Hi everyone, I joined a few weeks ago and have found the reading enlightening , thank you. This is my first post , seeking some info about your experiences with V.
I am just on 8 months thru the program, of ramp up Venetoclaxfor a month, then 6 mths of monthly Rituximab infusion and continuing V for 2 years.
Except for an initial bout of fevers in week one of V, and with that a recurrence of atrial fibrillation (deriving from FCR five years) everything has gone smoothly except a bit of nausea. The AF was corrected in Dec and the last month or so have been becoming more energetic.
Until early this morning, when I had heavy nausea, fainted twice without warning (fortunately without injury) and vomited , so off to the emergency dept (which is conveniently only 0.5km away from home).
The ECG, Bp, pulse check etc are all good. I’ve been checked in overnight and heart is on monitor. Tomorrow my heart specialist will come by and co-incidentally it’s my haemo appointment so he will see me here in hospital as well. In the meantime I’m interested to gather your experiences.
Low BP is in the manufacturers list of possible Venetoclax side effects and the Mayo clinic also lists fainting & dizziness.
Has anyone out there had a similar experience ?
Thanks for reading and warm wishes to you all .
Lester