Partner newly diagnosed with TPLL.

[Hiker_chick]

Hello new here.

Is anyone receiving treatment for TPLL? My partner was diagnosed in March this year and has started a course of Campath treatment. As it’s a rare form of Leukaemia I was wondering if there are any other partners out there who may be further down the line than us that would be happy to share experiences

Thank you

Karen xx

[HAIRBEAR_UK]

Hi Hiker-chick , thanks for your posting .

How is your partner's treatment going a month further along? Please do ask any questions you may have. I am sure you will get some replies that may be helpful

Many of us here live with very similar leukaemia diseases and can share experience of chemo treatment and related challenges. Yes, indeed TPLL is rare , It might be worth contacting the Leukaemia Care Buddy Scheme organisers to help connect you . More information is on our website here: leukaemiacare.org.uk/suppor...

Best wishes

Nick

[2003UK]

Hi, a great big welcome to here. I cannot help you with your questions but if you would like to speak to someone the Leukaemia Care Charity helpline is open Monday - Friday 8.30am until 5.30 pm and they have a special evening service on a Thursday and Friday 7pm - 10pm. The number is freephone 08088 010 444.

However what I have noticed is that no matter what the diagnosis or whether we are the patient, the family or friends we often share similar fears, thoughts, feelings and practicalities. Take care and please keep posting.