Experiences with

Campath

Am on Day 6, had dose of fludara and campath. Been just on fludara until today and was coping well, no side effects. Campath is slightly stronger and took about 2 hours to be pumped in with various side effects.

Campath is chemotherapy (with the idea of rebooting your immune system) and after a couple of years I developed graves disease and had to have radioactive Iodine.

My partner was diagnosed in March this year and has started a course of Campath treatment. As it’s a rare form of Leukaemia I was wondering if there are any other partners out there who may be further down the line than us that would be happy to share experiences Thank you Karen xx

Methylprednisolone and campath??? Has anyone been on this treatment as I would really appreciate if anyone could let me know how they felt / side effects??

He is currently on Campath. He had to do a ramp up over 7 days 3mg on first day and then 3, 10, 10, 30, a one day break, and then 30. The drug is amazing and he is responding.

She has undergone 3 x Campath treatment with good results but now struggling with higher wbc and very swollen lymphs, mostly in legs/feet. It s causing pain and due to very dry skin also starting to crack her skin under feet and on fingers.

His first line of treatment was campath by which he received good varying lengths of remission from each of the courses he received over the years until this year, when the campath did not achieve the same positive result we previously experienced (only minimal wbc count reduction and not holding this

Hi All on Ovacare , I’m so happy to have you as a trustworthy and unfortunately experienced folk . This time I’m on Cpt 11 / lrinotecan / campto for liver and spleen tumors . I only started 2 days ago for a 3 week cycle ( 2 weeks on , 1 week off ) lasting 4-6 months . I’m feeling nauseous and steroids

Or, if you haven't had campath but teach after other -mab infusions would be very interested to share experience, tips etc

Hi Has anyone been treated with the above medication (I have given both names for it). If you have how was it?and did it work for you? I think I am running out of drug options/ combinations now, and platelets remain at 0. This is the doctors next plan but the hospital have only ever treated 3 people

Hi I'm on the Campath clinical trial for my BD I need to get holiday insurance does anyone have any advice my current insurer won't insure me while on the trial! Ive got a holiday booked and I'm worried I won't find anyone to insure me. Has anyone been insured while on this trial or another?

So I was wondering if anyone else has tried Campath and if it worked for you and what side effects you had during and after treatment. Thanks Kezzle 😟

Any information from you good ladies would be appreciated .After several lots of chemo and very little remission I now start on a drug called Campto or CPT 11 so would really appreciate any feedback on same .

My husband was released from the hospital Friday after 2 weeks of IV treatment for fungal pneumonia, contracted (we think) during the 6 weeks of Campath injections to treat both the CLL and the rare anemia (PRCA).

3. dexamethasone and campath followed by stem cell transplant if I get through the chemo and it takes the CLL down enough. I have 3 lovely kids and a lovely wife. Kids 13-18 now. Just throwing this out there! Corin

Looking for info about these drugs in the managment of systemic Behcet's with particular flaring of uveitis in eyes. Anyone had any joy with them? I have history of depression and psychological issues relating to steroid use and realise some of these drugs can trigger depression. Thanks, Guevara

Question from the face book group if anyone can help Just wondering if anybody has had - Alemtuzumab Dr David Jayne has put me forwards for it. I have to wait until June, 6 months clear of Rituximab but hopefully I will finally be able to get things under control with this new one... Any info anyone

Martin Lockwood treated me with a drug then called Campath, (Alemtuzumab) at Addenbrooke’s Hospital Cambridge. I was suffering with Wegener’s Granulomatosis. Since then the Vasculitis Clinic at Addenbrooke’s now headed by Dr.

I was diagnosed 2010 been on all sorts of meds and have finally been given Campath. This has been my saving grace.... Literally. I have had 2 courses now and I am doing great apart from the pain....................................................

Here's a fascinating article about off-label use of Campath (from Cambridge Pathology), a monoclonal antibody developed for CLL which was repackaged as Lemtrada, (also known as Campath-1H or alemtuzumab) for the treatment of Multiple Sclerosis.