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PIP Rheumatoid Arthritis
Hi everyone I’m new to this forum I was diagnosed with RA when I was 17 back in 1979 but have coped really well until 2009 when osteoarthritis combined with the RA started to wear me down. I have been on Rituximab since 2011 which brings my flares under control after a few months but now my immobility
Hi everyone I’m new to this forum I was diagnosed with RA when I was 17 back in 1979 but have coped really well until 2009 when osteoarthritis combined with the RA started to wear me down. I have been on Rituximab since 2011 which brings my flares under control after a few months but now my immobility
stupidra
in
NRAS
3 years ago
Low Sodium after Rituximab Infusion
Hi all I hope you are all keeping well. I had my 6 monthly Rituximab infusion 3 weeks ago and 10 days later I got up on Bank Holiday Monday at felt really strange, like I was going to pass out, felt really nauseous and as the day went on I felt so ill I ended up in A&E and kept overnight for observation
Hi all I hope you are all keeping well. I had my 6 monthly Rituximab infusion 3 weeks ago and 10 days later I got up on Bank Holiday Monday at felt really strange, like I was going to pass out, felt really nauseous and as the day went on I felt so ill I ended up in A&E and kept overnight for observation
Investigator1
in
Vasculitis UK
3 years ago
Ra hammer toes
I have myasthenia gravis and Ra and on Rituximab, I have hammer toes on both feet wondering if anyone has had the hammer toes operated on? And if so how did it go? My GP says don’t have them Operated on your feet?
I have myasthenia gravis and Ra and on Rituximab, I have hammer toes on both feet wondering if anyone has had the hammer toes operated on? And if so how did it go? My GP says don’t have them Operated on your feet?
65_women
in
NRAS
3 years ago
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BUPA's get-out clause for cancer
Has anyone had any experience with Bupa cancer cover in the UK? Bupa Cancer promise is that it is not limited by time or costs. However, after one year on Ibrutinib, they have decided to increase my premium by 50%. And it gets worse, each year I am likely to face 50% increases because I lose my no-claims
Has anyone had any experience with Bupa cancer cover in the UK? Bupa Cancer promise is that it is not limited by time or costs. However, after one year on Ibrutinib, they have decided to increase my premium by 50%. And it gets worse, each year I am likely to face 50% increases because I lose my no-claims
MovingForward4423
in
CLL Support
3 years ago
Following Rituximab, is this expected or is there cause for concern
Hi all, my GPA has flared after a few years of being stable, (damn it, was doing so well). As well as increased anca, I had pain in the joints in my fingers and really bad fatigue. My rheumatologist set up 4 rituximab infusions 1 week apart. By the 3rd infusion I was feeling good, both fatigue and joint
Hi all, my GPA has flared after a few years of being stable, (damn it, was doing so well). As well as increased anca, I had pain in the joints in my fingers and really bad fatigue. My rheumatologist set up 4 rituximab infusions 1 week apart. By the 3rd infusion I was feeling good, both fatigue and joint
stuc
in
Vasculitis UK
3 years ago
Advice for Rituximab please
After a telephone conversation with RA consultant today, she is taking me off imraldi and putting me on Rituximab. Can anyone tell me what to expect (Good and bad please). I know everyone is different. I didn't really have any side affects with imraldi, it just stopped working after a couple of years
After a telephone conversation with RA consultant today, she is taking me off imraldi and putting me on Rituximab. Can anyone tell me what to expect (Good and bad please). I know everyone is different. I didn't really have any side affects with imraldi, it just stopped working after a couple of years
Juliesb
in
NRAS
3 years ago
Total hip replacement and limited systemic scleroderma
I am due to have a total hip replacement in less than 2 weeks time. I have limited systemic scleroderma and am on Rituximab every 6 months. If so, was your recovery slower than normal or did you go into a flare? I take low dose prednisone and Hydroxychloroquine.
I am due to have a total hip replacement in less than 2 weeks time. I have limited systemic scleroderma and am on Rituximab every 6 months. If so, was your recovery slower than normal or did you go into a flare? I take low dose prednisone and Hydroxychloroquine.
UCTD
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
I have had ITP for 5 months and no medications have helped....Prednisone, Dexamethasone (very temporary) Revolade and Rituximab. IVIG ???
Has anyone here been having IVIG infusions on a regular basis (perhaps every three weeks) rather than having a splenectomy?
Has anyone here been having IVIG infusions on a regular basis (perhaps every three weeks) rather than having a splenectomy?
Bradyella
in
ITP Support Association
3 years ago
Rixathon...biosimilar?
Hi Peeps, I had, what I thought was, my first Rituximab infusion last Monday. I have only just realised that it wasn't Rituximab, it was Rixathon! Has anyone had experience of this infusion? Am I assuming that it is a biosimilar to Rituximab?
Hi Peeps, I had, what I thought was, my first Rituximab infusion last Monday. I have only just realised that it wasn't Rituximab, it was Rixathon! Has anyone had experience of this infusion? Am I assuming that it is a biosimilar to Rituximab?
Moomin8
in
NRAS
3 years ago
Treatment advised (after 21 years w & w)
I am 66 year old male Royal Marsden patient UK. Treatment has been advised (which has come as a big shock to me as it has never mentioned before) mostly because I have a really huge spleen. Apparently extending over to the right side of my abdomen and well below my navel on the left side. This was on
I am 66 year old male Royal Marsden patient UK. Treatment has been advised (which has come as a big shock to me as it has never mentioned before) mostly because I have a really huge spleen. Apparently extending over to the right side of my abdomen and well below my navel on the left side. This was on
ornstin
in
CLL Support
3 years ago
Mycophenolate Mofetil
Due to allergic reaction to Rituximab, my daughter didn't finish the 2nd dose of her cycle. RA consultant has now prescribed Mycophenolate Mofetil 500mgs twice a day. Also titrating Prednisolone from 20 mgs to 15 mgs with a view to going off it. Has anyone had any good response with this medication
Due to allergic reaction to Rituximab, my daughter didn't finish the 2nd dose of her cycle. RA consultant has now prescribed Mycophenolate Mofetil 500mgs twice a day. Also titrating Prednisolone from 20 mgs to 15 mgs with a view to going off it. Has anyone had any good response with this medication
Wangpaupau
in
NRAS
3 years ago
CLL 17p - Rituximab/Imbruvica then Rituximab/Venetoclax or enter in a clinical trial ?
First of all I would like to thank you for responding to my previous post... It really helps me ! My mom had an appointment last Thursday 27th in another hospital to see if she could be included in the following clinical trial: "A phase 3 multicentre, randomized, prospective, open-label trial of ibrutinib
First of all I would like to thank you for responding to my previous post... It really helps me ! My mom had an appointment last Thursday 27th in another hospital to see if she could be included in the following clinical trial: "A phase 3 multicentre, randomized, prospective, open-label trial of ibrutinib
Noham027
in
CLL Support
3 years ago
Newbie!
Hi, kept meaning to join after seeing on Lupus UK. Lupus with a side helping of antiphospholipid syndrome and spectacular myosotis. In the process of upgrading from mycophenolate to rituximab, any suggestions, hints greatly appreciated. Looks like an amazing supportive group ❤️
Hi, kept meaning to join after seeing on Lupus UK. Lupus with a side helping of antiphospholipid syndrome and spectacular myosotis. In the process of upgrading from mycophenolate to rituximab, any suggestions, hints greatly appreciated. Looks like an amazing supportive group ❤️
sarah_lupus
in
LUPUS UK
3 years ago
Article in today's Telegraph re Covid vaccines do not work on the immunosuppressed
In an article from today's Telegraph, Lady Nicola Mendelsohn, who suffers from a blood cancer, has discovered that despite her full vaccination for Covid-19, she has no antibodies due to immunosuppressive treatment and is advised that she will have to continue to shield. The article assumes this is the
In an article from today's Telegraph, Lady Nicola Mendelsohn, who suffers from a blood cancer, has discovered that despite her full vaccination for Covid-19, she has no antibodies due to immunosuppressive treatment and is advised that she will have to continue to shield. The article assumes this is the
amms43
in
Vasculitis UK
3 years ago
Rituximab
Hi I have diffuse systemic scleroderma and RA. My consultant wants to start me on Rituximab infusion, which will take place over a week but I’m concerned about the side effects and implications for daily living. Can anyone advise of treatment that works for you. Or the benefits you have experienced with
Hi I have diffuse systemic scleroderma and RA. My consultant wants to start me on Rituximab infusion, which will take place over a week but I’m concerned about the side effects and implications for daily living. Can anyone advise of treatment that works for you. Or the benefits you have experienced with
trunchalobesity
in
NRAS
3 years ago
Looking for alternatives with BTK C481 resistant CLL
Looking for alternatives. I have had 3 prior treatments from FCR to other chemo to Veneclax and Imbrutnib which was working great until my counts went up again. Turns out I have developed a BTK mutation. Been seeking out trials and wanted to try loxo-305 (Pirtobrutinib) but it was all filled up and they
Looking for alternatives. I have had 3 prior treatments from FCR to other chemo to Veneclax and Imbrutnib which was working great until my counts went up again. Turns out I have developed a BTK mutation. Been seeking out trials and wanted to try loxo-305 (Pirtobrutinib) but it was all filled up and they
micg
in
CLL Support
3 years ago
Rituximab
Hello 👋 I’m a bit curious as to how long does it take for Rituximab to kick in. Thanks
Hello 👋 I’m a bit curious as to how long does it take for Rituximab to kick in. Thanks
ks1966
in
NRAS
3 years ago
Rituximab infusion with a cold? 🤧
Morning Peeps 😊 So...first week back at school/work after over a year of shielding, and I have a pesky cold! 🤧😏 I am due to have my first Rituximab infusion this Monday - in 3 days time, this being day 1. Should I have my infusion?
Morning Peeps 😊 So...first week back at school/work after over a year of shielding, and I have a pesky cold! 🤧😏 I am due to have my first Rituximab infusion this Monday - in 3 days time, this being day 1. Should I have my infusion?
Moomin8
in
NRAS
3 years ago
Please help........new patient
Diagnosed Dec 2021 with ITP. Have tried Prednisone, IVIG, Dexamethasone Revolade and now Rituximab. My platelets have always been 100-137 prior to Dec. I had a very bad bladder infection and platelets dropped to 1 and have not recovered. I have had no episodes of bleeding. Could I have been misdiagnosed
Diagnosed Dec 2021 with ITP. Have tried Prednisone, IVIG, Dexamethasone Revolade and now Rituximab. My platelets have always been 100-137 prior to Dec. I had a very bad bladder infection and platelets dropped to 1 and have not recovered. I have had no episodes of bleeding. Could I have been misdiagnosed
Bradyella
in
ITP Support Association
3 years ago
Antibody testing
Does anyone know if we can ask for testing anywhere? I had FCR in 2018 and of course have had both jabs. I’d love to know if I have any antibodies. Thanks
Does anyone know if we can ask for testing anywhere? I had FCR in 2018 and of course have had both jabs. I’d love to know if I have any antibodies. Thanks
Mandy56
in
CLL Support
3 years ago
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