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JAK inhibitors vs Tocilizumab vs Rituximab - side effects worry
Help & suggestions please! I need to get off Humira and my Rheumatologist has suggested these 3 options. I have looked at versusarthritis.com and the list of side effects scares me. Especially the shingles. Can anyone please shed any light on how bad the side effects and your personal experience? I am
Help & suggestions please! I need to get off Humira and my Rheumatologist has suggested these 3 options. I have looked at versusarthritis.com and the list of side effects scares me. Especially the shingles. Can anyone please shed any light on how bad the side effects and your personal experience? I am
UpandDown
in
NRAS
3 years ago
Frontline treatment of Chronic Lymphocytic Leukemia (CLL/SLL) in 2021
JCO Oncology Practice has recently published two important papers: a clinical review article by Elizabeth A Brem MD and Susan O'Brien MD and a commentary by Nitin Jain MD which outline the current frontline therapies for CLL. Nitin Jain's excellent summary, titled '
[i]Evolving Treatment Paradigm
JCO Oncology Practice has recently published two important papers: a clinical review article by Elizabeth A Brem MD and Susan O'Brien MD and a commentary by Nitin Jain MD which outline the current frontline therapies for CLL. Nitin Jain's excellent summary, titled '
[i]Evolving Treatment Paradigm
CLLerinOz
Administrator
in
CLL Support
3 years ago
After Rituximab
Finally had my 2 infusions of Ritixamub, feeling better, pain wise, but it has totally wiped me out. Anyone else had this after effect.? My very first infusion was only half dose because of side effects, my next infusion was 8 months later, when I had full dose. This time, I have had 2 doses, 2 weeks
Finally had my 2 infusions of Ritixamub, feeling better, pain wise, but it has totally wiped me out. Anyone else had this after effect.? My very first infusion was only half dose because of side effects, my next infusion was 8 months later, when I had full dose. This time, I have had 2 doses, 2 weeks
Callabag64
in
NRAS
3 years ago
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First dose of Rituximab
Another 12 days and I’m due to go for my first Rituximab infusion. I’ve been quite happy on methotrexate and enteracept (embrel then benapali) injections for many years. Then I had severe pneumonia which left me with an interstitial lung disease. So Thorasics have told Rheumatolgy to take me off Methotrexate
Another 12 days and I’m due to go for my first Rituximab infusion. I’ve been quite happy on methotrexate and enteracept (embrel then benapali) injections for many years. Then I had severe pneumonia which left me with an interstitial lung disease. So Thorasics have told Rheumatolgy to take me off Methotrexate
Lotphie
in
NRAS
3 years ago
Statins and Rituximab
Has anyone been advised to have Statins with Rheumatoid Arthritis , and on a biologic like Rituximab, did you experience any side effects?
Has anyone been advised to have Statins with Rheumatoid Arthritis , and on a biologic like Rituximab, did you experience any side effects?
-Mii
in
NRAS
3 years ago
Immunocompromised can develop a good immune response after vaccination against SARCoV-2
Patients suffering from an autoimmune disease often require treatment that dampens their immune system. This group of patients is therefore particularly prone to severe courses of COVID-19. It was hitherto unclear whether a SARS-CoV-2 vaccination guarantees an adequate response, particularly in patients
Patients suffering from an autoimmune disease often require treatment that dampens their immune system. This group of patients is therefore particularly prone to severe courses of COVID-19. It was hitherto unclear whether a SARS-CoV-2 vaccination guarantees an adequate response, particularly in patients
2greys
in
Lung Conditions Community Forum
3 years ago
Nplate experiences please
Hi all, was going to start rituximab but hemo wants to try Nplate first. Has anyone had a good / bad experience with this? Thanks
Hi all, was going to start rituximab but hemo wants to try Nplate first. Has anyone had a good / bad experience with this? Thanks
Loftyc
in
ITP Support Association
3 years ago
Blood tests
Can I ask you all a fairly simple question how often should I have my blood profiling carried out. I was diagnosed in May ANCA positive with GPA Spent over 2 weeks in hospital and have completed my Rituximab treatment next one is due in November. I am currently on 15mg steroids and long term antibiotics
Can I ask you all a fairly simple question how often should I have my blood profiling carried out. I was diagnosed in May ANCA positive with GPA Spent over 2 weeks in hospital and have completed my Rituximab treatment next one is due in November. I am currently on 15mg steroids and long term antibiotics
Hidden
in
Vasculitis UK
3 years ago
THE 2021 EUROPEAN GROUP ON GRAVES' ORBITOPATHY (EUGOGO) CLINICAL PRACTICE GUIDELINES FOR THE MEDICAL MANAGEMENT OF GRAVES' ORBITOPATHY
Despite brexit, this group includes the UK and has two members located in UK hospitals. [i]Eur J Endocrinol . 2021 Jul 1;EJE-21-0479.R1. doi: 10.1530/EJE-21-0479. Online ahead of print.
THE 2021 EUROPEAN GROUP ON GRAVES' ORBITOPATHY (EUGOGO) CLINICAL PRACTICE GUIDELINES FOR THE MEDICAL MANAGEMENT
Despite brexit, this group includes the UK and has two members located in UK hospitals. [i]Eur J Endocrinol . 2021 Jul 1;EJE-21-0479.R1. doi: 10.1530/EJE-21-0479. Online ahead of print.
THE 2021 EUROPEAN GROUP ON GRAVES' ORBITOPATHY (EUGOGO) CLINICAL PRACTICE GUIDELINES FOR THE MEDICAL MANAGEMENT
helvella
Thyroid UK
in
Thyroid UK
3 years ago
The Leukemia & Lymphoma Society’s National Patient Registry COVID-19 vaccination antibody results - published today (Greenberg et al)
As a valued member of The Leukemia & Lymphoma Society’s National Patient Registry, a project of the Michael J. Garil Patient Data Collective, we wanted you to be among the first to know about COVID-19 vaccination antibody results we published today (Greenberg et al., 2021). https://i7.t.hubspotemail.net
As a valued member of The Leukemia & Lymphoma Society’s National Patient Registry, a project of the Michael J. Garil Patient Data Collective, we wanted you to be among the first to know about COVID-19 vaccination antibody results we published today (Greenberg et al., 2021). https://i7.t.hubspotemail.net
lankisterguy
Volunteer
in
CLL Support
3 years ago
MRD blood tests post FCR
As I was part of the Flair trial here in the UK, I see the trial team every six months for monitoring. Today, for the first time the consultant said they are doing MRD blood testing to check if there are any miniscule amounts of CLL. I had FCR in 2018. Telephone consultation in 4-6 weeks when results
As I was part of the Flair trial here in the UK, I see the trial team every six months for monitoring. Today, for the first time the consultant said they are doing MRD blood testing to check if there are any miniscule amounts of CLL. I had FCR in 2018. Telephone consultation in 4-6 weeks when results
Mandy56
in
CLL Support
3 years ago
Antihistamine Use for Insect Bites
I thought it was about time I posted, and first explain I’m on the home straight of my journey through the 7 year FLAIR trial, with my last review due this December, and I’m still in good remission (I’m in the FCR Chemoimmunotherapy arm of the trial) . . . I’ve found out in the last two years that I’
I thought it was about time I posted, and first explain I’m on the home straight of my journey through the 7 year FLAIR trial, with my last review due this December, and I’m still in good remission (I’m in the FCR Chemoimmunotherapy arm of the trial) . . . I’ve found out in the last two years that I’
Ernest2
in
CLL Support
3 years ago
Face to face appointment with rheumatology nurse today....I stamped my painful feet (metaphorically speaking)
Evening Peeps 🙂 Well, what day! Lots of 😭lots of speaking my mind and lots of demands - I'd had enough! I saw my rheumatology clinical nurse who I usually see nowadays - she's lovely. She asked me how I was....that was it - I just burst into floods of tears 😭😭I'm always wobbly when anyone asks
Evening Peeps 🙂 Well, what day! Lots of 😭lots of speaking my mind and lots of demands - I'd had enough! I saw my rheumatology clinical nurse who I usually see nowadays - she's lovely. She asked me how I was....that was it - I just burst into floods of tears 😭😭I'm always wobbly when anyone asks
Moomin8
in
NRAS
3 years ago
STELLAR Trial in the UK for Richter's
Just a reminder that there is a UK trial at 17 centres around the UK for patients who have a Richter's transformation of their CLL. The usual treatment for Richter’s syndrome is R-CHOP. This is a combination of chemotherapy drugs and a targeted drug called rituximab. This treatment can help and cure
Just a reminder that there is a UK trial at 17 centres around the UK for patients who have a Richter's transformation of their CLL. The usual treatment for Richter’s syndrome is R-CHOP. This is a combination of chemotherapy drugs and a targeted drug called rituximab. This treatment can help and cure
Jm954
Administrator
in
CLL Support
3 years ago
Venetoclax
Not sure you would remember but I posted on here just over 2 years ago after a dreadful experience with FCR. My numbers have been steadily going up and it was decided that I start another treatment. As you can imagine I was very apprehensive after my last experience. Well, I started Venetoclax just
Not sure you would remember but I posted on here just over 2 years ago after a dreadful experience with FCR. My numbers have been steadily going up and it was decided that I start another treatment. As you can imagine I was very apprehensive after my last experience. Well, I started Venetoclax just
Racing1961
in
CLL Support
3 years ago
Fed up with my feet 😒🦶🦶
Hi Peeps, I am getting really fed up with my bloomin' feet!! 😖 Every day they are sooo sore. Today it's my left ankle/top of feet area, the other day it was the same on my right foot! It is hot and swollen. Which ever way it is, I can hardly stand, let alone walk. I was allowed a week of 20mg Prednisolone
Hi Peeps, I am getting really fed up with my bloomin' feet!! 😖 Every day they are sooo sore. Today it's my left ankle/top of feet area, the other day it was the same on my right foot! It is hot and swollen. Which ever way it is, I can hardly stand, let alone walk. I was allowed a week of 20mg Prednisolone
Moomin8
in
NRAS
3 years ago
Just when you thought CLL was enough to deal with! advice on BTK inhibitors and Heart Attack Meds interactions?
Since my last post, informing that I had come out of a 4 year remission, after FCR, I have been monitored for my ALC and lymph node enlargement. After 6 months my ALC had reached 24 and some spleen and node enlargement . My Haematology team suggested I would not need treatment this year. However,
Since my last post, informing that I had come out of a 4 year remission, after FCR, I have been monitored for my ALC and lymph node enlargement. After 6 months my ALC had reached 24 and some spleen and node enlargement . My Haematology team suggested I would not need treatment this year. However,
Rich316
in
CLL Support
3 years ago
Is FCR a treatment of the past?
Hello, I’m about to have my first line of treatment and there are so many options out there. (Very lucky) i have all the good mutation markers. I am leaning towards have venetoclax to start with , what’s the thoughts on this? as want to give my body the best opportunity possible. Is this the right path
Hello, I’m about to have my first line of treatment and there are so many options out there. (Very lucky) i have all the good mutation markers. I am leaning towards have venetoclax to start with , what’s the thoughts on this? as want to give my body the best opportunity possible. Is this the right path
Driverps1
in
CLL Support
3 years ago
Do Biosimilars work as well?
Just wondering if anyone has noticed any difference if they have been changed over to a biosimilar infusion. I have been on Rituximab for around 8 years now and over the last few infusions I have noticed that they don't seem to work as well. It may be because I have been on it so long that it isn't
Just wondering if anyone has noticed any difference if they have been changed over to a biosimilar infusion. I have been on Rituximab for around 8 years now and over the last few infusions I have noticed that they don't seem to work as well. It may be because I have been on it so long that it isn't
mille
in
NRAS
3 years ago
Help with newly diagnosed ITP husband
Where do I start? 11 days ago my husband woke up feeling unwell with a rash over his body and having nosebleeds. He was rushed to hospital and said his platelets were at 1. This was new to us. And they said it was probably ITP. He was also feeling unwell with fevers. They started him on steroids and
Where do I start? 11 days ago my husband woke up feeling unwell with a rash over his body and having nosebleeds. He was rushed to hospital and said his platelets were at 1. This was new to us. And they said it was probably ITP. He was also feeling unwell with fevers. They started him on steroids and
Dominiquegriff
in
ITP Support Association
3 years ago
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