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Advice for when GP won't act?
Hi guys, I've now had a second intrinsic factor antibody test (privately). Both my private tests came out positive for IF, but the middle test I took, which was with the NHS, came out negative. The GP though thinks I have chronic fatigue syndrome as my cells are normal size and B12 blood levels are coming
Hi guys, I've now had a second intrinsic factor antibody test (privately). Both my private tests came out positive for IF, but the middle test I took, which was with the NHS, came out negative. The GP though thinks I have chronic fatigue syndrome as my cells are normal size and B12 blood levels are coming
JSD100
in
Pernicious Anaemia Society
3 years ago
5 Books That Have Helped Me
Here are 5 books that have helped me navigate my way through afib as a “lifestyler”, as I manage and reduce (and hopefully someday eliminate) my afib through lifestyle changes. There are of course many other books and resources out there for us. I hope other people here will add their own favorites.
Here are 5 books that have helped me navigate my way through afib as a “lifestyler”, as I manage and reduce (and hopefully someday eliminate) my afib through lifestyle changes. There are of course many other books and resources out there for us. I hope other people here will add their own favorites.
PlanetaryKim
in
AF Association
3 years ago
Just an update....
I bought myself a lovely new oil burner. I've got lots of essential oils and am trying different ways to relax. I have been watching video clips today of Yoga for the wheelchair bound. Really informative and I think I've found a good lady to help me get started. So I'll let you know how I get on, should
I bought myself a lovely new oil burner. I've got lots of essential oils and am trying different ways to relax. I have been watching video clips today of Yoga for the wheelchair bound. Really informative and I think I've found a good lady to help me get started. So I'll let you know how I get on, should
Bronn
in
LUPUS UK
3 years ago
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Test Results
Hello everyone In brief - I have been suffering quite a few symptoms relating to Lupus for sometime and as I have private medical insurance was able to get an appointment quickly. Saw the rheumatologist 2 weeks ago and had bloods and x-rays of feet, hands and chest. Today I had my follow-up and all my
Hello everyone In brief - I have been suffering quite a few symptoms relating to Lupus for sometime and as I have private medical insurance was able to get an appointment quickly. Saw the rheumatologist 2 weeks ago and had bloods and x-rays of feet, hands and chest. Today I had my follow-up and all my
DJEligio
in
LUPUS UK
3 years ago
Remedies for Parkinson's constipation
This subject comes up a lot, so I figured it would be useful to post our collective wisdom in one place as a reference. As usual – what works for one may not work for another. So members of our club are invited to also post your remedies in the comments.
The causes of Parkinson's constipation
This subject comes up a lot, so I figured it would be useful to post our collective wisdom in one place as a reference. As usual – what works for one may not work for another. So members of our club are invited to also post your remedies in the comments.
The causes of Parkinson's constipation
park_bear
in
Cure Parkinson's
3 years ago
Intrinsic factor test and diagnosis
Hi guys, I'm new to the forum. Basically I've had all of the standard pernicious anaemia symptoms for about 2.5 years now, but not yet 'officially' diagnosed. I had been diagnosed with chronic fatigue syndrome, but rest didn't seem to help. 3 weeks or so ago I discovered pernicious anaemia and took
Hi guys, I'm new to the forum. Basically I've had all of the standard pernicious anaemia symptoms for about 2.5 years now, but not yet 'officially' diagnosed. I had been diagnosed with chronic fatigue syndrome, but rest didn't seem to help. 3 weeks or so ago I discovered pernicious anaemia and took
JSD100
in
Pernicious Anaemia Society
3 years ago
Cod liver oil and Eliquis?
My eye doctor put me on cod liver oil capsules but I’ve heard they can thin the blood and I’m also on Eliquis. Any thoughts?
My eye doctor put me on cod liver oil capsules but I’ve heard they can thin the blood and I’m also on Eliquis. Any thoughts?
Nigel2000
in
AF Association
3 years ago
ADHD Weekly-- A Fishy Idea: Omega-3 Supplements as a Replacement for Medication
Q: Is supplementing with fish oil a good alternative to medication management for ADHD? A: Many people have been hopeful about fish oil and ADHD symptoms, but there’s no evidence that it can replace prescribed medications. Keep reading A Fishy Idea: Omega-3 Supplements as a Replacement for Medication
Q: Is supplementing with fish oil a good alternative to medication management for ADHD? A: Many people have been hopeful about fish oil and ADHD symptoms, but there’s no evidence that it can replace prescribed medications. Keep reading A Fishy Idea: Omega-3 Supplements as a Replacement for Medication
KarenADHDWeekly
Partner
in
CHADD's ADHD Parents Together
3 years ago
Just something light hearted before bedtime 🙂
The members of my crossword club are furious because people are leaving.......... We're three down and two are cross.....!!!!!!! . . I asked the librarian about a good author on dinosaurs. She said try Sarah Topps.. . . I had a tiny sandwich with spots on it today. It was was an itsy bitsy teeny
The members of my crossword club are furious because people are leaving.......... We're three down and two are cross.....!!!!!!! . . I asked the librarian about a good author on dinosaurs. She said try Sarah Topps.. . . I had a tiny sandwich with spots on it today. It was was an itsy bitsy teeny
Bazzak
Reading Rabbits
in
Positive Wellbeing During Self-Isolation
3 years ago
Diet and supplements for endometriosis?
Hi! Does anyone know what a professional is called who can advise on diet and supplements for women who have endometriosis? Nutritionist? Dietician? Apothecary? 😉 (That's a joke) I'm wondering because I've read a few tips on health blogs, but I feel cautious about taking supplements before checking
Hi! Does anyone know what a professional is called who can advise on diet and supplements for women who have endometriosis? Nutritionist? Dietician? Apothecary? 😉 (That's a joke) I'm wondering because I've read a few tips on health blogs, but I feel cautious about taking supplements before checking
Hidden
in
Endometriosis UK
3 years ago
Natural Lemon Flavor
My son has been taking Carlson Very Best Fish Oil. Just looked closely at the table and realized it lists "Natural Lemon Flavor" as ingredient. I know "natural flavors" is often code for "hidden PG!" Does anyone have any thoughts on Carlson Fish Oil or this ingredient listing?
My son has been taking Carlson Very Best Fish Oil. Just looked closely at the table and realized it lists "Natural Lemon Flavor" as ingredient. I know "natural flavors" is often code for "hidden PG!" Does anyone have any thoughts on Carlson Fish Oil or this ingredient listing?
findtheanswernow
in
Allergic to Glycols
3 years ago
Re weight loss
I have read that losing 10% of body weight greatly improves NASH. My question is, how long does it take to see these results? Since being diagnosed with NASH 3 years ago, I have lost 16% of my body weight through diet and exercise. Back on Bydureon and on a low dose of Crestor, my cholesterol has improved
I have read that losing 10% of body weight greatly improves NASH. My question is, how long does it take to see these results? Since being diagnosed with NASH 3 years ago, I have lost 16% of my body weight through diet and exercise. Back on Bydureon and on a low dose of Crestor, my cholesterol has improved
NYLassie
in
Living with Fatty Liver and NASH
3 years ago
Undiagnosed chronic pain
Hi all my names Chloe and I'm new here and was wondering if anyone had any tips on coping with undiagnosed chronic pain. When I was younger (primary school age) I started to develop pretty much every symptom possible of Juvenile Idiopathic Arthritis I had the swellings, aching, everything in my knees
Hi all my names Chloe and I'm new here and was wondering if anyone had any tips on coping with undiagnosed chronic pain. When I was younger (primary school age) I started to develop pretty much every symptom possible of Juvenile Idiopathic Arthritis I had the swellings, aching, everything in my knees
CaSRobbins
in
Pain Concern
3 years ago
INTRINSIC FACTOR ANTIBODIES
Hi all, if you have tested negative to these several times does that mean they dont need testing again , or could they change? Any advice greatly appreciated please. G
Hi all, if you have tested negative to these several times does that mean they dont need testing again , or could they change? Any advice greatly appreciated please. G
Gillybean1
in
Pernicious Anaemia Society
3 years ago
Dry eyes
For the past 12 months my eyes have become quite dry so as many people I use eye drops daily to keep them hydrated. I did some research and found a supplement bought through Amazon called ‘Sea Buckthorn oil capsules’ with omega7 the make is Nature’s. Aid. I have taken these for about a month and my dry
For the past 12 months my eyes have become quite dry so as many people I use eye drops daily to keep them hydrated. I did some research and found a supplement bought through Amazon called ‘Sea Buckthorn oil capsules’ with omega7 the make is Nature’s. Aid. I have taken these for about a month and my dry
Annsandra13
in
Macular Society
3 years ago
Dry scalp ,dry ears, dry skin
I've tried everything with some success Olive oil used last. Mixed with peppermint oil on my scalp. On having a bath skin lovely and ears good !!
I've tried everything with some success Olive oil used last. Mixed with peppermint oil on my scalp. On having a bath skin lovely and ears good !!
Nackapan
in
Pernicious Anaemia Society
3 years ago
Supplements and Radiation Therapy
I am 69 and was diagnosed approximately 4 months ago with locally advanced Ductal Adenocarcinoma of the Prostate, Gleason 8, with seminal vessel involvement. I've been on Eligard for 3 months and had blood tests yesterday but I don't have any results to share yet. I also had a CT SIM yesterday in preparation
I am 69 and was diagnosed approximately 4 months ago with locally advanced Ductal Adenocarcinoma of the Prostate, Gleason 8, with seminal vessel involvement. I've been on Eligard for 3 months and had blood tests yesterday but I don't have any results to share yet. I also had a CT SIM yesterday in preparation
TottenhamMan
in
Advanced Prostate Cancer
3 years ago
Onycholyosis and psoriatic arthritis
I went to my GP yesterday and she had never seen anything in her life like my nails. I suggested I had psoriatic arthritis as I stumbled upon similar photos as I searched google...yes I know....google and all that. Anyway I had onycholyosis last summer on 4 nails which grew out then about 3 weeks ago
I went to my GP yesterday and she had never seen anything in her life like my nails. I suggested I had psoriatic arthritis as I stumbled upon similar photos as I searched google...yes I know....google and all that. Anyway I had onycholyosis last summer on 4 nails which grew out then about 3 weeks ago
Gillybean129
in
Beyond Psoriasis
3 years ago
Very high anti-CCP results
Hello, I hope you are all well. I want to ask for my Father. He was diagnosed with RA in Dec 2020. At that point his anti-CCP was 256. His ESR and rheumatoid factor were also very high. He has been injecting Metoject for 3 months now, first 12.5mg, now 10mg. His ESR and rheumatoid factor have now
Hello, I hope you are all well. I want to ask for my Father. He was diagnosed with RA in Dec 2020. At that point his anti-CCP was 256. His ESR and rheumatoid factor were also very high. He has been injecting Metoject for 3 months now, first 12.5mg, now 10mg. His ESR and rheumatoid factor have now
temirzhan
in
NRAS
3 years ago
Neulasta troubles
Hi Friends. My oncologist added Neulasta to my chemo regimen (Abraxane) because my counts have stayed high enough to have chemo on days one and eight, but then they tank, and I've had to wait a week to get the day 15 dose. It's been consistently that way since the first series. This last time he ordered
Hi Friends. My oncologist added Neulasta to my chemo regimen (Abraxane) because my counts have stayed high enough to have chemo on days one and eight, but then they tank, and I've had to wait a week to get the day 15 dose. It's been consistently that way since the first series. This last time he ordered
WordNerdSharron
in
SHARE Metastatic Breast Cancer
3 years ago
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