Its been a while since I was on this site. Had a break whilst I moved and sorted a few bits out in my life.
Just a little bit of info so you might be able to help me better.
I was diagnosed 2010 been on all sorts of meds and have finally been given Campath. This has been my saving grace.... Literally. I have had 2 courses now and I am doing great apart from the pain....................................................
Now I have had pain on and off since I was 23 (now 29) and only usually during flares and mildly all the other times until last Feb. The September before my body started to become immune to the effects of my Humira and things started to slip again. By the Feb I was on a slippery slope down again and after a stay in hospital for a suspected blood clot the pain just hasn't left me. I am now taking tramadol everyday and oramorph for when its really bad the only thing is this doesn't seem to work and I don't think i've had a pain free day in 18 months and this isn't just a little ache we're talking about either this is so painful I can't sleep, walk and makes me want to throw up, red hot pokers in you joints kinda pain.... i'm sure you'll all know how that feels... now i'm generally pretty good a putting on the smile and the 'i'm fine' act but this morning after no sleep last night I cracked.
I'm sick of the Dr saying 'we'll wait and see if this works' I need something and need something NOW!!! The pain clinic have been useless to say the least.
Sorry to go on, I will now get to the point :)... so at my lowest point last year I was offered Fentanyl Patches and was a bit scared of addiction and coming off them when i needed to but now I feel like if i have to wake up in pain 1 more day i might do something silly... has anyone got any experiences (bad or good) i would love to hear them... Many thanks