MRD blood tests post FCR

[Mandy56]

As I was part of the Flair trial here in the UK, I see the trial team every six months for monitoring. Today, for the first time the consultant said they are doing MRD blood testing to check if there are any miniscule amounts of CLL. I had FCR in 2018. Telephone consultation in 4-6 weeks when results back from Sheffield test centre.

This has not happened before and now I’m starting to worry. Did he see something in my routine blood tests or is this standard in the Flair trial? Does anyone have any similar experience or explanation to offer?

[JigFettler Volunteer]

Hiya!

This sounds a routine FLAIR thing. Making you wait probably a function of test turn around.

What was your last Lymphocyte count?

Jig

[Mandy56 in reply to JigFettler]

Hi John 🙂 lymphocytes 0.9 today.

[JigFettler Volunteer in reply to Mandy56]

Good!

[Newdawn Administrator]

Mandy, I think the best thing to do is ring your trial co-ordinator in the morning and ask if this is part of trial protocol or a clinical decision.I’m on the Flair trial and have a flow test (which is what they’re doing), every 6 months. However, I’m on the I&V arm (since Feb ‘19).

Your ALC sounds ok. Presumably no errant levels were mentioned?

Newdawn

[Mandy56 in reply to Newdawn]

Thanks Newdawn, I will. He said all my bloods were fine and stable, are my liver and kidney are ok.

[LeoPa in reply to Mandy56]

Don't let your imagination run laps around you. Stable bloods plus liver and kidney okay. That is what at least 50% of the inhabitants of this planet would be happy to be able to tell about themselves 😄

[very]

My husband completed FCR 2016 and has had 3 blood tests where they go to Leeds for testing. He is having another in February they are just part of the trial. Hopes this helps.jenny uk

[Mandy56 in reply to very]

Thanks Jenny. That really helps. X

[Mandy56 in reply to very]

I know! I just fear a relapse, but everyone’s reassurance has helped. I will call the team as well and then put it out of my mind.