Angel54

[Angels54]

Hi anyone experienced anything similar ,been on Abatacept about two year ,since having my Covid vaccine and antibiotics for chest infection about two month ago I have felt so unwell, I am currently on 20 mg steroids and all I’m experiencing is pain everywhere and burning pain all over body . Last time I felt like this I had Rituximab infusion and had bad reaction.

Any advice ?

[sylvi]

HAve you spoken to anyone about this if not i think you should.xxx

[Fra22-57]

Maybe the Abatacept has stopped working for you.Try getting an appointment with your rheumatologist to talk about what you are experiencing and you might be moved onto something else.

[L-ttie]

Hi there I’m sorry you’re having a rough time with your RA.Ive had constant flare ups since my 3rd vaccine in October.This last one since beginning of Jan.Last week I ccontacted my Rheumy nurse who then made an appointment for a Clinical nurse to ring me.Coukdnt believe it all happened within 2days of phoning.

Basically she’s upped my MTX dose and advised me to take more Naproxen and Paracetamol until the increased dose kicks in.

Both nurses said that they had seen an increase in people experiencing flare ups since the autumn when we were having our 3rd/boosters.Most people seemed to settle down quite soon but a few are still struggling on.So I think it’s worth getting in touch with your Rh nurse or consultant to see what help and advise they can give.

Wishing you well very soon.A bit of warm sunshine would help too!

[Annieb24]

Yes - 6 weeks since vaccine and feeling like you.

[oldtimer2]

This is a problem for your rheumy team. It sounds as if you need might need a change of treatment.

[Happy5]

Bit of a rock and hard place situation, the vaccine does set off flares, the body is increasing antibodies , etc, so the condition increases. Your being on antibiotics for an infection again the body using immune system to fight it. All this sets off our RA symptoms too. In my case had steroid ijection each time to dampen symptoms.

Had a very erratic time for 18 months taking my MTX so my RA symptoms became like they were when I first I developed it.

Managing to take MTX injection regularly finally and my symptoms feel more controlled.

No harm for you to contact your RA team.

Feel for ya hope you recover soon.

[medway-lady]

I thought the Abatercept could make chest affects worse so you should contact the RA team asap and take professional advice.