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Latest Fish test results??
I just had another Fish test completed due to the fact that the Ibrutinib that I have been on for almost 5 years is not working as well anymore. In my first Fish test many many years ago I was Trisomy 12 .The new report now shows that I have acquired both deletions of 13q and 17p and still have Trisomy
I just had another Fish test completed due to the fact that the Ibrutinib that I have been on for almost 5 years is not working as well anymore. In my first Fish test many many years ago I was Trisomy 12 .The new report now shows that I have acquired both deletions of 13q and 17p and still have Trisomy
rcusher
in
CLL Support
2 years ago
Sick of feeling ill
I am on Edoxaban and Verapamil 120mg only. Since 2021 when first starting beta blockers after having a pacemaker fitted I've had nothing but trouble. The GP's don't have an answer for me with various differing ' diagnosis '. I've posted before and at this moment in time have pretty much constant chest
I am on Edoxaban and Verapamil 120mg only. Since 2021 when first starting beta blockers after having a pacemaker fitted I've had nothing but trouble. The GP's don't have an answer for me with various differing ' diagnosis '. I've posted before and at this moment in time have pretty much constant chest
tabletphobic
in
AF Association
2 years ago
PET to image estrogen receptors
Hello everyone and Merry Christmas! I read awhile back on here about women getting PET scans which used agents to image estrogen receptors, not the typical glucose agent. Can someone tell me what the test is called (PET imaging with FES?) and if you’ve used it, has it helped in detection of any new
Hello everyone and Merry Christmas! I read awhile back on here about women getting PET scans which used agents to image estrogen receptors, not the typical glucose agent. Can someone tell me what the test is called (PET imaging with FES?) and if you’ve used it, has it helped in detection of any new
Kayaker82
in
SHARE Metastatic Breast Cancer
2 years ago
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Blessings
Good morning newly diagnosed Breast Cancer Stage3 I was told it was caught early but because lymph nodes were affected I was Stafe 3. I had a lympectomy and lymph nodes removed. Sucessful now started Chemo once every two weeks 4 rounds. Radiation after chemo. Anyone else with a similar story just want
Good morning newly diagnosed Breast Cancer Stage3 I was told it was caught early but because lymph nodes were affected I was Stafe 3. I had a lympectomy and lymph nodes removed. Sucessful now started Chemo once every two weeks 4 rounds. Radiation after chemo. Anyone else with a similar story just want
Blessedup
in
My Breast Cancer Community
2 years ago
confused
I am so confused, my Pulmanary dr. Taking care of lung pleural effusion, and Oncologist taking care of meds, but no one has said any thing about the mass on my liver. I am stage 4 and things seem to go so slow.
I am so confused, my Pulmanary dr. Taking care of lung pleural effusion, and Oncologist taking care of meds, but no one has said any thing about the mass on my liver. I am stage 4 and things seem to go so slow.
Granny333
in
SHARE Metastatic Breast Cancer
2 years ago
You could not make this up !
I had the Shingles vaccine in October but have Shingles again so saw GP who noticed a large which when pressed was even sorer than the bit of a rash, lump under the rash and so off to the new Urgent Treatment Centre to witness an elderly lady being abused by a very aggressive mum with an obnoxious 5
I had the Shingles vaccine in October but have Shingles again so saw GP who noticed a large which when pressed was even sorer than the bit of a rash, lump under the rash and so off to the new Urgent Treatment Centre to witness an elderly lady being abused by a very aggressive mum with an obnoxious 5
medway-lady
in
NRAS
1 year ago
Post Xeloda Options…Enobosarm?
Hi everyone, unfortunately my wife’s tumor markers have exponentially increased over the last 3 months so after 8 months of Xeloda we will need to make a treatment change soon. We’re currently contemplating the following options: Exemestane This is most commonly given in conjunction with Afinitor at
Hi everyone, unfortunately my wife’s tumor markers have exponentially increased over the last 3 months so after 8 months of Xeloda we will need to make a treatment change soon. We’re currently contemplating the following options: Exemestane This is most commonly given in conjunction with Afinitor at
Half-Full
in
SHARE Metastatic Breast Cancer
2 years ago
Has anyone tried anastrozole or exemestane?
Hi all! Until I read your posts about side effects of Letrazole I finally realized I’m living with these same muscle and joint aches in my legs. I’ve always been very fit and active and this year tore my plantars fascia (boot for 3 months) and during a Pilates class did something to strain my hip flexor
Hi all! Until I read your posts about side effects of Letrazole I finally realized I’m living with these same muscle and joint aches in my legs. I’ve always been very fit and active and this year tore my plantars fascia (boot for 3 months) and during a Pilates class did something to strain my hip flexor
Georgelila
in
SHARE Metastatic Breast Cancer
2 years ago
Elevated markers
I’ve had metastatic disease for four years after a single tumor in sternum. I’ve been NED since then on Ibrance and Letrozole. On my most recent labs, both CA 15-3 and CEA are elevated 50% above normal. I’ll have a PET scan Tuesday but can anyone weigh in on - are these numbers high or not?
I’ve had metastatic disease for four years after a single tumor in sternum. I’ve been NED since then on Ibrance and Letrozole. On my most recent labs, both CA 15-3 and CEA are elevated 50% above normal. I’ll have a PET scan Tuesday but can anyone weigh in on - are these numbers high or not?
Mermaiden
in
SHARE Metastatic Breast Cancer
2 years ago
ILC: Double Mastectomy-all breast tissue removed - Pathology showed positive margins.
My wife was diagnosed with Invasive Lobular Carcinoma in April. HR/PR positive (95%) Ki67-12%, HER2 1+ Negative. Oncotype test indicated or confirmed IV chemo would not be effect based of her ILC composition. Due to the size of the tumors she was put on Ibrance and Letrozole to help shrink the tumors
My wife was diagnosed with Invasive Lobular Carcinoma in April. HR/PR positive (95%) Ki67-12%, HER2 1+ Negative. Oncotype test indicated or confirmed IV chemo would not be effect based of her ILC composition. Due to the size of the tumors she was put on Ibrance and Letrozole to help shrink the tumors
ba5083
in
My Breast Cancer Community
2 years ago
Treatment change to Xeloda - chemo 💊
I have started the first round of Xeloda a chemo pill 💊. Taking 4 pills twice daily for 14 days then 7 days off. So far so good, none of the side effects as of yet. I am prepared however. Our hope 🙏🏾 is that it will reduce and/or eliminate my cancer met tumors to lung cavity and liver. I would love
I have started the first round of Xeloda a chemo pill 💊. Taking 4 pills twice daily for 14 days then 7 days off. So far so good, none of the side effects as of yet. I am prepared however. Our hope 🙏🏾 is that it will reduce and/or eliminate my cancer met tumors to lung cavity and liver. I would love
Hotlantaphatz
in
SHARE Metastatic Breast Cancer
2 years ago
An Interesting Dilemma
I saw this story in the Guardian today https://www.theguardian.com/society/2022/nov/07/genetic-tests-could-identify-people-at-risk-of-heart-disease-nhs-study-finds And it got me thinking about genetic testing, which seems to be the future of modern medicine and something that looks likely to be expanded
I saw this story in the Guardian today https://www.theguardian.com/society/2022/nov/07/genetic-tests-could-identify-people-at-risk-of-heart-disease-nhs-study-finds And it got me thinking about genetic testing, which seems to be the future of modern medicine and something that looks likely to be expanded
Sparklingsunshine
in
Thyroid UK
2 years ago
Letrozole(Femara) /joint pain threads continued.....
I have been reading with interest the threads concerning Letrozole and the many side effects we all deal with. My history: DX May 2019 MBC to right femoral hip/thigh. IM nail procedure to stabilize. Started Letrozole/Ibrance. NED after 3 months of treatment! Tried the brand name of Letrozole - Femara
I have been reading with interest the threads concerning Letrozole and the many side effects we all deal with. My history: DX May 2019 MBC to right femoral hip/thigh. IM nail procedure to stabilize. Started Letrozole/Ibrance. NED after 3 months of treatment! Tried the brand name of Letrozole - Femara
OceanBreeze3
in
SHARE Metastatic Breast Cancer
2 years ago
Tamoxifen
Hello Everyone, I wonder if anyone can help, please, I have been on Tamoxifen for 5 months now and the side effects are awful. The fatigue is the worst thing and it comes as complete weakness to the point that I cannot function, or walk or anything but sit down. Has anyone experienced this and have
Hello Everyone, I wonder if anyone can help, please, I have been on Tamoxifen for 5 months now and the side effects are awful. The fatigue is the worst thing and it comes as complete weakness to the point that I cannot function, or walk or anything but sit down. Has anyone experienced this and have
Pippasandy
in
My Ovacome
2 years ago
Hear Experiences from a Breast Cancer Advocate about Clinical Trials
If you have ever wondered what participating in a breast cancer clinical trial is like, I encourage you to attend an upcoming free 15-minute webinar that focuses on how clinical research participation can be made more appealing to patient communities. This webinar will feature insights from Grace Charrier
If you have ever wondered what participating in a breast cancer clinical trial is like, I encourage you to attend an upcoming free 15-minute webinar that focuses on how clinical research participation can be made more appealing to patient communities. This webinar will feature insights from Grace Charrier
ciscrp_official
in
My Breast Cancer Community
2 years ago
Low haematocrit/ibrance/breast cancer metastatic
dear frds, I hope you are well Mom has a breast cancer metastatic (bone and stomach) atypic case. We were doing blood transfusion from April till June and then everything went well, due to Hemax injection. Now Her onco informed me that she needs one unit of blood. Does it happen to anyone of u? she
dear frds, I hope you are well Mom has a breast cancer metastatic (bone and stomach) atypic case. We were doing blood transfusion from April till June and then everything went well, due to Hemax injection. Now Her onco informed me that she needs one unit of blood. Does it happen to anyone of u? she
Ramona-1973
in
SHARE Metastatic Breast Cancer
2 years ago
CBD oil for stiff joints?
Hello ladies. May I consult with you all for advice on how to manage or relieve the stiffness in joints due to cancer treatment please? It's been over a month now since I started my new regimen Zoladex + Fulvestrant and Piqray in October. After two rounds of Zoladex and Fulvestrant shots, I feel
Hello ladies. May I consult with you all for advice on how to manage or relieve the stiffness in joints due to cancer treatment please? It's been over a month now since I started my new regimen Zoladex + Fulvestrant and Piqray in October. After two rounds of Zoladex and Fulvestrant shots, I feel
hopeoflife
in
SHARE Metastatic Breast Cancer
2 years ago
thinking of switching from Ibrance to Kisqali (Ribociclib). Any thoughts for those with lobular?
I was diagnosed with MBC both lobular and ductal with Mets to bones in spine, ribs, pelvis, neck and skull this past June. I’ve been on Ibrance for 3 months and first scan and numbers are going in the right direction. My Onc originally gave me the choice between Ibrance and Kisqali. At the time we
I was diagnosed with MBC both lobular and ductal with Mets to bones in spine, ribs, pelvis, neck and skull this past June. I’ve been on Ibrance for 3 months and first scan and numbers are going in the right direction. My Onc originally gave me the choice between Ibrance and Kisqali. At the time we
lovnmycat
in
SHARE Metastatic Breast Cancer
2 years ago
Superficial thrombophlebitis an memory loss
I have been prescribed letrozole after having a cancerous well contained lump removed plus 3 lymph nodes which were clear. Had a weeks radiotherapy which the oncologist said wasn’t essential. Could walk away at this point. Have been on letrozole for about 6 weeks and had a few side effects. 3 weeks
I have been prescribed letrozole after having a cancerous well contained lump removed plus 3 lymph nodes which were clear. Had a weeks radiotherapy which the oncologist said wasn’t essential. Could walk away at this point. Have been on letrozole for about 6 weeks and had a few side effects. 3 weeks
Dafduck24
in
SHARE Breast Cancer Support
2 years ago
Join us for an webinar on 11/4: Optimizing the Management of Early-stage TNBC: Symptoms, Treatments, and Recurrence
Optimizing the Management of Early-stage TNBC: Symptoms, Treatments, and RecurrenceThursday November 3rd, 2022Triple-negative breast cancer (TNBC) accounts for about 10-15% of all breast cancers. Dr. Regina Hampton, a board-certified general surgeon with a focus on breast health and breast cancer in
Optimizing the Management of Early-stage TNBC: Symptoms, Treatments, and RecurrenceThursday November 3rd, 2022Triple-negative breast cancer (TNBC) accounts for about 10-15% of all breast cancers. Dr. Regina Hampton, a board-certified general surgeon with a focus on breast health and breast cancer in
Vburke_share
in
SHARE Breast Cancer Support
2 years ago
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