BK Virus

[metalminded]

Hello everyone,

I'm curious how you have been treated by your transplant team if you have or have had the BK virus.

I've been on 2.5mg of Prednisone and 4mcg of tacrolimus to keep my immune system fighting it. I originally had an IV of IVIG, then was doing another IV (don't recall the medication) every 2 weeks and did that for nearly a year. I was on Levofloxacin 500mg, every day then every other day.

BK was discovered not very long after my transplant. It did significant damage to my kidney but it's still plugging along today after 11 years. I live with a creatinine around 2.5 but varies a bit.

I'm very interested to learn about everyone else's experience with BK.

Thank you!

[Winner76]

Hi, I got the BK virus soon after transplant aswell. I was on steroid , tacro and myforyte . They just stopped Myfortye and I never went back on it. That sorted it out, My levels went from 58,000 to normal ish . Doing well 5 years later.

[metalminded in reply to Winner76]

That's great! When I first got my transplant, I was on myfortic, bactrim, and prednisone. Myfortic bothered my stomach a lot. I was taken off both of those and just started tacrolimus and prednisone.

My BK finally, and literally just a year ago, stopped showing in my blood but still in my urine. My most recent lab from 2 weeks ago now has it at a very low level in my blood. It is very upsetting because it if does any damage, my kidney will be done. I abhor the thought of going back on dialysis.

[Winner76 in reply to metalminded]

That’s really good that it’s low now . I ended up with steroid enduced Diabetes , that really pee’d me off ! I get it, I was on dialysis for 8 years so I hope my kidney stays well as long as possible . I hope the same for you.

[metalminded]

I was on for 6 years. Most of it was PD at home.

I have type 2 diabetes as well. Very annoying I can agree with you!!

I never had it before about 2 years ago.