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Setting up a support group: Part One - Why?
For those of us who’ve been through a period of critical illness and are fortunate enough to come out the other side, we leave hospital in a weakened state and emerge back into a world that looks very different to how it did before. It may not be true for everyone, but for most of us intensive
For those of us who’ve been through a period of critical illness and are fortunate enough to come out the other side, we leave hospital in a weakened state and emerge back into a world that looks very different to how it did before. It may not be true for everyone, but for most of us intensive
ICUsteps-Peter
ICUsteps
in
ICUsteps
11 years ago
My Husband....my stranger....
I know we are all individuals....and brain injuries are different (not least in the way that they affect and impact us all differently). However, I wanted to share a little part of my story. I am 43, my husband of 15 years is 53. We were both business leaders in different sectors, he was exceptional
I know we are all individuals....and brain injuries are different (not least in the way that they affect and impact us all differently). However, I wanted to share a little part of my story. I am 43, my husband of 15 years is 53. We were both business leaders in different sectors, he was exceptional
NJH11
in
Headway
11 years ago
Today 1 yr. on steroids.
I can not beleive it has been one year since I decided to start on Steroids for my PMR. ( I was exhauseted and tired of crying from the pain just from trying to get into bed, so I went on steroids) ( Yes I was being stupid and stubborn, not to mentioned concerned) This entire week I have been feeling
I can not beleive it has been one year since I decided to start on Steroids for my PMR. ( I was exhauseted and tired of crying from the pain just from trying to get into bed, so I went on steroids) ( Yes I was being stupid and stubborn, not to mentioned concerned) This entire week I have been feeling
Lawrie
in
PMRGCAuk
12 years ago
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Depression wanes when you paint!
I've been feeling turbulent this week. But in my favourite medium I produced something pretty cool. Dab hand at this art stuff. (Self-referential, egocentric, true). Although the proportions are slightly off. My mum is better than me. Oil, acrylic... whatever, she can do it. That doesn't even
I've been feeling turbulent this week. But in my favourite medium I produced something pretty cool. Dab hand at this art stuff. (Self-referential, egocentric, true). Although the proportions are slightly off. My mum is better than me. Oil, acrylic... whatever, she can do it. That doesn't even
Hidden
in
Mental Health Support
12 years ago
Wrist and clumsiness
I have pscaratic arthritis in both wrist and this year they have got really stiff and sore and are fusing by themselves, I have found when I am able to use my hands that I have become clumsy with them, it almost feels like they are numb and can not control them as I use to. Does anyone else get this
I have pscaratic arthritis in both wrist and this year they have got really stiff and sore and are fusing by themselves, I have found when I am able to use my hands that I have become clumsy with them, it almost feels like they are numb and can not control them as I use to. Does anyone else get this
Belle76
in
NRAS
12 years ago
Still struggling for help for mum.
Hello, I've posted a while back about my mum falling down stairs banging her head having a bleed on the brain resulting in brain damage. I'm just just after some advice really. I was wondering if my mum will get a diagnosis? I mean by this we no she's got a head injury and brain damage but will they
Hello, I've posted a while back about my mum falling down stairs banging her head having a bleed on the brain resulting in brain damage. I'm just just after some advice really. I was wondering if my mum will get a diagnosis? I mean by this we no she's got a head injury and brain damage but will they
Hannah07
in
Headway
12 years ago
Long time no speak
Hi all Long time no speak :-) hope everyone is as well as can be expected with this blasted condition. Just thought I'd drop by say hi (as its been a while) and wish everyone a healthy painfree start to the new year. Have been going through a bit of a flare which 'im hoping is comming to an end,
Hi all Long time no speak :-) hope everyone is as well as can be expected with this blasted condition. Just thought I'd drop by say hi (as its been a while) and wish everyone a healthy painfree start to the new year. Have been going through a bit of a flare which 'im hoping is comming to an end,
Dixiesdaughter
in
Fibromyalgia Action UK
12 years ago
driving after brain injury
has anyone learnt to drive after head injury with double vision and a tempramental brain ??? never wanted to drive before but now id quite like to (obviously) but dont know at what stage this is even an option ???
has anyone learnt to drive after head injury with double vision and a tempramental brain ??? never wanted to drive before but now id quite like to (obviously) but dont know at what stage this is even an option ???
sparkle83
in
Headway
12 years ago
Solicitor problems for compo
My solicitor emailed me asking me 3 questions. I know none of you know me so you simply cant answer one question. What is your understanding of your injuries. What have you suffered medically as a consequence of your fall? Have you received medical attention from a neurologist? Ive asked
My solicitor emailed me asking me 3 questions. I know none of you know me so you simply cant answer one question. What is your understanding of your injuries. What have you suffered medically as a consequence of your fall? Have you received medical attention from a neurologist? Ive asked
Hidden
in
Headway
12 years ago
Sometimes felling drunk?..
Quite often.. well at least once a month or two.. I wake up feeling drunk. It shows on my eyes i do look drunk, but i haven't had a sip of alcohol. Quite like the feeling its like im numb to any headaches. Its approaching 2 years this june since my severe tbi Just wondered if its common
Quite often.. well at least once a month or two.. I wake up feeling drunk. It shows on my eyes i do look drunk, but i haven't had a sip of alcohol. Quite like the feeling its like im numb to any headaches. Its approaching 2 years this june since my severe tbi Just wondered if its common
Hidden
in
Headway
12 years ago
My sons brain injury is destroying us
My son had a severe traumatic abi in 2005 when he was 25. Since then he has undergone inpatient rehab and now has 3 support workers and has just moved into a new property of his own. Great! you may say, isnt he doing well. Wrong, he is totally dependant on us and we still support him 24/7 . The problem
My son had a severe traumatic abi in 2005 when he was 25. Since then he has undergone inpatient rehab and now has 3 support workers and has just moved into a new property of his own. Great! you may say, isnt he doing well. Wrong, he is totally dependant on us and we still support him 24/7 . The problem
abisupporter
in
Headway
12 years ago
MY PROBLEMS
My problems started round about 1993, started getting cluster head aches, referred to charring cross hospital in London Memory problem (operations i.e. shunt.nerves over right -eye burned) After several visits, and tablet, after tablet. Which ruined my relationship of nearly 5 years, as I totally
My problems started round about 1993, started getting cluster head aches, referred to charring cross hospital in London Memory problem (operations i.e. shunt.nerves over right -eye burned) After several visits, and tablet, after tablet. Which ruined my relationship of nearly 5 years, as I totally
fred57
in
Headway
12 years ago
finallyy stable on meds! now leave husband!
well my meds are helping now,gabapentin/ diazapam, im not symptom free but i can now cope!!!! enough to deal with the other aspects of life,like moving out of my family home with the kids back to my mums until i get housed, my marriage has not worked for some time. i said i would give it another go
well my meds are helping now,gabapentin/ diazapam, im not symptom free but i can now cope!!!! enough to deal with the other aspects of life,like moving out of my family home with the kids back to my mums until i get housed, my marriage has not worked for some time. i said i would give it another go
tinkerfae
in
Fibromyalgia Action UK
12 years ago
Snow, Sheep and School
Woke up this morning to a smattering of snow. Thought you would like to know that the horse costume arrived (hallelujah for the internet; was never any good at sewing), but the sheep outfit not come yet, which is causing slight stress to the child concerned.... Talking of stress, a lot of our kids
Woke up this morning to a smattering of snow. Thought you would like to know that the horse costume arrived (hallelujah for the internet; was never any good at sewing), but the sheep outfit not come yet, which is causing slight stress to the child concerned.... Talking of stress, a lot of our kids
Joygirl
in
FASD Support
12 years ago
Gifts Fibro will not allow you to use.....
It has taken a long time for my hubby to get the hang of not buying me completely useless gifts. By that I mean a nice gift, great idea but cannot use because of the fibro. He once bought me a hair kit comprising of a hair dryer(can't hold my arms up long enough to use it and if I try my arm does its
It has taken a long time for my hubby to get the hang of not buying me completely useless gifts. By that I mean a nice gift, great idea but cannot use because of the fibro. He once bought me a hair kit comprising of a hair dryer(can't hold my arms up long enough to use it and if I try my arm does its
Ozzygirl64
in
Fibromyalgia Action UK
12 years ago
Still stuck with the Old Bag
On Friday, I celebrate 6 weeks since I had my fistula repair. At which point, the plan was for me to have a cystogram, and provided it showed everything had healed, to have a trial without catheter. Disappointingly, its now looking as if I'm stuck with it till the new year :( As we hadn't
On Friday, I celebrate 6 weeks since I had my fistula repair. At which point, the plan was for me to have a cystogram, and provided it showed everything had healed, to have a trial without catheter. Disappointingly, its now looking as if I'm stuck with it till the new year :( As we hadn't
citrine
in
My Ovacome
12 years ago
Gifts .............
My birthday has got me thinking of the way that gifts can come in many guise's ..... We tend to think of gifts in a material way but there are other sorts too ......... A bunch of flowers from a friend , a lovely hug or a phone call to cheer some one up , a nice cream cake to share ... theses can
My birthday has got me thinking of the way that gifts can come in many guise's ..... We tend to think of gifts in a material way but there are other sorts too ......... A bunch of flowers from a friend , a lovely hug or a phone call to cheer some one up , a nice cream cake to share ... theses can
Jan76
in
My Ovacome
12 years ago
Has anyone been treated with myocet?
Today has been a roller coaster of emotions,was hospitalised yesterday with excruciating pain in the abdomen and vomiting yellow/brown fluid.still have no idea what caused this is the 4 dr's I have seen have all given me different reasons.please let me know if any of you have had this and what was the
Today has been a roller coaster of emotions,was hospitalised yesterday with excruciating pain in the abdomen and vomiting yellow/brown fluid.still have no idea what caused this is the 4 dr's I have seen have all given me different reasons.please let me know if any of you have had this and what was the
trolleydollyuk
in
My Ovacome
12 years ago
Side effects of drugs
Has anyone experienced the compulsive behaviour side effects of taking Mirapexin? My husband has been taking it together with co-beneldopa for over a year but has recently started to exhibit unusual sexual behaviour which he says he cannot help. This is causing problems with him removing his incontinence
Has anyone experienced the compulsive behaviour side effects of taking Mirapexin? My husband has been taking it together with co-beneldopa for over a year but has recently started to exhibit unusual sexual behaviour which he says he cannot help. This is causing problems with him removing his incontinence
gp1943
in
PSP Association
12 years ago
Is this prednisone withdrawal? :(
Ive been on oral pred since 1st August, and have been slowly reducing it, initially by 5mg a fortnight and then more gradually. Im now down to 5mg and feeling terrible. Tired, no appetite, gastrointestinal disturbance, and whats worse the last couple of days I've been an emotional wreck. Angry, very
Ive been on oral pred since 1st August, and have been slowly reducing it, initially by 5mg a fortnight and then more gradually. Im now down to 5mg and feeling terrible. Tired, no appetite, gastrointestinal disturbance, and whats worse the last couple of days I've been an emotional wreck. Angry, very
Hidden
in
Asthma Community Forum
12 years ago
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