Nras web Facebook session about vaccines : It's very... - NRAS

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Nras web Facebook session about vaccines

allanah profile image
33 Replies

It's very very In depth. Goes into huge detail about when it's best to have vaccine but the main messages I got was:

Have the vaccine ! the ones passed are safe for RA patients . The oxford vaccine was a live vaccine that he have attenuated so we can have it therefore not a " live" vaccine when given.

Our drugs might alter the response to the vaccines but " most people will still mount a substantial response protection against catching the virus"

It discusses allergies, nd methotrexate and rituximab timings

If you need an op the consultant felt he would have the vaccine pre op if possible although a lot of ops are being stopped at present.

I really feel you should listen to the doctor talking about timing that might be possible for vaccine and various RA drugs .

Enjoy!!

It is on the nras.org.uk website for you to watch

33 Replies
Moomin8 profile image
Moomin8

I was listening in - very informative 👌

allanah profile image
allanah in reply to Moomin8

The specifics about timings of mtx and rituximab and flu jabs were very good

Neonkittie17 profile image
Neonkittie17 in reply to allanah

Too late I’ve had them! LOL. Flu and pneumonia.

Summerrain14 profile image
Summerrain14

It was really informative. Thanks to NRAS for taking the time to organise this webinar. x

allanah profile image
allanah in reply to Summerrain14

It answered everything we were worried about so they listen to us and the helpline questions I think !!

Potatos profile image
Potatos

I couldn't get onto it at 1900. Where is it on the site?

allanah profile image
allanah in reply to Potatos

It will be on NRAS.org.uk hopefully. Maybe tomorrow ..

Kerensa21 profile image
Kerensa21 in reply to Potatos

I don’t have Facebook account but just googled nras Covid vaccine video and it came up 👍

Stayloose profile image
Stayloose in reply to Potatos

If you search Facebook nras you will find it.

Potatos profile image
Potatos in reply to Stayloose

Thanks. I have found it and watched it now. Very useful.

allanah profile image
allanah in reply to Stayloose

Or just nras.org.uk

Neonkittie17 profile image
Neonkittie17

I look forward to catching up with it tomorrow.

Neonkittie17 profile image
Neonkittie17

This was excellent. Thank you for reminding us Allanah. 💗 Thank you to Clare and Nadine of NRAS and of course Dr Galloway. So helpful and informative. I hope that this encourages people who have had some doubts about being vaccinated and have been unsure if it is safe. I was grateful it answered a lot about Rtx and also Mtx, but as Dr Galloway said, we may need to clarify issues re allergies and timings re something like Rtx with our rheumy or GP. The encouraging part was that he says we should still get a very good response from the vaccine even if we are immuno-suppressed and enough to make it worthwhile having the vaccine. I shall be donating to NRAS to say thank you for all their advice and support. They are excellent.

Mmrr profile image
Mmrr

I'm feeling a bit more confident in having the vaccine after listening to the event.What is evident is that knowledge of the safety and efficacy of the vaccine is progressing quickly.

Stayloose profile image
Stayloose in reply to Mmrr

Yes. There seems to be anxiety that research and trials generally take years and this has been too quick. We were reminded that there are many many research projects and trials ongoing at any given time, but this year Covid has been the worlds primary focus.

allanah profile image
allanah in reply to Mmrr

Yep!

Niao profile image
Niao

Thanks allanah! How much do I owe you?!Am going to watch it in a while, sounds good.🙂

allanah profile image
allanah in reply to Niao

😂😂😂yes it's worth the watch for the specifics though

Niao profile image
Niao in reply to allanah

I hate to admit allanah, may be being a bit dim here, but I can't find it??☹

allanah profile image
allanah in reply to Niao

Try this link . You dont need to be on facebook to watch facebook.com/nationalrheuma...

Niao profile image
Niao in reply to allanah

Thanks, just found it I think, but will follow your link now🙂

bubblyalex profile image
bubblyalex

Thank you for putting this up 💕.

JEM95 profile image
JEM95

I thought it was an excellent webinar. Dr Galloway explained everything so well. I really feel so much better informed and any questions I had were answered perfectly with the right level of supporting detail.

Thank you NRAS and thank you Dr Galloway x

Ali_H profile image
Ali_H

Thank you so much for flagging this recording up as I have found it very informative re vaccine, allergies etc.Just one question.... does any one know how long Dr James’ waiting list is??? 😇

Thanks again

Ali

allanah profile image
allanah in reply to Ali_H

Yeah gorgeous isnt he !!! But my rheumy is too, so he would be upset if he was gazumpted!,😂😂

Ferret18 profile image
Ferret18

Brilliant - thank you

Niao profile image
Niao

Just watched allanah, and very glad I did! Very informative and reassuring! I'll do exactly as he said and ask Rheumatologist again near the time, regarding stopping or not stopping methotrexate. I did speak to him last week and he didn't have a clear answer, which I understand as exactly as was said on the video, me being right at the start if my treatment and my RA being very active and not yet under control, a break in my meds may not be the best for me. But having the vaccine definitely is! Thanks again for this post!

allanah profile image
allanah in reply to Niao

Yes. If you join NRAS you get a magasine and members only web blogs too !

Moomin8 profile image
Moomin8

I had a reply on the webinar to my question: is the Oxford vaccine live?Clare Jacklin replied:

'Live but different in that the 'live' virus is not one that can duplicate in humans and is only used as a delivery mechanism so the Oxford vaccine, once approved, will be able to be offered to those with RA.'

allanah profile image
allanah in reply to Moomin8

So yes we can have it !!! Great news . Merry xmas x

Moomin8 profile image
Moomin8

Please still check though...I'm not medically trained 😊On one of my posts- you'll see a screen shot of the answer 🙂xx

allanah profile image
allanah in reply to Moomin8

Yep NRAS said it's not a live vaccine, but check with rheumy about your drug regime

allanah profile image
allanah

facebook.com/nationalrheuma... or on nras.org.uk

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