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upset stomach
Hi I have HUVS .After rituximab l have generally improved . This is my fourth set of rituximab infusions . However each time I have suffered from upset and painful stomach pains . This does not kick in until four months after treatment. I had had this symptom before l was diagnosed so l know it’s the
Hi I have HUVS .After rituximab l have generally improved . This is my fourth set of rituximab infusions . However each time I have suffered from upset and painful stomach pains . This does not kick in until four months after treatment. I had had this symptom before l was diagnosed so l know it’s the
artists
in
Vasculitis UK
2 years ago
CLL symptoms and Obin reactions
Hi I was diagnosed with CLL 12 years ago while doing evaluations for worsening muscle pain for 10 years My oncologists say and I’ve never found any literature about any correlation between CLL and muscle pain. What do any group members know about it Next I remember feeling sick and have spleen
Hi I was diagnosed with CLL 12 years ago while doing evaluations for worsening muscle pain for 10 years My oncologists say and I’ve never found any literature about any correlation between CLL and muscle pain. What do any group members know about it Next I remember feeling sick and have spleen
skipro
in
CLL Support
1 year ago
Relapse/Refractory CLL
Hi All, At my last appointment w/CLL specialist, in December, he noted that my CLL appears to be becoming active again and I'll likely need treatment again this year. :( Instead of the usual 6-months, he set our next appointment for 3-months, which is coming up this week. So, of course, I've been
Hi All, At my last appointment w/CLL specialist, in December, he noted that my CLL appears to be becoming active again and I'll likely need treatment again this year. :( Instead of the usual 6-months, he set our next appointment for 3-months, which is coming up this week. So, of course, I've been
TeamDirtyBoots
in
CLL Support
1 year ago
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Life after Rituximab? What is the next chapter?
Diagnose with GPA in December 2019 and after the usual cocktail of Steroids Cyclophosphamide and an unsuccessful spell with Azathioprine I now approach my next infusion of Rituximab in a couple of weeks. My Consultant is saying because my ANCA marker is so low this should be my last one. So what happens
Diagnose with GPA in December 2019 and after the usual cocktail of Steroids Cyclophosphamide and an unsuccessful spell with Azathioprine I now approach my next infusion of Rituximab in a couple of weeks. My Consultant is saying because my ANCA marker is so low this should be my last one. So what happens
Investigator1
in
Vasculitis UK
2 years ago
Rituximab
Good morning…it’s 5.00 and it appears to be Duracell bunny time after my second Rituximab infusion yesterday! Please can I ask you lovely people on RTX a couple of questions. My rheumatology department is hard to get hold off at the best of times and I would rather have opinions from fellow RA ‘warriors
Good morning…it’s 5.00 and it appears to be Duracell bunny time after my second Rituximab infusion yesterday! Please can I ask you lovely people on RTX a couple of questions. My rheumatology department is hard to get hold off at the best of times and I would rather have opinions from fellow RA ‘warriors
Nordywalker
in
NRAS
2 years ago
Rituximab
Im about to have my first infusion of rituximab. Can anyone who has been on it tell me if they've had many infections as a result? And have they cut out certain foods that are known to be risky i.e paté, soft cheeses etc?
Im about to have my first infusion of rituximab. Can anyone who has been on it tell me if they've had many infections as a result? And have they cut out certain foods that are known to be risky i.e paté, soft cheeses etc?
BernardBear
in
NRAS
2 years ago
All good things must come to an end
I just had my 3 month checkup and it looks like my Ibrutinib is starting to stop keeping my counts in check. They have not gone crazy but have been slowing rising this past year and actually doubled over a 6 month period. My Doctor thinks it's probably good to look at another treatment while I am still
I just had my 3 month checkup and it looks like my Ibrutinib is starting to stop keeping my counts in check. They have not gone crazy but have been slowing rising this past year and actually doubled over a 6 month period. My Doctor thinks it's probably good to look at another treatment while I am still
rcusher
in
CLL Support
2 years ago
Loxo305 trial
Is anyone currently enrolled in this trial? My doctor mentioned this as maybe an option besides V&O. I looked at it but apparently there are several phases, this is the one we are looking at: BRUIN CLL-322: a Phase 3 open-label, randomized study of fixed duration pirtobrutinib (LOXO-305) plus venetoclax
Is anyone currently enrolled in this trial? My doctor mentioned this as maybe an option besides V&O. I looked at it but apparently there are several phases, this is the one we are looking at: BRUIN CLL-322: a Phase 3 open-label, randomized study of fixed duration pirtobrutinib (LOXO-305) plus venetoclax
Alex830
in
CLL Support
2 years ago
Rituximab
I’ve just had my 2nd infusion of rituximab and not had any benefits from it yet. Before my infusion I was on 15 mil but be told to come off them but as soon as I get to 10 I’m just breathless and no energy . Has any one had this drug and how long does it take to work and how long it takes to come off
I’ve just had my 2nd infusion of rituximab and not had any benefits from it yet. Before my infusion I was on 15 mil but be told to come off them but as soon as I get to 10 I’m just breathless and no energy . Has any one had this drug and how long does it take to work and how long it takes to come off
Laceygreen
in
NRAS
2 years ago
CLL and Covid experiences
Hi, I am 65, have relapsed CLL after FCR treatment, made no antibodies to 6 Covid vaccinations. Otherwise I am healthy and physically very active. I'm so tire of the mask everywhere and so is my wife. Can anyone tell me if they have had Covid and how it went for them? Or anyone that can
Hi, I am 65, have relapsed CLL after FCR treatment, made no antibodies to 6 Covid vaccinations. Otherwise I am healthy and physically very active. I'm so tire of the mask everywhere and so is my wife. Can anyone tell me if they have had Covid and how it went for them? Or anyone that can
skipro
in
CLL Support
1 year ago
CAR T-cell Therapy Drives Disease Remission For 5 SLE Patients
B-cells disappeared from the bloodstream two days after infusion, results showed by Lindsey Shapiro | October 24, 2022 A CAR T-cell therapy targeting disease-driving immune cells safely led to sustained disease remission for five people with systemic lupus erythematosus (SLE) who’d previously failed
B-cells disappeared from the bloodstream two days after infusion, results showed by Lindsey Shapiro | October 24, 2022 A CAR T-cell therapy targeting disease-driving immune cells safely led to sustained disease remission for five people with systemic lupus erythematosus (SLE) who’d previously failed
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Covid without Rituximab - Any Similar Experiences
We’ll here’s a strange one! I was at the Hospital today having my 3 monthly bloods in prep for my Rituximab in November. Sat in the waiting area was a bloke who at the same times as me was starting his treatment of Rituximab, so general hit chat “how you getting on mate” that kind of thing and it just
We’ll here’s a strange one! I was at the Hospital today having my 3 monthly bloods in prep for my Rituximab in November. Sat in the waiting area was a bloke who at the same times as me was starting his treatment of Rituximab, so general hit chat “how you getting on mate” that kind of thing and it just
Investigator1
in
Vasculitis UK
2 years ago
Anyone on here with severe lung nodules caused by RA? or if a biologic?anything has helped ........am desperate.
Is there anyone on here that can offer help or advice about the above. My husband has been hospitalised for the last 2 months with a collapsed lung that was only spotted on a CT scan. (He didn't even know he had it but had been losing weight/felt ill and still coughing after 3 years). Still has drain
Is there anyone on here that can offer help or advice about the above. My husband has been hospitalised for the last 2 months with a collapsed lung that was only spotted on a CT scan. (He didn't even know he had it but had been losing weight/felt ill and still coughing after 3 years). Still has drain
Rockky
in
NRAS
2 years ago
Rituximab for Rheumatoid Vasculitis
hi,. I have Rheumatoid Vasculitis (diagnosed April 2022), RA, Peripheral Neuropathy and several lung problems. I had an infusion of Rituximab on June 2022 and have felt no improvement whatsoever. All my illnesses remain as bad as ever. Anyone else have Rheumatoid Vasculitis and had RTX and have noticed
hi,. I have Rheumatoid Vasculitis (diagnosed April 2022), RA, Peripheral Neuropathy and several lung problems. I had an infusion of Rituximab on June 2022 and have felt no improvement whatsoever. All my illnesses remain as bad as ever. Anyone else have Rheumatoid Vasculitis and had RTX and have noticed
sunshineday
in
Vasculitis UK
2 years ago
Struggling to understand all this.
Been dealing with KD for 1.5 years. My doctor has me on a variety of meds that includes-BP, Chol, Lasix,Farxiga,Eliquis, Cytoxan and Prednisone-plus a few more. Always tired. My current EGFR-49, my creatinine level is-1.47, and my urine/protein-14.34. I am suppose to start Rituximab Infusion as
Been dealing with KD for 1.5 years. My doctor has me on a variety of meds that includes-BP, Chol, Lasix,Farxiga,Eliquis, Cytoxan and Prednisone-plus a few more. Always tired. My current EGFR-49, my creatinine level is-1.47, and my urine/protein-14.34. I am suppose to start Rituximab Infusion as
Hidden
in
Kidney Disease
2 years ago
None bleeds
Has anyone on Rituximab and methotrexate experienced nose bleeds I'm trying to figure out if its related to the meds.
Has anyone on Rituximab and methotrexate experienced nose bleeds I'm trying to figure out if its related to the meds.
Youelbeverly
in
NRAS
2 years ago
What shall i do??
Hello, I,m René from holland. I get the diagnose cll in november 2019. I have a 11 ATM deletion, en unmutated. My blood results and a ct scan gives the reason to start a treatment. I will speak mij doctor next monday, then i hear probably what kind of treatment it will be. It’s amost sure it will
Hello, I,m René from holland. I get the diagnose cll in november 2019. I have a 11 ATM deletion, en unmutated. My blood results and a ct scan gives the reason to start a treatment. I will speak mij doctor next monday, then i hear probably what kind of treatment it will be. It’s amost sure it will
Renefaassen
in
CLL Support
1 year ago
CT thorax results: borderline lymphs
Hi everyone, My father has CLL/SLL from 2018 and had his first treatment at 2019 with Bendamustine and Rituximab because of very enlarged lymph nodes. After his treatment the lymph nodes decreaded to the original size. His blood values are in the normal range Last week he had a CT scan for his yearly
Hi everyone, My father has CLL/SLL from 2018 and had his first treatment at 2019 with Bendamustine and Rituximab because of very enlarged lymph nodes. After his treatment the lymph nodes decreaded to the original size. His blood values are in the normal range Last week he had a CT scan for his yearly
TOFK
in
CLL Support
2 years ago
Richters and DLBCL after CLL in 2013
After CLL diagnosed in 2013, unmutated, Trisomie 12, CD 38 neg., started FCR 6 cycles in Uni Clinic Cologne (Prof Hallek) up to 4/2014. MRD neg and CR. Then 9 years without therapy living well, no side effects. Now, in Oct 2023 the CLL quickly turned back with RT and tp 53, as well as DLBCL near stomach
After CLL diagnosed in 2013, unmutated, Trisomie 12, CD 38 neg., started FCR 6 cycles in Uni Clinic Cologne (Prof Hallek) up to 4/2014. MRD neg and CR. Then 9 years without therapy living well, no side effects. Now, in Oct 2023 the CLL quickly turned back with RT and tp 53, as well as DLBCL near stomach
seoul1949
in
CLL Support
1 year ago
Treatments for Lupus May Reduce Response to COVID-19 Vaccination
Lower response to vaccination translates to a higher risk of COVID-19 infection
by Lindsey Shapiro | October 6, 2022 Antibodies mounted against COVID-19 in the three to six months following vaccination were lower in patients undergoing treatment for lupus than in healthy people, a study has
Lower response to vaccination translates to a higher risk of COVID-19 infection
by Lindsey Shapiro | October 6, 2022 Antibodies mounted against COVID-19 in the three to six months following vaccination were lower in patients undergoing treatment for lupus than in healthy people, a study has
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
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