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combined therapy help
Hi a little advise if possible: normally levo 125mg and thybon 5mg. A new endo has taken me off thybon to try and work out if I have diabetes inspidius (water balance issues). I think I was slightly too hyper but 3 weeks later and I feel terrible - weight gain, constipation, no apetite. I don’t think
Hi a little advise if possible: normally levo 125mg and thybon 5mg. A new endo has taken me off thybon to try and work out if I have diabetes inspidius (water balance issues). I think I was slightly too hyper but 3 weeks later and I feel terrible - weight gain, constipation, no apetite. I don’t think
DancerLisboa
in
Thyroid UK
4 months ago
Devastated
I went to my first three month blood test today. I am at Rai 0. I feel great. My WBC and Lymphocytes doubled in 3 months. I am starting V and O on Monday. I am pissed and scared. I had 3 months on Wait and Watch. Chronic was supposed to mean 3 years or 10 years before treatment. My wife and I are driving
I went to my first three month blood test today. I am at Rai 0. I feel great. My WBC and Lymphocytes doubled in 3 months. I am starting V and O on Monday. I am pissed and scared. I had 3 months on Wait and Watch. Chronic was supposed to mean 3 years or 10 years before treatment. My wife and I are driving
Hidden
in
CLL Support
4 months ago
Surgery or not.
Hi everyone.Had my one year appointment with consultant yesterday in hospital which was a change from the last year as all over phone. I knew something was coming. She basically said wasent happen as throughout the year never found right dose or balance for it. Had gone from hyper to hypo very quickly
Hi everyone.Had my one year appointment with consultant yesterday in hospital which was a change from the last year as all over phone. I knew something was coming. She basically said wasent happen as throughout the year never found right dose or balance for it. Had gone from hyper to hypo very quickly
JoMax
in
Thyroid UK
4 months ago
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long term carbimazole
I currently take 5mg Carbimazole alternate days. I have toxic nodules so stopping meds is not an option. Like many people on here I have been pushed towards RAI or surgery TT. Every time I feel I get near to a decision I learn something new! I am interested in what people have been told about staying
I currently take 5mg Carbimazole alternate days. I have toxic nodules so stopping meds is not an option. Like many people on here I have been pushed towards RAI or surgery TT. Every time I feel I get near to a decision I learn something new! I am interested in what people have been told about staying
Platypus8
in
Thyroid UK
4 months ago
Carbimazole and severe bloating
I've been taking carbimazole now for 3 weeks but have been having extreme painful bloating in my abdomen. Not feeling sick and bowel movements are normal if not less regular. I cancelled my appointment for RAI to opt to try tablets first but this tummy ache is debilitating. Do side effects wear off
I've been taking carbimazole now for 3 weeks but have been having extreme painful bloating in my abdomen. Not feeling sick and bowel movements are normal if not less regular. I cancelled my appointment for RAI to opt to try tablets first but this tummy ache is debilitating. Do side effects wear off
Spagbol24
in
Thyroid UK
4 months ago
starting dosage of levothyroxine. GP ignoring Endocrinologist recommendation
hi everyone, in relation to my original post I decided to “give it to God” and await the endocrinologist referral. https://healthunlocked.com/thyroiduk/posts/150231411/gp-referred-me-to-endocrinology As recommended by you lovely people (Thank you again):- I have supplemented 1000ug of folate (
hi everyone, in relation to my original post I decided to “give it to God” and await the endocrinologist referral. https://healthunlocked.com/thyroiduk/posts/150231411/gp-referred-me-to-endocrinology As recommended by you lovely people (Thank you again):- I have supplemented 1000ug of folate (
Kaatse
in
Thyroid UK
8 months ago
constant running nose
have had graves for over 10 yrs . Had RAI only wish I had never had this this treatment . On Levo 100mcgs and 75mcgs alternative days . My results have been normal . Have even been able to try T3 to no avail . My problem is constant fatigue have to push myself in the morning as so so tired . Although
have had graves for over 10 yrs . Had RAI only wish I had never had this this treatment . On Levo 100mcgs and 75mcgs alternative days . My results have been normal . Have even been able to try T3 to no avail . My problem is constant fatigue have to push myself in the morning as so so tired . Although
annie123
in
Thyroid UK
4 months ago
constant running nose
have had graves for over 10 yrs . Had RAI only wish I had never had this this treatment . On Levo 100mcgs and 75mcgs alternative days . My results have been normal . Have even been able to try T3 to no avail . My problem is constant fatigue have to push myself in the morning as so so tired . Although
have had graves for over 10 yrs . Had RAI only wish I had never had this this treatment . On Levo 100mcgs and 75mcgs alternative days . My results have been normal . Have even been able to try T3 to no avail . My problem is constant fatigue have to push myself in the morning as so so tired . Although
annie123
in
Thyroid UK
4 months ago
Update on my CLL diagnosis
Hello, I was diagnosed with CLL in Oct 2022 and was told I had # CLL/SLL with extensive bone marrow involvement, trisomy 12, p53 wild-type, IgHV-mutated, Rai stage 3. My oncologist at the Cancer Center put me on the O and V treatment which started in Dec 2022. I finished the O in May 2023 and the
Hello, I was diagnosed with CLL in Oct 2022 and was told I had # CLL/SLL with extensive bone marrow involvement, trisomy 12, p53 wild-type, IgHV-mutated, Rai stage 3. My oncologist at the Cancer Center put me on the O and V treatment which started in Dec 2022. I finished the O in May 2023 and the
tenniselbowz
in
CLL Support
4 months ago
RAI thyroid hyperthyroidism relapse
I want to know if it is possible for the thyroid to regrow hyperthyroidism come back years after radioactive iodine hypothyroidism.
I want to know if it is possible for the thyroid to regrow hyperthyroidism come back years after radioactive iodine hypothyroidism.
BlueLike
in
Thyroid UK
5 months ago
Graves and Carbimazole update
Hello again! I thought I would post an update to share my experience so far with Graves and pose a couple of questions. I had positive Graves antibodies result in September 2023 / low TSH but T3 T4 in range. Radioiodine scan showed increased uptake / hyperthyroidism. Started Carbimazole 5mg per
Hello again! I thought I would post an update to share my experience so far with Graves and pose a couple of questions. I had positive Graves antibodies result in September 2023 / low TSH but T3 T4 in range. Radioiodine scan showed increased uptake / hyperthyroidism. Started Carbimazole 5mg per
ElleBee99
in
Thyroid UK
5 months ago
Thyroid Genetic Panel - Results
Hi my Thyroid Genetic Panel results from Blue Horizon show the following: COMT - very slow clearance of stress and oestrogen. DI01 - is normal not increased DI01 activity & conversion of FT4 to T3 also, the T Allele on rs11206244 is associated with lower of rT3 from circulation and lower conversion
Hi my Thyroid Genetic Panel results from Blue Horizon show the following: COMT - very slow clearance of stress and oestrogen. DI01 - is normal not increased DI01 activity & conversion of FT4 to T3 also, the T Allele on rs11206244 is associated with lower of rT3 from circulation and lower conversion
irishmary78
in
Thyroid UK
9 months ago
t3 Monotherapy
Hello everyone, I have been a reader of the forum for a while now and it is nice to know so many other people are struggling with un-resolved thyroid problems. This forum was the first place where I thought wow, these guys get it. I have hypermobile ehlers danlos syndrome, I was diagnosed with MS
Hello everyone, I have been a reader of the forum for a while now and it is nice to know so many other people are struggling with un-resolved thyroid problems. This forum was the first place where I thought wow, these guys get it. I have hypermobile ehlers danlos syndrome, I was diagnosed with MS
Jimjamio
in
Thyroid UK
5 months ago
T3 Trial continued
Medichecks 20 March 2024 History:
Hypothyroid (after RAI in c2004)
Spent 2023 improving folate, B12, Vit D although ferritin still poor. Came off PPIs and now take Gaviscon twice daily. Gastritis issues ongoing though. Officially a poor converter (dud DIO2) so really wanted to try T3 Gluten
Medichecks 20 March 2024 History:
Hypothyroid (after RAI in c2004)
Spent 2023 improving folate, B12, Vit D although ferritin still poor. Came off PPIs and now take Gaviscon twice daily. Gastritis issues ongoing though. Officially a poor converter (dud DIO2) so really wanted to try T3 Gluten
Rambling9
in
Thyroid UK
5 months ago
Several symptoms pointing to kidney issue ?
Hi all, new to this forum :) I'm 50y old male thin body, I've noticed that after eating certain foods, my blood pressure starts rising. For instance I did eat roasted peanuts (no salt) 2oz/day for several weeks, blood pressure went from 110 to 145. Stopped eating them, in two weeks bp went back to 110
Hi all, new to this forum :) I'm 50y old male thin body, I've noticed that after eating certain foods, my blood pressure starts rising. For instance I did eat roasted peanuts (no salt) 2oz/day for several weeks, blood pressure went from 110 to 145. Stopped eating them, in two weeks bp went back to 110
oragex
in
Kidney Disease
9 months ago
Endo finally tested FT3! Thoughts?
At my last endo appt early Dec, the consultant kept his same stance that my blood tests were all in range and my symptoms were all due to perimenopause. He said there was slight room for a small increase in levothyroxine so ive gone from 125x5/100x2 to 125x6 /100x1 and told me to speak to my gp and
At my last endo appt early Dec, the consultant kept his same stance that my blood tests were all in range and my symptoms were all due to perimenopause. He said there was slight room for a small increase in levothyroxine so ive gone from 125x5/100x2 to 125x6 /100x1 and told me to speak to my gp and
JUUJOO
in
Thyroid UK
5 months ago
Low fT4, but midrange fT3. Feeling cold, brain fog.
Hi there, male, 64, fit, no problems besides this: for about 3 years I´m having symptoms like feeling cold, brain fog, and most things one would consider to be low thyroid function. I did a lot of blood tests in the last year. Most values are ok. Zinc, Vit B, Selen etc. has all been tested ok, too
Hi there, male, 64, fit, no problems besides this: for about 3 years I´m having symptoms like feeling cold, brain fog, and most things one would consider to be low thyroid function. I did a lot of blood tests in the last year. Most values are ok. Zinc, Vit B, Selen etc. has all been tested ok, too
gd33
in
Thyroid UK
9 months ago
latest results
for the collective wisdom please: Radio iodine ablation 13/12/19 21/11/23 Mono treatment T4 @ 175mcg TSH below range FT3 5.23 (3.5-6.8) FT4 16.8 (7.8-18) Doctor reduced dose to 150! Without consultation My 2 cents: TSH not relevant still only mid range FT3. So need combined T3/T4 treatment.
for the collective wisdom please: Radio iodine ablation 13/12/19 21/11/23 Mono treatment T4 @ 175mcg TSH below range FT3 5.23 (3.5-6.8) FT4 16.8 (7.8-18) Doctor reduced dose to 150! Without consultation My 2 cents: TSH not relevant still only mid range FT3. So need combined T3/T4 treatment.
Bigthensmallthenbig
in
Thyroid UK
9 months ago
Tirosint
Dear all I have been reading posts on and off since I "joined" this forum, and see that a lot of good advice and support has been given. But have never taken taken the plunge in asking for help and advice, so here goes. I was finally diagnosed with Graves disease in 2018, given radio iodine therapy a
Dear all I have been reading posts on and off since I "joined" this forum, and see that a lot of good advice and support has been given. But have never taken taken the plunge in asking for help and advice, so here goes. I was finally diagnosed with Graves disease in 2018, given radio iodine therapy a
Rara8
in
Thyroid UK
9 months ago
The ongoing battle to be well
Since I had Graves diagnosed years ago have struggled with levothyroxine alone..had RAI ...although my previous doctor gave me a private prescription for Thybon Henning Liothyronine. Which I have got - but due to house move changed doctors..present one said it would not help so I did not take it!!
Since I had Graves diagnosed years ago have struggled with levothyroxine alone..had RAI ...although my previous doctor gave me a private prescription for Thybon Henning Liothyronine. Which I have got - but due to house move changed doctors..present one said it would not help so I did not take it!!
Hurtlocker
in
Thyroid UK
6 months ago
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