When do you get answers...

[MOOG144]

So I was diagnosed with SLE & Lupus Nephritis in Feb, since then been on the wonderful treatment rollercoaster.

As I am over 40 and was receiving fertility treatment when I was diagnosed, which I believe sped up the Nephritis, and now potentially premenopausal I 1st went on a course of strong steroids and imunosuppresants to try to force everything into remission, when that wasn't working I was given a course a rituximab on top, now another round of rituximab. Things have improved but I seem to have lost sight of what is happening...

Will my Nephritis go into remission, what about the Lupus, will I forever more need to take sterios and imunosuppresants?

Just feel like it's take over my entire life...

Xxx

[whisperit]

Hello MOOG144

Yes, it's a shock to the system,m isn't it? It does seem like there is a huge range of experiences with lupus and related diseases. Some people seem to go for years with little or no trouble, others are stuck with managing active symptoms for long periods of time. The consensus of information published by lupus organisations seems to be that there is no definitive "cure" for lupus, but some are able to reduce their medications to a minimal level (or even none) when the disease is considered to be "quiescent" or "in remission". However, I can't find any figures that give a good idea of how many people can expect this.

I guess the only answer for you is to ask your own clinicians, who will understand the state of your personal markers and clinical symptoms. Meantime, please do keep in touch with this site; support from others in a similar position can be a lifesaver x