Hi All on Ovacare , I’m so happy to have you as a trustworthy and unfortunately experienced folk . This time I’m on Cpt 11 / lrinotecan / campto for liver and spleen tumors .
I only started 2 days ago for a 3 week cycle ( 2 weeks on , 1 week off ) lasting 4-6 months . I’m feeling nauseous and steroids are driving me crazy in the evening time with restless feet and wild thoughts. I’m very very smell sensitive and can’t bear the thoughts of food not to mind seeing / smelling it .
Is anyone on this drug who wants to share any issues they had and if they have tips on how to cope .
Hope to see you in Limerick in May for the Ovacare patient day
Ps I just popped in a photo of a project of mine that I just finished - it’s a a play den for my two boys for their summer in the garden fun ! Let’s hope we have the weather !