I am 25 years old. I was diagnosed with WG in 2013 (affecting only my lungs). I have taken rituximab and prednisone and methotrexate. ( I hate them all but has saved my life... according the doctors)
I have been on remission for about 2 years now. I had a normal pregnancy and gave birth to a healthy baby girl now 11 months.
I felt my left ear plugged for about a month and a half so I went to my rheumatologist and did some blood work. Everything came back normal, all organs seem to be doing good and healthy. But my p-ANCA levels were sky high. ( "greater than 640")
So apparently my ear issue is related and im having a flare up.
Anyone knows what ( "greater than 640") means? I know by what my doctor informed me that it is pretty high . My Doctor wants me back on prednisone and rituximab. Is all this necessary ? Any comments, concerns or experience sharing would be great ! thank you