Today marks the 90th day I have been on Ibrutinib. I feel blessed that I've only had a mild reaction and then only in the first month. I still suffer from Infections because of low immunity. This has been demonstrated in the last week with a sickness and diahorrea bug which lasted a week for me but 24 hours for my wife. That said the quality of my life overall has improved dramatically.
I am also observing the results of the trial of Ibrutinib and venetoclax which seem to be quite dramatic. As a CLL sufferer since 2007 and having gone through the aggressive FCR the change in treatment looks promising for the future PROVIDING funding is still in place for both research and the prescribing of any new treatment to patients.
I feel lucky to be given this expensive treatment which has undoubtedly extended my life. Prior to beginning treatment I did not expect to see the year out. I now plan a future albeit with restrictions.
God bless you all and Merry Christmas with a happy and healthy new year x