dull pain, nausea, no appetite, shortness of breath
Hello, I'm new to this group. I caught (1st time) covid 19 this past Christmas 2023. It took me 3 weeks to recover. On the tail end I notice I pretty much lost my appetite then my symptoms upper middle abdomen area (diaphragm) daily bloating, fullness, dull pain, nausea, no appetite, shortness of breath
Marc787
in
IBS Network
5 months ago
From Buprenorphine Patch to Tablet: A Memoir
Hi All, The regulars on this site, and I count myself as one, may be familiar with my RLS story, but for the walk-ins, I will give a brief backstory. About 3 months ago I successfully stopped using the Neupro patch to treat my RLS. 25 years or more of using a dopamine agonist came to a screaming halt
Hi All, The regulars on this site, and I count myself as one, may be familiar with my RLS story, but for the walk-ins, I will give a brief backstory. About 3 months ago I successfully stopped using the Neupro patch to treat my RLS. 25 years or more of using a dopamine agonist came to a screaming halt
RiversW
in
Restless Legs Syndrome
3 months ago
Emergency use authorization of a new pre-exposure prophylaxis (PrEP) for COVID-19, PEMGARDA™ (VYD222)
Hi, Great news for the immunocompromised community including us. Invivyd announced late last week the emergency use authorization of their new pre-exposure prophylaxis (PrEP) for COVID-19, PEMGARDA™ (VYD222). It’s a one-hour infusion and lasts 3 months and based on titers should be effective against
Hi, Great news for the immunocompromised community including us. Invivyd announced late last week the emergency use authorization of their new pre-exposure prophylaxis (PrEP) for COVID-19, PEMGARDA™ (VYD222). It’s a one-hour infusion and lasts 3 months and based on titers should be effective against
bkoffman
CLL CURE Hero
in
CLL Support
5 months ago
Covid and injections
I suffered from Covid over Christmas from the 16th to the 30th December. Up 'til now I have had all the injections on offer. I read Dorset Lady's post that we are going to be offered another injection in the spring. It has left me wondering whether I will need this or not in the circumstances. I
I suffered from Covid over Christmas from the 16th to the 30th December. Up 'til now I have had all the injections on offer. I read Dorset Lady's post that we are going to be offered another injection in the spring. It has left me wondering whether I will need this or not in the circumstances. I
prunus
in
PMRGCAuk
5 months ago
horizant awful
Today was my first day taking horizant and probably my last. I cant lay down for more than a secon d. I am in such agony. tomorrow i will go back on mirapex if my legs dont get better. since it is a long weekend o dr. is not available I am walking and crying all night long. I think I need a new
Today was my first day taking horizant and probably my last. I cant lay down for more than a secon d. I am in such agony. tomorrow i will go back on mirapex if my legs dont get better. since it is a long weekend o dr. is not available I am walking and crying all night long. I think I need a new
lorri214
in
Restless Legs Syndrome
3 months ago
bulge at the front of vagina / not prolapse
Hey so during ovulation I have crazy pain, and a sensation of buzzing / vibrating that is so strong. In march the vibrations were worse than ever then one morning I woke up and there was a feeling of pressure in my vagina. I looked and it looked like there was something partially blocking the hole.
Hey so during ovulation I have crazy pain, and a sensation of buzzing / vibrating that is so strong. In march the vibrations were worse than ever then one morning I woke up and there was a feeling of pressure in my vagina. I looked and it looked like there was something partially blocking the hole.
RGEB
in
Women's Health
3 months ago
TINGLY FEET
Has anyone on here experienced tingly feet during the night after having steroid injections in the knees. I had the injections in both of my knees for arthritis only four days ago. The tingly feeling seems just like having a flare when I need to increase my steroids. It goes as soon as I get up in the
Has anyone on here experienced tingly feet during the night after having steroid injections in the knees. I had the injections in both of my knees for arthritis only four days ago. The tingly feeling seems just like having a flare when I need to increase my steroids. It goes as soon as I get up in the
Wallydb
in
PMRGCAuk
5 months ago
mid-year covid vaccine
the CDC has recommended we immuno-suppressed get a second covid vaccine this year. i am getting mine tomorrow, six months after the 2023-24 first dose. What has your experience been with a second shot in a year? I have normally only gotten one but with this advisory, I decided to do. Your thoughts
the CDC has recommended we immuno-suppressed get a second covid vaccine this year. i am getting mine tomorrow, six months after the 2023-24 first dose. What has your experience been with a second shot in a year? I have normally only gotten one but with this advisory, I decided to do. Your thoughts
ElMaga
in
CLL Support
5 months ago
Tired Tavern - Discord server for people with CFS/ME and/or Long Covid (PACS)
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid (PACS). We currently have over 350+ members since starting last December. It's a community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid (PACS). We currently have over 350+ members since starting last December. It's a community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like
TiredTavern
in
Myalgic Encephalomyelitis Community
5 months ago
Should you take Low Dose Naltrexone (LDN) more than once a day for long Covid?
Should you take Low Dose Naltrexone (LDN) more than once a day for long Covid? Answered by Michelle Kilmer Moser https://youtu.be/HldwdGvCPwA
Should you take Low Dose Naltrexone (LDN) more than once a day for long Covid? Answered by Michelle Kilmer Moser https://youtu.be/HldwdGvCPwA
Shewulf
Administrator
in
LDN Research Trust
5 months ago
Thrush from Trimbow worse at the end of inhaler
I’ve been using Trimbow for about 6 months now and it’s changed my life, however, I get horrible dry mouth and oral thrush side effects. Maybe I’m imagining it, but I’ve noticed that it gets much worse towards the end of the inhaler and clears up a bit once I start a new one.? Anyone else? I always
I’ve been using Trimbow for about 6 months now and it’s changed my life, however, I get horrible dry mouth and oral thrush side effects. Maybe I’m imagining it, but I’ve noticed that it gets much worse towards the end of the inhaler and clears up a bit once I start a new one.? Anyone else? I always
GaspingGardener
in
Lung Conditions Community Forum
7 months ago
COVID
I've had COVID for a few days so have not been in touch. Thank G-D I am not throwing up. Calling my Dr. Monday. I hope everyone is doing well. Leslie
I've had COVID for a few days so have not been in touch. Thank G-D I am not throwing up. Calling my Dr. Monday. I hope everyone is doing well. Leslie
lbenmaor
in
My MSAA Community
5 months ago
New medication for boosting immunity against covid19
Hello everyone from snowy NY. My spouse received his first kidney transplant 11/2018 and I just told him about this news. Apparently, there is a new IV infusion for people who are very immunocompromised to help improve their health from getting covid19, since the vaccinations were not working as hoped
Hello everyone from snowy NY. My spouse received his first kidney transplant 11/2018 and I just told him about this news. Apparently, there is a new IV infusion for people who are very immunocompromised to help improve their health from getting covid19, since the vaccinations were not working as hoped
Gardner-NY
in
Kidney Transplant
5 months ago
h pylori treatment
hello I’d like to hear from anyone who has successfully eradicated helicobacter pylori with either a natural or antibiotic protocol. I’m on low dose NDT with Dr Frey and have thyroid nodules (biopsy tested benign) Tested positive for h pylori via a breath test in October and was offered quadruple
hello I’d like to hear from anyone who has successfully eradicated helicobacter pylori with either a natural or antibiotic protocol. I’m on low dose NDT with Dr Frey and have thyroid nodules (biopsy tested benign) Tested positive for h pylori via a breath test in October and was offered quadruple
Crankyoldbag
in
Thyroid UK
7 months ago
starting again!
hello, I was running around 10 miles in my mid fifties following post surgical PE at 50. Covid in 2022 set off severe flare of Ulcerative Colitis (had since 25) and PE. Spent a year recovering started couch to 5k in January having built up fitness walking and cycling. Doing well then got knocked back
hello, I was running around 10 miles in my mid fifties following post surgical PE at 50. Covid in 2022 set off severe flare of Ulcerative Colitis (had since 25) and PE. Spent a year recovering started couch to 5k in January having built up fitness walking and cycling. Doing well then got knocked back
Aclotintrainers
in
Anticoagulation Support
5 months ago
Provera
I've recently been diagnosed with endometriosis. My consultant has issued me with provera tablets as treatment. I was wondering if anyone has had any experience with taking these? Im a little apprehensive of the possible side effects. Many thanks
I've recently been diagnosed with endometriosis. My consultant has issued me with provera tablets as treatment. I was wondering if anyone has had any experience with taking these? Im a little apprehensive of the possible side effects. Many thanks
Dvs24
in
Endometriosis UK
7 months ago
Lurgy again!
I had a trip to London on Tuesday to work on a show and that was pretty tiring. I'd run on Monday, hoping for 30 minutes, but surrendering at 23. So the 30 minute run was Wednesday ... but no, just too tired. Thursday? Nah. So today, for sure. I got up early and put my running gear on, did two lots of
I had a trip to London on Tuesday to work on a show and that was pretty tiring. I'd run on Monday, hoping for 30 minutes, but surrendering at 23. So the 30 minute run was Wednesday ... but no, just too tired. Thursday? Nah. So today, for sure. I got up early and put my running gear on, did two lots of
Gthants
in
Bridge to 10K
5 months ago
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