Good morning everyone, I have just been diagnosed with a rare form of lymphoma called nodal marginal zoneB-cell. I have been losing weight for over a year, told loads of doctors about it, had tons of blood tests and still doctors missed it. My rheumy doc said all my bloods were ok but then my gp noticed my kidney function bloods were not quite right. I've been getting monitored for 6 months now. I've had stomach problems for a year, gastro appointment took ages to get and I'm still waiting on more tests from him, because I have MCTD there is a higher risk to getting this, our lovely immune systems like to play around in our bodies. It was the lump in my neck that concerned my doctor, we all get lumps that come and go in our neck, but it is wise to be vigilant as I will be from now on. Ct scans, biopsies and Bone marrow tests found I have abnormal lymph nodes around my kidneys, in my stomach and lungs, hence the weight loss and stomach problems. Fortunately it is a low grade lymphoma as I've probably had it for years. My next chapter will be six months chemo with rituximab and 70mg of steriods and other drugs. It's the steriods that worry me more than the chemo, I didn't cope well on 40. Anyway I'm staying positive and from now on I will be harassing doctors a lot more till they take me seriously.