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Major surgery and a Vasovagal event
I’ve been taking 5mg pred for a while. Reduced to 4.5 and after a few weeks began to feel unwell. I told my doctor who said go back on to 5mg. I then went into hospital last week. I had gluteal reconstructive surgery. The anaesthetist suggested I should increase my pred. So I did the sick day rule and
I’ve been taking 5mg pred for a while. Reduced to 4.5 and after a few weeks began to feel unwell. I told my doctor who said go back on to 5mg. I then went into hospital last week. I had gluteal reconstructive surgery. The anaesthetist suggested I should increase my pred. So I did the sick day rule and
Sumojo
in
PMRGCAuk
4 days ago
craniotomy swelling
I had a Craniotomy procedure 10 months ago I still have the right side of my scull exposed awaiting reconstructive surgery My head seems to swell quite a bit at the moment again where it’s exposed does anyone else have this problem
I had a Craniotomy procedure 10 months ago I still have the right side of my scull exposed awaiting reconstructive surgery My head seems to swell quite a bit at the moment again where it’s exposed does anyone else have this problem
Jodieb73
in
Headway
2 months ago
delayed reconstruction
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
Jodieb73
in
Headway
4 months ago
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Hormonal therapy ?
Hi, I was diagnosed with extended DCIS with ER+, PR+.I had a total mastectomy with a diep flap 2 weeks ago, My surgeon referred me to medical oncology for hormonal therapy. I am curious do I still need hormonal therapy as I already had a mastectomy, as far as cancer recurrence and preventing cancer
Hi, I was diagnosed with extended DCIS with ER+, PR+.I had a total mastectomy with a diep flap 2 weeks ago, My surgeon referred me to medical oncology for hormonal therapy. I am curious do I still need hormonal therapy as I already had a mastectomy, as far as cancer recurrence and preventing cancer
Rarlod
in
SHARE Breast Cancer Support
1 month ago
PMR AND ANASTROZOLE
I had an operation for
breast
cancer (Mastectomy with
reconstruction
) in mid December. Thankfully I don’t need any more treatment other than anti oestrogen tablets.
I had an operation for
breast
cancer (Mastectomy with
reconstruction
) in mid December. Thankfully I don’t need any more treatment other than anti oestrogen tablets.
GwenTheHen16
in
PMRGCAuk
3 months ago
Diep Flap Procedure Question
Hi, I'm a breast cancer survivor and I had a double mastectomy. It is planned that I'm going to have the Diep flap procedure and I was wondering if anyone could advise me on how weight gain and loss affect the body after this procedure? Thanks
Hi, I'm a breast cancer survivor and I had a double mastectomy. It is planned that I'm going to have the Diep flap procedure and I was wondering if anyone could advise me on how weight gain and loss affect the body after this procedure? Thanks
Kerryellen
in
SHARE Breast Cancer Support
3 months ago
Trying to follow a healthy lifestyle while on long term drug therapy
So finding my lump and realising I had Breast Cancer has taken me on a strange journey. I'm a healthy active 75 year old carer for my darling hubby. I am starting month 6 of Letrozole, have had 1 Ibandronic acid treatment and have just been taken off my Abemeciclib tablets after almost 8 weeks as
So finding my lump and realising I had Breast Cancer has taken me on a strange journey. I'm a healthy active 75 year old carer for my darling hubby. I am starting month 6 of Letrozole, have had 1 Ibandronic acid treatment and have just been taken off my Abemeciclib tablets after almost 8 weeks as
wackier
in
SHARE Breast Cancer Support
41 minutes ago
how much to raise by?
I’m taking tamoxifen for breast cancer. It had impacted thyroid levels in the autumn but I only adjusted by a little. Latest test was tsh 5.17 and t4 17 (not taken that day) on 125 for 3 days a week and 100 for 4 days a week. Obviously I’m not very with it now. I think it has been like this for
I’m taking tamoxifen for breast cancer. It had impacted thyroid levels in the autumn but I only adjusted by a little. Latest test was tsh 5.17 and t4 17 (not taken that day) on 125 for 3 days a week and 100 for 4 days a week. Obviously I’m not very with it now. I think it has been like this for
haggisplant
in
Thyroid UK
5 days ago
Clinical trial update
Trial Drugs: Inavolisib and Giredestrant. Today was my second set of scans (every 8 weeks) and the results of the chest CT and Bone scans were great, nothing new, all stable and NED in lungs. The abdomen CT showed slight increase in the size of my liver lesions. I am ER+, HER2 low +1, PR-, AR+, with
Trial Drugs: Inavolisib and Giredestrant. Today was my second set of scans (every 8 weeks) and the results of the chest CT and Bone scans were great, nothing new, all stable and NED in lungs. The abdomen CT showed slight increase in the size of my liver lesions. I am ER+, HER2 low +1, PR-, AR+, with
Trissh
in
SHARE Metastatic Breast Cancer
8 days ago
Letrozole
I saw the oncologist yesterday to discuss radiotherapy and hormone therapy.The plan for radiotherapy is on hold ATM because I have an ongoing issue with a seroma on the breast and underarm. During the meeting she said she would give me a prescription for Letrozole, I told her I wasn't happy to start
I saw the oncologist yesterday to discuss radiotherapy and hormone therapy.The plan for radiotherapy is on hold ATM because I have an ongoing issue with a seroma on the breast and underarm. During the meeting she said she would give me a prescription for Letrozole, I told her I wasn't happy to start
LindaLittleBear
in
My Breast Cancer Community
11 days ago
Oil of Evening Primrose
I had a lumpectomy last May. It was a small ductal carcinoma which was invasive. I went on to have Radiotherapy and started a five year course of Letrozole. I developed bad joint pain and I had a month off to see if the Letrozole was the culprit. It was better but not gone. The oncology nurse suggested
I had a lumpectomy last May. It was a small ductal carcinoma which was invasive. I went on to have Radiotherapy and started a five year course of Letrozole. I developed bad joint pain and I had a month off to see if the Letrozole was the culprit. It was better but not gone. The oncology nurse suggested
Tabbycat64
in
My Breast Cancer Community
13 days ago
Question about tumor markers
Hi there, happy spring to all!! My Mom’s been doing well with trial med in combination with Faslodex monthly. Her blood work has been normal with good liver function. Her tumor marker test (the CA 15-3) test showed in the 350 range. I’m not sure it’s ever been that high but it was in the 150 range
Hi there, happy spring to all!! My Mom’s been doing well with trial med in combination with Faslodex monthly. Her blood work has been normal with good liver function. Her tumor marker test (the CA 15-3) test showed in the 350 range. I’m not sure it’s ever been that high but it was in the 150 range
Pups2Cute
in
SHARE Metastatic Breast Cancer
13 days ago
Exemestane and Afinitor
Hi everyone I just completed 1 month of Truqap. I had to stop treatment due to a cough and a horrible rash. I had to stay in the ER for 24 hours due to the rash. I am now moving on to Exemestane and Afinitor. I would so appreciate any experience that anyone has had on these 2 meds. I’m mostly interested
Hi everyone I just completed 1 month of Truqap. I had to stop treatment due to a cough and a horrible rash. I had to stay in the ER for 24 hours due to the rash. I am now moving on to Exemestane and Afinitor. I would so appreciate any experience that anyone has had on these 2 meds. I’m mostly interested
Jhshl512
in
SHARE Metastatic Breast Cancer
15 days ago
Breast dimpling post Lumpectomy?
Hi there! Anyone notice breast dimpling after lumpectomy? It has been 6 months after my surgery and I’m seeing 2 distinct dimples showing in the surgery area. I’m thinking it could be from the scar tissue?
Hi there! Anyone notice breast dimpling after lumpectomy? It has been 6 months after my surgery and I’m seeing 2 distinct dimples showing in the surgery area. I’m thinking it could be from the scar tissue?
NeenJah
in
SHARE Breast Cancer Support
15 days ago
Lizzietish
'Benign' cyst removed and has turned out to be in my bones and lungs and obviously in my skin. ER, PR + and HER-. All my research tells me I am doomed as skin mets are meant to be terminal?????? My oncology team were so upbeat, started on Letrozole and Ribociclib and Denosumab. I have no symptoms
'Benign' cyst removed and has turned out to be in my bones and lungs and obviously in my skin. ER, PR + and HER-. All my research tells me I am doomed as skin mets are meant to be terminal?????? My oncology team were so upbeat, started on Letrozole and Ribociclib and Denosumab. I have no symptoms
Lizzietosh
in
SHARE Metastatic Breast Cancer
17 days ago
Radiation for cancer other than thyroid.
Does radiation treatment for breast cancer affect thyroid medications? Does dose need to be adjusted during or after treatment?
Does radiation treatment for breast cancer affect thyroid medications? Does dose need to be adjusted during or after treatment?
raglansleeve
in
Thyroid UK
24 days ago
Acute Liver Failure Diagnosis
On Tuesday, I finally received the long awaited Truqap. I was told to hold off beginning treatment and to bring the medicine to the oncologist's off on Thursday. The oncologist took one look at me and dropped her jaw in awe of my yellow skin color, which I could not see, then shipped me off to the
On Tuesday, I finally received the long awaited Truqap. I was told to hold off beginning treatment and to bring the medicine to the oncologist's off on Thursday. The oncologist took one look at me and dropped her jaw in awe of my yellow skin color, which I could not see, then shipped me off to the
jersey-jazz
in
SHARE Metastatic Breast Cancer
1 month ago
TP53 Testing
Good afternoon. My oncologist called me last month to tell me that my FISH test indicated that I had Trisomy 12. He went on to say “You should feel lucky that you don’t have TP53.” I watched this excellent video yesterday. The doctors discussed the importance of having the separate TP53 test with FISH
Good afternoon. My oncologist called me last month to tell me that my FISH test indicated that I had Trisomy 12. He went on to say “You should feel lucky that you don’t have TP53.” I watched this excellent video yesterday. The doctors discussed the importance of having the separate TP53 test with FISH
EastBayDad
in
CLL Support
1 month ago
My mom just got diagnosed with CLL at 59 - we have questions - thank you for all the support on my previous post!
1. We live in Southern California - does anyone know a great specialist near by? 2. Her ABSOLUTE LYMPHOCYTES are 9533 - does anyone have similar numbers but they have increased 24% from a month ago when they were at 7732?? Is this alarming? 3. Her IGHV test came back at 6.87% - what does that mean?
1. We live in Southern California - does anyone know a great specialist near by? 2. Her ABSOLUTE LYMPHOCYTES are 9533 - does anyone have similar numbers but they have increased 24% from a month ago when they were at 7732?? Is this alarming? 3. Her IGHV test came back at 6.87% - what does that mean?
Chickenoodlesoup
in
CLL Support
1 month ago
Tumors Shrinking!
Brave Bold Cancer Thrivers, I am ER+, HER2 negative and I, finally after four months, have an oncologist I just love (she's so thorough with everything and very kind and caring), and my treatment is working! I am on Ibrance and letrozole and in only 2 months majority of the tumors have shrunk in half
Brave Bold Cancer Thrivers, I am ER+, HER2 negative and I, finally after four months, have an oncologist I just love (she's so thorough with everything and very kind and caring), and my treatment is working! I am on Ibrance and letrozole and in only 2 months majority of the tumors have shrunk in half
monkeygirl62
in
SHARE Metastatic Breast Cancer
2 months ago
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