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SOS for advice please
In in bad shape can’t stand erect pain all the time compression fractures up & down lumbar to thoracic. It’s been about 3 years in total 11 compression fractures. I’ve had 3 Kyphoplasty’s but have refused any of the pharmaceutical treatments prescribed for bone density issues; tried and can’t/don’t
In in bad shape can’t stand erect pain all the time compression fractures up & down lumbar to thoracic. It’s been about 3 years in total 11 compression fractures. I’ve had 3 Kyphoplasty’s but have refused any of the pharmaceutical treatments prescribed for bone density issues; tried and can’t/don’t
Lisannn
in
Osteoporosis Support
29 days ago
Endocrine Nurse appointment but no plan in place plus weight loss
Hi everyone It's me again. I hope you are all doing ok. Last time I posted I was feeling really unwell on my dose of T3 but had an upcoming appointment on 6th March. On the day it was a different Endocrine Nurse who I didn't know & was difficult to understand due to her accent but basically told me
Hi everyone It's me again. I hope you are all doing ok. Last time I posted I was feeling really unwell on my dose of T3 but had an upcoming appointment on 6th March. On the day it was a different Endocrine Nurse who I didn't know & was difficult to understand due to her accent but basically told me
Otto11
in
Thyroid UK
29 days ago
Third line chemotherapy, Caelyx
so, have started Caelyx every 4 weeks as carboplatin and paclitaxel and Niraparib have stopped working. Surgery to remove peritoneum and resection liver not an option. Does anyone have experience of just Caelyx? Is it effective on its own? Thankyou
so, have started Caelyx every 4 weeks as carboplatin and paclitaxel and Niraparib have stopped working. Surgery to remove peritoneum and resection liver not an option. Does anyone have experience of just Caelyx? Is it effective on its own? Thankyou
Skyeplus
in
My Ovacome
29 days ago
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from PD to HD
Hi everyone. This is question is for anyone who is either having HD or has had PD and is switching to HD. I have been a PD patient since the beginning of my journey. I chose it as I felt it would allow me to go on working partime and have a next to normal life balance. Unfortunately, my PD exit site
Hi everyone. This is question is for anyone who is either having HD or has had PD and is switching to HD. I have been a PD patient since the beginning of my journey. I chose it as I felt it would allow me to go on working partime and have a next to normal life balance. Unfortunately, my PD exit site
Imaanforever
in
Kidney Dialysis
29 days ago
advice sought
I’m on APIXABAN with no effects, however my GP surgery (the pharmacist) has suggested I take a STATIN (Atorvastatin) because of slightly high cholesterol (5.11). I’m good with that esp having had it all explained to me, however, does anyone else take a statin alongside their anticoagulant and if so
I’m on APIXABAN with no effects, however my GP surgery (the pharmacist) has suggested I take a STATIN (Atorvastatin) because of slightly high cholesterol (5.11). I’m good with that esp having had it all explained to me, however, does anyone else take a statin alongside their anticoagulant and if so
AstroFish
in
Atrial Fibrillation Support
29 days ago
Had enough - NHS and severe pain
Hey everyone, long time no post! I am really struggling at the minute as my pain and symptoms are getting worse by the day and I still haven't been given any indication of a date for my excision surgery even though they told me on 1st December it would be less than 6 months (I know it hasn't been 6
Hey everyone, long time no post! I am really struggling at the minute as my pain and symptoms are getting worse by the day and I still haven't been given any indication of a date for my excision surgery even though they told me on 1st December it would be less than 6 months (I know it hasn't been 6
endo_the_stigma
in
Endometriosis UK
30 days ago
Annual TF test
It's been a while since had to battle with GP after they reduced Thyroxine to 75 resulting in a return to many of the old symptoms over 6 month period. Your help and advice at that time was invaluable. Resolved after full blood screen confirmed no other issues and speaking with senior GP who was
It's been a while since had to battle with GP after they reduced Thyroxine to 75 resulting in a return to many of the old symptoms over 6 month period. Your help and advice at that time was invaluable. Resolved after full blood screen confirmed no other issues and speaking with senior GP who was
Tiller-girl
in
Thyroid UK
1 month ago
Referral
Hi so my story to date, I have had ovarian cysts every 6 to 12 months for about 12 years. Everytime intense pain, bleeding, few ruptures requiring surgery over the years. Repeatedly told I'm young (I am now 31) and people can have constant cysts but no further investigation offered as to why apart from
Hi so my story to date, I have had ovarian cysts every 6 to 12 months for about 12 years. Everytime intense pain, bleeding, few ruptures requiring surgery over the years. Repeatedly told I'm young (I am now 31) and people can have constant cysts but no further investigation offered as to why apart from
Faylen34
in
Endometriosis UK
1 month ago
Sorry :( me again (post surgery question)
Hello lovely community. You guys have been so helpful to me recently so wanted to gauge advice again. I had a miscellany of things done last Wednesday… copied and pasted exactly from my follow-up letter so I get nothing wrong: hysteroscopy, endometrial biopsy, Novasure endometrial ablation and laparoscopic
Hello lovely community. You guys have been so helpful to me recently so wanted to gauge advice again. I had a miscellany of things done last Wednesday… copied and pasted exactly from my follow-up letter so I get nothing wrong: hysteroscopy, endometrial biopsy, Novasure endometrial ablation and laparoscopic
endotheline
in
Endometriosis UK
1 month ago
GP Patient Forum Page
I have copied this off PMRGCAuk Facebook page on to my GP Surgery Patients Facebook Page. Maybe others on the forum could do the same if your on Facebook and spread the word to increase membership.
I have copied this off PMRGCAuk Facebook page on to my GP Surgery Patients Facebook Page. Maybe others on the forum could do the same if your on Facebook and spread the word to increase membership.
Estellemac
in
PMRGCAuk
1 month ago
Yearly endo nonsense
I've given up ranting, this just seems to be yearly confirmation of what we are up against (sadly most don't get as far as Endochrinoloy. My GP surgery recently asked me to confirm my Levo dose? They prescribe it each month so is it compliance? I replied 150mcg Levothyroxine and 10mcg Liothyronine (I've
I've given up ranting, this just seems to be yearly confirmation of what we are up against (sadly most don't get as far as Endochrinoloy. My GP surgery recently asked me to confirm my Levo dose? They prescribe it each month so is it compliance? I replied 150mcg Levothyroxine and 10mcg Liothyronine (I've
tzracer
in
Thyroid UK
1 month ago
Wound healing and Steroid Use
I have been on Prednisone for just over a year. I am down to 10mg and cannot titer down without flare. I am waiting for approval for Kevzara. I have noticed that when I get a small cut or skin abrasion (which is more frequent since my skin is thinner with steroid use) It gets very red and takes a long
I have been on Prednisone for just over a year. I am down to 10mg and cannot titer down without flare. I am waiting for approval for Kevzara. I have noticed that when I get a small cut or skin abrasion (which is more frequent since my skin is thinner with steroid use) It gets very red and takes a long
lovemylife23
in
PMRGCAuk
1 month ago
am i relasping?
i had been recovered from anorexia since 2016 but since i had surgery for an infection in my back and have lost weight, i cant stop focusing on calories, loosing weight, and exercising. im not underweight infact im probably abit over, i feel like ana is creeping back in, but i dont feel i can as for
i had been recovered from anorexia since 2016 but since i had surgery for an infection in my back and have lost weight, i cant stop focusing on calories, loosing weight, and exercising. im not underweight infact im probably abit over, i feel like ana is creeping back in, but i dont feel i can as for
Horsemad1
in
Talk ED (eating disorders)
1 month ago
waiting times for surgery
What are the waiting times for surgery at the moment? I already have a diagnosis of adenomyosis and endometriosis. I am meeting consultant tomorrow so will ask then but going out my mind with worry. Im twitchy and cant sit still im so nervous, Im based in Southampton.
What are the waiting times for surgery at the moment? I already have a diagnosis of adenomyosis and endometriosis. I am meeting consultant tomorrow so will ask then but going out my mind with worry. Im twitchy and cant sit still im so nervous, Im based in Southampton.
Hannah27
in
Endometriosis UK
1 month ago
Metoprolol
I have recently gone from PAF to the AF being semi-permanent. I have been prescribed metoprolol which is helping but every pharmacy I contact, and also my own prescribing surgery are finding it very hard to get hold of. Anyone else have this problem? I am in UK.
I have recently gone from PAF to the AF being semi-permanent. I have been prescribed metoprolol which is helping but every pharmacy I contact, and also my own prescribing surgery are finding it very hard to get hold of. Anyone else have this problem? I am in UK.
Singingforever
in
Atrial Fibrillation Support
1 month ago
Unexplained pain in the mornings:
I recently began tapering from 15mg after my PMR diagnosis down to 10mg over a couple of months, following the usual NHS protocol, but on 10mg I began to get pain in the upper back between the shoulder blades, and in my arms, upper and lower, and especially on the right, and sometimes behind the knees
I recently began tapering from 15mg after my PMR diagnosis down to 10mg over a couple of months, following the usual NHS protocol, but on 10mg I began to get pain in the upper back between the shoulder blades, and in my arms, upper and lower, and especially on the right, and sometimes behind the knees
Sally_Bones43
in
PMRGCAuk
1 month ago
Negative Posting About the NHS
Hi all. Recently I have seen some very negative posts/responses to people with regards the NHS and it's lack of performance, commitment, etc., to TBI sufferers. It is so bad that like a used car forum where people only post when they have a problem, never to say they have a great car, I'd like to somewhat
Hi all. Recently I have seen some very negative posts/responses to people with regards the NHS and it's lack of performance, commitment, etc., to TBI sufferers. It is so bad that like a used car forum where people only post when they have a problem, never to say they have a great car, I'd like to somewhat
Hidden
in
Headway
1 month ago
Writing to my local MP next step
I have not gone in to two much detail I about matters has IAM scring the surfac take yesterday has a for a average day I was waiting all morning for the district nurse to take blood so I no what dose of medication to take this week nurse never called or turned up so had to ring doctors up neighbour
I have not gone in to two much detail I about matters has IAM scring the surfac take yesterday has a for a average day I was waiting all morning for the district nurse to take blood so I no what dose of medication to take this week nurse never called or turned up so had to ring doctors up neighbour
Craig53
in
British Heart Foundation
1 month ago
post right hemicolectomy functional bowel disorder
my son age 7 during storm Emma passed out and vomited continuously, we had to take him to the nearest accessible hospital with ice chains on the car , they just said it was viral. A scan the next day revealed intersusception so his bowel was blocked , he developed sepsis. He had a right hemicolectomy
my son age 7 during storm Emma passed out and vomited continuously, we had to take him to the nearest accessible hospital with ice chains on the car , they just said it was viral. A scan the next day revealed intersusception so his bowel was blocked , he developed sepsis. He had a right hemicolectomy
Rosaandpompom
in
ERIC
1 month ago
Crohns/IBD
I have undiagnosed Crohns/IBD and continuous flares. I had surgery in 2011 resection of 20cm colon. What treatments are effective?
I have undiagnosed Crohns/IBD and continuous flares. I had surgery in 2011 resection of 20cm colon. What treatments are effective?
Lalande
in
Thyroid UK
1 month ago
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