* it did not go to surgery, we lowered the enoxaparin dose ( based on weight- should have been correct- but was never checked by my heme when I was switched from warfarin to enoxaparin 20 November even though I asked for it to be.
I’ve had some damage to ankle- a bit of foot drop and nerve pain - should heal.
Pulse was lost in ankle and foot went blue / white . Doctor described as ashy- as did the leg.
Will take a little time.
Felt like I had a very bad body flu for about three weeks. My rheumatologist put me in immediate emergency rituximab infusion.
I gave compartment syndrome a very bad Yelp review on line- do not recommend.
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KellyInTexas
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Hi Kelly,So happy to hear found issue and your recovering. Nuroplasticity exercise can help and can be done at home. Brain plasticity, is the ability of neural networks in the brain to change through growth and reorganization. It is when the brain is rewired to function in some way that differs from how it previously functioned.
Message me if interested to know more my friend. Big hugs and Happy new year 🎉
It looks as though you will have to 'upsize' your footwear!! Glad you're home but what a crazy Christmas you've had. My Rheumy thinks I get weird symptoms-bet he's glad he hasn't got you for a patient! My Clexane is dosed according to AntiXa results and no more double vision or other weird things happening to me.
Hope that swelling goes down quickly and lasting relief comes your way.
Glad to read you made some progress. your gitte up an dun is taking an earned vacation. you'll gette up agin soon. In the meantime, stay safe. Stay optimistic. You have a planet wide team rooting for you!
And every day I am thankful that you finally identified my allergy to PEGs. Now I can use, ot disgard over the counters by reading the label. No waiting to see if I begin to cough or develop a rash! Thank you!
this highly specific village- our “tribe” in which only we can “vibe.”
Who the heck else could possibly speak such a weird language? “Hey, anyone feeling tingly, and having livedo? Loosing memory ? Wonder what my INR or comparable a fXa is? Maybe I just need spinach or possibly a brain scan.”
What a crummy ride, and still a ways to go to full recovery, so let your inner Texan shine. You’re a fighter, that’s a very good thing. So glad you could avoid surgery and you have a good team of doctors.
You have a lot of people pulling for you. Thanks for the update!
Thank you. We’ve all learned here that this illness teaches us to dig for inner strength we each of us have- and it really does help having this “second family” here, our forum, to lend support.
I’ve said so many times that because it is so rare, it’s a gift to be able to connect with people/ friends here who truly do understand.
We can not only feel heard and understood, but we can often learn so much , even small nuances, with the understanding that some, most, or none of it might apply… at least for now. But like squirrels gathering nuts for another day in need, so must we . ( except all the love , prayers, well wishes, hugs- we can take those right away and put to wonderful use immediately! 🥰)
So pleased you have been finally properly diagnosed and treated.
You are such a knowledgable and supportive member your humour and advice have been sorely missed.
Sorry it may be a while for things to get back to your "normal" but at last you can now put this episode behind you.
You know your own body better than anyone and probably have more information on APS than some of the doctors treating you. Hopefully it will be WRIT LARGE on your notes.
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Reintroducing myself
Anti-coagulants and induction
Meds
Left side Face, arm & leg went numb - not convinced a&e have handle this right
Bruising after kick from horse
