I was dx with CLL in 2015 and have been on w& w since. Most of the time I feel fine and I don't remember I have it. My WBC climbed by 1000's with every checkup since then, but not rapidly enough to warrant treatment. Then, mysteriously, for the last year ( one checkup every 4 mos), my WBC started going down. By 1000's. It's still abnormally high but the decrease is notable and my dr can't explain it. Other than my platelet numbers that keep decreasing, my other numbers are basically ok. However I started spending a great deal of time with my little grandkids (ages 1&3) at this same time and blame them for the constant colds coughs etc that I've had constantly since last Sept. When I complained to my Dr about not b ale to get rid of these colds, he decided I was a good candidate for IvIg infusion therapy to try and boost my resistance. I had my first infusion in Dec and within about 10 days my cold was almost completely gone. So wonderful. My IgG serum level rose from the 100's to almost 600! My WBC rose too, but not significantly. Had my 2nd infusion about 10 days ago and felt fine until 2 days ago when the exact same damn cold symptoms reappeared and have knocked me back. I know the infusions are intended to help my body fight, not necessarily be a cure but it's disturbing to be sick again so soon.
My questions are
Has anyone experienced a similar continually decreasing WBC and received an explanation?
Does the fact that I've come down with this same crap cold mean that the second infusion didn't work?
I've searched the forums for IvIg therapy info but haven't found answers to these questions. I'd welcome any and all comments. Thanks.
