Search
Search
About
Log in
Join
Experiences with
Cetuximab
Posts
Communities
2,439 public posts
Filter results
CLL Society interview - Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023
Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023 https://cllsociety.org/2023/01/dr-shahzad-mustafa-on-what-it-means-to-be-immunocompromised-for-patients-with-cll-sll/ https://youtu.be/DSOKTmffc-s - In this interview, Dr. Brian Koffman spoke
Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023 https://cllsociety.org/2023/01/dr-shahzad-mustafa-on-what-it-means-to-be-immunocompromised-for-patients-with-cll-sll/ https://youtu.be/DSOKTmffc-s - In this interview, Dr. Brian Koffman spoke
lankisterguy
Volunteer
in
CLL Support
2 years ago
Starting Venetoclax next week
Hi everyone,I found out today that I am to start Venetoclax next week and Rituximab 6 weeks later for a total of 6 months. I was diagnosed in 2018, had 6 months of FCR in 2019 which went pretty smoothly except for severe Neutropenia. I feel fine and my bloods are within normal range. My TP53 is negative
Hi everyone,I found out today that I am to start Venetoclax next week and Rituximab 6 weeks later for a total of 6 months. I was diagnosed in 2018, had 6 months of FCR in 2019 which went pretty smoothly except for severe Neutropenia. I feel fine and my bloods are within normal range. My TP53 is negative
Floxxy
in
CLL Support
1 year ago
Heard of the Biologic Ocreluzimab (Ocrevus) used for treating MCTD/RA?
Happy New Year to all RA warriors. Onwards & upwards for 2023🙏 My daughter with MCTD was offered Ocreluzimab following a near anaphylactic reaction to the 2nd dose of the 2nd cycle of Rituximab in April 2021She had the 1st 2 primary infusion of Ocreluzimab in March 2022 with no ill effects & seemed
Happy New Year to all RA warriors. Onwards & upwards for 2023🙏 My daughter with MCTD was offered Ocreluzimab following a near anaphylactic reaction to the 2nd dose of the 2nd cycle of Rituximab in April 2021She had the 1st 2 primary infusion of Ocreluzimab in March 2022 with no ill effects & seemed
Wangpaupau
in
NRAS
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Immunocompromised
I’m currently in a clinical trial receiving infusions of a drug similar to rituximab, and therefore immunocompromised. I am a public employee and in a battle with my employer. I was working remotely for 2 years, and my job is easily accomplished remotely. They are now requiring me to come back full
I’m currently in a clinical trial receiving infusions of a drug similar to rituximab, and therefore immunocompromised. I am a public employee and in a battle with my employer. I was working remotely for 2 years, and my job is easily accomplished remotely. They are now requiring me to come back full
MsAmyM
in
Kidney Disease
2 years ago
Rituximab
Hi all!Can anyone tell me why rituximab treatments are restricted, I was told, to 2 years? I realise cost is involved, but I had my treatments in france, but was still refused it here in the uk. Back on Methotrexate now..
Hi all!Can anyone tell me why rituximab treatments are restricted, I was told, to 2 years? I realise cost is involved, but I had my treatments in france, but was still refused it here in the uk. Back on Methotrexate now..
sarahdollygirl
in
Vasculitis UK
2 years ago
Rituximab
Hi All, Happy New year to yin and aww. I'm scheduled for my first Rituximab infusion this week and getting cold feet ( second thoughts). Any advise and reassurance would be a great help Many thanks in advance. Kind Regards SfS
Hi All, Happy New year to yin and aww. I'm scheduled for my first Rituximab infusion this week and getting cold feet ( second thoughts). Any advise and reassurance would be a great help Many thanks in advance. Kind Regards SfS
sorefeetsoldier
in
Vasculitis UK
2 years ago
CLL Staging
Hello. My husband, Simon, was diagnosed with CLL several years ago and has been closely monitored. On his last visit to his consultant he was told that he needs to start treatment. Either Rituximab or Venetoclax. My husband is always dismissive of his condition and does not want to discuss with me
Hello. My husband, Simon, was diagnosed with CLL several years ago and has been closely monitored. On his last visit to his consultant he was told that he needs to start treatment. Either Rituximab or Venetoclax. My husband is always dismissive of his condition and does not want to discuss with me
Rocky0181
in
CLL Support
2 years ago
Latest bloodwork
My past 3 cbc's have shown a rise in specific areas that seem to indicate that I'm no longer in remission. I'm hoping I can attach results as I have questions about some elements. I have been on a low dose of (140mg) for the past 5 years and was previously treated with FCR in 2013. I will see my oncologist
My past 3 cbc's have shown a rise in specific areas that seem to indicate that I'm no longer in remission. I'm hoping I can attach results as I have questions about some elements. I have been on a low dose of (140mg) for the past 5 years and was previously treated with FCR in 2013. I will see my oncologist
rubberlegs68
in
CLL Support
1 year ago
Thank You All For Your Well Wishes- Happy New Year- The Best For us In 2023!
Thank you very much for checking- * it was compartment Syndrome * it did not go to surgery, we lowered the enoxaparin dose ( based on weight- should have been correct- but was never checked by my heme when I was switched from warfarin to enoxaparin 20 November even though I asked for it to be.
Thank you very much for checking- * it was compartment Syndrome * it did not go to surgery, we lowered the enoxaparin dose ( based on weight- should have been correct- but was never checked by my heme when I was switched from warfarin to enoxaparin 20 November even though I asked for it to be.
KellyInTexas
Administrator
in
Hughes Syndrome APS Forum
2 years ago
2022 - Reflection and Thank You
As I lay on the sofa this morning recovering from my latest infusion of Rituximab it dawned on me how far we have all come on these voyages we are all on. In different boats and in different parts of the sea in different conditions all trying to dock in the same port. A comfortable safe haven is all
As I lay on the sofa this morning recovering from my latest infusion of Rituximab it dawned on me how far we have all come on these voyages we are all on. In different boats and in different parts of the sea in different conditions all trying to dock in the same port. A comfortable safe haven is all
Investigator1
in
Vasculitis UK
2 years ago
A COVID Christmas
Greetings everyone. Having tested positive on Christmas Eve I was unable to go through the surgery to request the antivirals and had to go the 111 route which did not result in anything but a lot of frustration. Eventually someone called back and a doctor was very helpful in referring me to the antiviral
Greetings everyone. Having tested positive on Christmas Eve I was unable to go through the surgery to request the antivirals and had to go the 111 route which did not result in anything but a lot of frustration. Eventually someone called back and a doctor was very helpful in referring me to the antiviral
egre
in
Vasculitis UK
2 years ago
V + O , TP53 and p13
after a great read through the recent posts on V+ O I have some confusion 1 my doc said that with a TP 53 mutation and p13 deletion that Zanu was a better option than V+ O. Is that the consensus ? 2 It is a bit disappointing that the PFS for V+ O starts when treatment starts. Is that true of
after a great read through the recent posts on V+ O I have some confusion 1 my doc said that with a TP 53 mutation and p13 deletion that Zanu was a better option than V+ O. Is that the consensus ? 2 It is a bit disappointing that the PFS for V+ O starts when treatment starts. Is that true of
skipro
in
CLL Support
1 year ago
Progressed
I saw my oncologist today and he feels my CLL has started to progress. After being on IB for 3.5 yrs and Calquence for 6 months it’s time to say goodbye to my old BTK meds. He wants to do a CT scan and bone biopsy to be 100% sure the disease has progressed. If it has - has given me two options:
I saw my oncologist today and he feels my CLL has started to progress. After being on IB for 3.5 yrs and Calquence for 6 months it’s time to say goodbye to my old BTK meds. He wants to do a CT scan and bone biopsy to be 100% sure the disease has progressed. If it has - has given me two options:
steve_canada
in
CLL Support
2 years ago
Optimal Treatment Combinations in the Management of CLL/SLL Jeff Sharman, MD Provided by Clinical Care Options, LLC
Optimal Treatment Combinations in the Management of CLL/SLL Jeff Sharman, MD An installment of the educational program: Advances in Chronic Lymphocytic Leukemia Care: A Master Class for the Community Multidisciplinary Team
Key Takeaways
• Obinutuzumab is the preferred anti-CD20
Optimal Treatment Combinations in the Management of CLL/SLL Jeff Sharman, MD An installment of the educational program: Advances in Chronic Lymphocytic Leukemia Care: A Master Class for the Community Multidisciplinary Team
Key Takeaways
• Obinutuzumab is the preferred anti-CD20
lankisterguy
Volunteer
in
CLL Support
2 years ago
Covid Vaccine After Rituximab - Timimg
I must admit I am at a bit of a loss on this one due to the conflicting information I am getting. I had my last Rituximab in November and I have been offered another Covid Jab. Now I know the NHS system isn’t complexed enough to deduce timings however I have heard so many different timescales that determine
I must admit I am at a bit of a loss on this one due to the conflicting information I am getting. I had my last Rituximab in November and I have been offered another Covid Jab. Now I know the NHS system isn’t complexed enough to deduce timings however I have heard so many different timescales that determine
Investigator1
in
Vasculitis UK
2 years ago
Zanubrutinib PFS, ORR Is Superior to Ibrutinib for Relapsed/Refractory CLL/SLL
Zanubrutinib PFS (Progression Free Survival) , ORR (Overall Response Rate) Is Superior to Ibrutinib for Relapsed/Refractory CLL/SLL Jennifer R. Brown, MD, PhD https://www.onclive.com/view/zanubrutinib-pfs-orr-is-superior-to-ibrutinib-for-relapsed-refractory-cll-sll?utm_source=sfmc&utm_ Conference
Zanubrutinib PFS (Progression Free Survival) , ORR (Overall Response Rate) Is Superior to Ibrutinib for Relapsed/Refractory CLL/SLL Jennifer R. Brown, MD, PhD https://www.onclive.com/view/zanubrutinib-pfs-orr-is-superior-to-ibrutinib-for-relapsed-refractory-cll-sll?utm_source=sfmc&utm_ Conference
lankisterguy
Volunteer
in
CLL Support
2 years ago
dental work while on V + O
As a result of the issues below, it looks like my only strictly dental salvage is 1. Having 3 molar implants Plus 2. A major bridge reconstruction for my front upper and lower teeth During my FCR in 2018 I was neutropenic and my oncologist advised against any dental work I have since relapsed
As a result of the issues below, it looks like my only strictly dental salvage is 1. Having 3 molar implants Plus 2. A major bridge reconstruction for my front upper and lower teeth During my FCR in 2018 I was neutropenic and my oncologist advised against any dental work I have since relapsed
skipro
in
CLL Support
1 year ago
Fully Funded Ibrutinib is finally coming to New Zealand!
But not as first line therapy alas, though some haematologists may perhaps work around these conditions. Venetoclax + Rituximab is already fully funded here ""Ibrutinib to be funded in New Zealand People with chronic lymphocytic leukaemia (CLL) and certain clinical circumstances will have access to
But not as first line therapy alas, though some haematologists may perhaps work around these conditions. Venetoclax + Rituximab is already fully funded here ""Ibrutinib to be funded in New Zealand People with chronic lymphocytic leukaemia (CLL) and certain clinical circumstances will have access to
morepork
in
CLL Support
2 years ago
Severe Thigh Pain
I was diagnosed for CLL 12 months ago and had 6 courses of FCR Chemo which ended in August 22 . I have low immune system but feel ok, in the last month I have had severe thigh pain. I did have this during chem but was told due to the injections I had to support me through the period. Is it normal to
I was diagnosed for CLL 12 months ago and had 6 courses of FCR Chemo which ended in August 22 . I have low immune system but feel ok, in the last month I have had severe thigh pain. I did have this during chem but was told due to the injections I had to support me through the period. Is it normal to
Hrdy
in
CLL Support
1 year ago
Covid-19 vaccine.
I only took one dose of the vaccine because I used rituximab. Someone goes through this too. The information I have is to take it only six months after rituximab, but my treatment is every six months, which ends up not giving time to take it because of the treatment interval. How did you do?
I only took one dose of the vaccine because I used rituximab. Someone goes through this too. The information I have is to take it only six months after rituximab, but my treatment is every six months, which ends up not giving time to take it because of the treatment interval. How did you do?
Bolinha99
in
Encephalitis International
2 years ago
1
...
12
13
14
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
990 results
NRAS
554 results
Vasculitis UK
325 results
View top 10 communities
Sort by
Most Relevant
Newest