Wegners disease and kidney function - Kidney Disease

Kidney Disease

11,044 members4,776 posts

Wegners disease and kidney function

Norfickgal profile image
2 Replies

Anyone out there with an auto immune disease that resulted in acute renal failure had any renewal or seen an increased kidney function over recovery time. If so , how many months after diagnosis. I have had another vasculitis flare up and back on a shed load of steroids. I'm now having a 2nd session rituximab and seen less urine flow which means I'm now on more fluid restriction. I'm hoping it's the meds.

I have read that some Wenger's disease sufferers can see some or all kidney function restored over 6 plus months of renal failure.

Written by
Norfickgal profile image
Norfickgal
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Kindsong profile image
Kindsong

Hi! Welcome. I was diagnosed with Sjogrens disease ( an autoimmune condition) and FSGS and MN at the same time, last June. Sjogrens is a systemic disease, and caused the kidney diseases. I am stage 3a CKD. The doctors put me on steroids immediately, and I had my first 2 rituximab infusions in August. They told me it would be 6 months after the infusions before there could be improvements. But also told me the expectation was that I would need infusions for 2+ years. My condition is rare, and there is no data to see a prognosis. I think they're just throwing everything they can at me right now, and hoping it will work. Good luck !

Norfickgal profile image
Norfickgal in reply to Kindsong

Thanks for replying. It's been a bit of a nightmare tbh, especially getting the disease and losing once healthy kidneys within a week of the disease being triggered. I believe my condition was underlying undiagnosed and triggered by an allergic reaction to Doxycycline (anti biotic). I was hopeful of getting some function back, but as time goes on and kidney transplant is mentioned more often that hope is fading. I keep looking for miracle stories. I did listen in to a conversation when I as first in hospital whereby someone who had an auto immune disease got full kidny function back after 12 months. and a nurse working at the kidney dialysis centre who has a friend in Canada with Wegners disease got function back, but I haven't been able to find any others. I'm trying to cope with this but with the the covid restrictions closing my small business and now having financial problems I'm finding it increasingly depressing and starting to grieve for my once good health. A bit of a whinge I know . I guess you too must be going through a horrible time too.

You may also like...

Creatinine of 18, but kidney function returning.

spent 3 weeks in the hospital due to surprise kidney failure. My creatinine level was at 18. I was...

Declining Kidney Function

this forum and Kidney Issues and would appreciate any feedback from long term kidney disease...

Sharing Kidney Function Improvement Protocol

research (and prayer) and have seen considerable improvement in my kidney function since then after...

Standards for measuring Kidney Function

determine or define CKD levels or current kidney function. I just wanted to point out that the...

Kidney disease cause revealed

delivery of her first child and experienced acute kidney failure. She was referred to a geneticist...