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I have just worked out that since I was prescribed Verapamil, middle of June 2023, as a Pip, I have had 12 Af episodes when I have taken the pip (which sorts me out) I know I have had shorter af episodes since being on nebivolol, not reaching a high rate - I think the highest has been 138, maybe 142
I have just worked out that since I was prescribed Verapamil, middle of June 2023, as a Pip, I have had 12 Af episodes when I have taken the pip (which sorts me out) I know I have had shorter af episodes since being on nebivolol, not reaching a high rate - I think the highest has been 138, maybe 142
Tilly1957
in
AF Association
1 year ago
Travelling
It has always been on our bucket list to visit my friend in Australia. I have er,pr positive breast cancer that metastized to my pleural lining. I am on IBrance and letrozole I believe for ever. Can I ever go and how? i have to have bloodwork every month in order to get my iBrance.
It has always been on our bucket list to visit my friend in Australia. I have er,pr positive breast cancer that metastized to my pleural lining. I am on IBrance and letrozole I believe for ever. Can I ever go and how? i have to have bloodwork every month in order to get my iBrance.
Chef50
in
SHARE Metastatic Breast Cancer
1 year ago
Mitral Valve and Ethanol Injection procedure
hi all so after 2 ablations which haven’t worked and now in permanent Af I have had a letter through from my EP at St Barts stating the following At my last procedure they discovered a short circuit running around the mitral valve . they want to perform a technique where they block a very small
hi all so after 2 ablations which haven’t worked and now in permanent Af I have had a letter through from my EP at St Barts stating the following At my last procedure they discovered a short circuit running around the mitral valve . they want to perform a technique where they block a very small
mjm1971
in
AF Association
2 years ago
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Sister has been diagnosed with Breast Cancer
Hi, I really don’t know where to go so thought I might find some help/support here. I am the eldest of my 2 siblings. 3 years ago we lost my younger brother (23) to lung cancer 3 months after diagnosis. Now we have just found out my younger sister (37) has breast cancer. I’m so scared I’m going to lose
Hi, I really don’t know where to go so thought I might find some help/support here. I am the eldest of my 2 siblings. 3 years ago we lost my younger brother (23) to lung cancer 3 months after diagnosis. Now we have just found out my younger sister (37) has breast cancer. I’m so scared I’m going to lose
Mrsk83
in
My Breast Cancer Community
2 years ago
Former art teacher with a passion for travel
Former art teacher. I started traveling in my fifties and it became my passion (I’ve visited 41 countries so far!) until Covid and then my stage 4 diagnosis came. Diagnosed with IDC stage 3 in 2015. My great-grandmother had breast cancer in the 1920s, and an aunt had it when she was in her mid-eighties
Former art teacher. I started traveling in my fifties and it became my passion (I’ve visited 41 countries so far!) until Covid and then my stage 4 diagnosis came. Diagnosed with IDC stage 3 in 2015. My great-grandmother had breast cancer in the 1920s, and an aunt had it when she was in her mid-eighties
Chamisa
in
SHARE Metastatic Breast Cancer
1 year ago
hi I’m Sharon uk I’d love to chat to other people with breast cancer metastatic
I’d love to talk to people with metastatic breast cancer Liver/bones iv had pet scan 2mri scan 8 biopsy 2 ct scans Iv had 6 rounds chemotherapy And I’m due to start letrazole and inhibitors around end march /April
I’d love to talk to people with metastatic breast cancer Liver/bones iv had pet scan 2mri scan 8 biopsy 2 ct scans Iv had 6 rounds chemotherapy And I’m due to start letrazole and inhibitors around end march /April
Sharonpat
in
SHARE Metastatic Breast Cancer
1 year ago
Weekly Taxol/ Avastin
Hi Everyone,I am writing on behalf of my mum, aged 61. She appears to be a 'wild type' HGSOC stage 4. Diagnosed Feb 2021. Surgery wasn't an option due to poor response to front line carbo/ taxol... (2nd opinion by Dr Fotopoulou). It kept the disease stable but no improvement. CA125 stayed around 400
Hi Everyone,I am writing on behalf of my mum, aged 61. She appears to be a 'wild type' HGSOC stage 4. Diagnosed Feb 2021. Surgery wasn't an option due to poor response to front line carbo/ taxol... (2nd opinion by Dr Fotopoulou). It kept the disease stable but no improvement. CA125 stayed around 400
Mum8757
in
My Ovacome
2 years ago
FDA Approved Oral SERD - Elacestrant (ORSERDU) 1/27/23!!!
Hi fellow MBC’ers: Here’s the latest approval from the FDA on approval of the Oral SERD that takes the place of the monthly (painful) Faslodex injections: The drug is called “ORSERDU” https://www.fda.gov/drugs/resources-information-approved-drugs/fda-approves-elacestrant-er-positive-her2-negative-esr1
Hi fellow MBC’ers: Here’s the latest approval from the FDA on approval of the Oral SERD that takes the place of the monthly (painful) Faslodex injections: The drug is called “ORSERDU” https://www.fda.gov/drugs/resources-information-approved-drugs/fda-approves-elacestrant-er-positive-her2-negative-esr1
hopenowandtomorrow
in
SHARE Metastatic Breast Cancer
1 year ago
Extra Afinitor 10 mg and 7.5 mg
Hi. I have had bad side effects from Afinitor. My oncologist has taken me off Afinitor and will be putting me on Xeloda. I gave a week of the 10mg still in the blister pack and two weeks of the 7.5mg in their blister packs. The 7.5 mg is the generic form of Afinitor. I would be glad to ship my
Hi. I have had bad side effects from Afinitor. My oncologist has taken me off Afinitor and will be putting me on Xeloda. I gave a week of the 10mg still in the blister pack and two weeks of the 7.5mg in their blister packs. The 7.5 mg is the generic form of Afinitor. I would be glad to ship my
1711JPD
in
SHARE Metastatic Breast Cancer
1 year ago
necrosis due to radiation
does anyone have experience with necrosis in the brain due to extensive radiation at the tumor sites? I was fine for a little over a year until the necrosis developed and then I lost my peripheral vision on the right side. The treatment for this necrosis is to go on steroids to help reduce the inflammation
does anyone have experience with necrosis in the brain due to extensive radiation at the tumor sites? I was fine for a little over a year until the necrosis developed and then I lost my peripheral vision on the right side. The treatment for this necrosis is to go on steroids to help reduce the inflammation
IzzyZorro
in
SHARE Metastatic Breast Cancer
2 years ago
Sharing My Good News
For the first time since I started this "journey" in September, 2019, my cancer markers have reached the normal range. In Saskatchewan, the cancer markers used are CA 15-3 with a normal range of 30 or below. On December 24th, 2022, mine were read at 23!! I'm having a CT Scan on Jan. 10th so I hope
For the first time since I started this "journey" in September, 2019, my cancer markers have reached the normal range. In Saskatchewan, the cancer markers used are CA 15-3 with a normal range of 30 or below. On December 24th, 2022, mine were read at 23!! I'm having a CT Scan on Jan. 10th so I hope
Hazelgreen
in
SHARE Metastatic Breast Cancer
2 years ago
Strange 😱foot and hand side effects while on capecitabine/Xeloda.
I am a POC (son schooled me saying it means person of color — millennials!). Well I am a Black woman with MBC. I have had unusual horrible experiences while on Xeloda! Instead of getting blisters and burns on feet and hands the bottom of my feet are darkened turning the color black ⚫️and so are my hands
I am a POC (son schooled me saying it means person of color — millennials!). Well I am a Black woman with MBC. I have had unusual horrible experiences while on Xeloda! Instead of getting blisters and burns on feet and hands the bottom of my feet are darkened turning the color black ⚫️and so are my hands
Hotlantaphatz
in
SHARE Metastatic Breast Cancer
1 year ago
First-Line Ribociclib Plus Endocrine Therapy Bests Chemo for Aggressive Breast Cancer
Published in Oncology, December 08, 2022
Patients with hormone receptor (HR)-positive, HER2-negative advanced breast cancer treated with ribociclib plus endocrine therapy (ET) had fewer adverse events and significantly longer progression-free survival than those treated with combination chemotherapy
Published in Oncology, December 08, 2022
Patients with hormone receptor (HR)-positive, HER2-negative advanced breast cancer treated with ribociclib plus endocrine therapy (ET) had fewer adverse events and significantly longer progression-free survival than those treated with combination chemotherapy
Hazelgreen
in
SHARE Metastatic Breast Cancer
2 years ago
Slight progression question
MBC 4 years. Bone only Treating with Ibrance & letrozole. Handled well mostly. Bone scan 1 ago showed “slight interval progression.” Tumor markers around 300 after slow but steady increase. No gene mutation. Oncologist suggests Afinitot plus new AI. Two questions please. First, is it worthwhile
MBC 4 years. Bone only Treating with Ibrance & letrozole. Handled well mostly. Bone scan 1 ago showed “slight interval progression.” Tumor markers around 300 after slow but steady increase. No gene mutation. Oncologist suggests Afinitot plus new AI. Two questions please. First, is it worthwhile
Yikes123
in
SHARE Metastatic Breast Cancer
2 years ago
Day 3 on Xeloda
Fed ex was supposed to deliver my Xeloda Wednesday morning. That's what the specialty pharmacist and my onc's nurse had told me, and I even got an email saying it was out for delivery that morning. My husband put off some things he'd planned to do so he would be here to sign for the first delivery.
Fed ex was supposed to deliver my Xeloda Wednesday morning. That's what the specialty pharmacist and my onc's nurse had told me, and I even got an email saying it was out for delivery that morning. My husband put off some things he'd planned to do so he would be here to sign for the first delivery.
PJBinMI
in
SHARE Metastatic Breast Cancer
1 year ago
has anyone had breast cancer, go to their spine?
I have stage four metastatic breast cancer. I had it first in 2005. Then in 2018 it came back in my ovary. My tumor markers stayed in the normal range for about three years. Now they are rising every month. They are way out of normal range now. My oncologist has done every scan possible and
I have stage four metastatic breast cancer. I had it first in 2005. Then in 2018 it came back in my ovary. My tumor markers stayed in the normal range for about three years. Now they are rising every month. They are way out of normal range now. My oncologist has done every scan possible and
Mimigram
in
My Breast Cancer Community
2 years ago
MBC- MY BEST CIRCLE around NZ for 7 weeks while I still can…
Hi sweet supportive souls, Last week I flew to New Zealand firm snowy Boston and into summer! if you would like to see more of my trip, look in the comments below. To recap a month ago a scan revealed spread to liver and intestines firm my bones. So I was switched from Verzenio to xeloda at Xmas
Hi sweet supportive souls, Last week I flew to New Zealand firm snowy Boston and into summer! if you would like to see more of my trip, look in the comments below. To recap a month ago a scan revealed spread to liver and intestines firm my bones. So I was switched from Verzenio to xeloda at Xmas
Bettybuckets
in
SHARE Metastatic Breast Cancer
1 year ago
Breast cancer and Thyroid treatment.
Hello,I had lumpectomy 20 months ago followed by Radiotherapy. I have weight gain- joint pain -hairloss and lethargy . My GP advised blood test and I was found to have an underactive thyroid.. He started me on thyroid medication (levothroxine) 2 weeks ago.... However, after reading up l am a bit dubious
Hello,I had lumpectomy 20 months ago followed by Radiotherapy. I have weight gain- joint pain -hairloss and lethargy . My GP advised blood test and I was found to have an underactive thyroid.. He started me on thyroid medication (levothroxine) 2 weeks ago.... However, after reading up l am a bit dubious
Tilly101
in
My Breast Cancer Community
2 years ago
Faslodex and hip pain
Does anyone experience severe hip pain after faslodex shots? Not at the injection site, just muscle/nerve pain in hip area.
Does anyone experience severe hip pain after faslodex shots? Not at the injection site, just muscle/nerve pain in hip area.
troutgal
in
SHARE Metastatic Breast Cancer
1 year ago
update on flare versus muscle pain contd
Thank you everyone for your kind words. i will stay on 11mg pred for the time being. I am really struggling with the side effects of the various pain killers, blood pressure meds and water tablets; everything seems to list nausea, constipation and sleepiness as a side effect. The nausea in particular
Thank you everyone for your kind words. i will stay on 11mg pred for the time being. I am really struggling with the side effects of the various pain killers, blood pressure meds and water tablets; everything seems to list nausea, constipation and sleepiness as a side effect. The nausea in particular
sewinggranny
in
PMRGCAuk
1 year ago
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