I started taking Olaparib about 2 months ago. The first month was pretty rough but the second month much better.
When I started Olaparib, my CA-125 was 19 about 5 weeks after my 6 rounds of chemo after being in remission for about 6 years. I responded really well to the chemo (I am BRAC2) and I was put on Olaparib around mid December once my neutraphils came back up to an acceptable level.
I was tested for complete blood count in December, January and February and the results were quite good. I did have COVID in late November but I healed nicely.
I went to get tested for my CA-125 level this morning (they test every three months for the CA-125 and monthly for the routine blood work that includes CBC) and it had gone up to 43. I feel fine, my stomach is very flat and I do have energy. I don't understand what is going on. The nurse in charge of the PARP program is sending me for a scan but said it wasn't urgent so it might be in a month or so. I am so scared that I cannot think straight. They are keeping me on PARPs for the moment and gave me the option to wait or go ahead with the scan. Of course, I am taking the scan even if I have no symptoms.
She said that it could be a one off and it might come back down. She said that they might find nothing on the scan as well but the doctor ordered one. I am petrified.
My bowell movements are great as well but I have a lot of issues with eating fiber as I find it makes my bowells feel funny when I lie down. I can't tolerate the same type of food that I used to eat. I have a bit of back ache, hemorrhoid's and my private parts itch. I don't know what is normal or not anymore because of the PARPS.
Can anyone share their experiences on Olaparib. I really need a boost as I feel that I am losing my mind.