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No Evidence of Disease!!
Hello. I read often but seldom post. I was diagnosed with MBC in late January 2021. Have been in Ibrance 125 and Faslodex since February 2021. My mets are in my liver only. I have been asymptomatic from the beginning (MBC found in scan for another issue). I see my oncologist monthly and like her
Hello. I read often but seldom post. I was diagnosed with MBC in late January 2021. Have been in Ibrance 125 and Faslodex since February 2021. My mets are in my liver only. I have been asymptomatic from the beginning (MBC found in scan for another issue). I see my oncologist monthly and like her
1711JPD
in
SHARE Metastatic Breast Cancer
2 years ago
Need to tell you.
OK I have to admit it now. All messages have failed. Fazlodex. Letrozole. Aromasin. Chemo. And many more. I am now just waiting for my mobility to get worse. I am quite active at the moment but it will change. Mt frightening thing at the moment is that the sores and spots on the same breast of the
OK I have to admit it now. All messages have failed. Fazlodex. Letrozole. Aromasin. Chemo. And many more. I am now just waiting for my mobility to get worse. I am quite active at the moment but it will change. Mt frightening thing at the moment is that the sores and spots on the same breast of the
Hidden
in
SHARE Metastatic Breast Cancer
2 years ago
Lu-177 in Austria - Report and underlining high importance of both FDG and PSMA PET/CTs
I just finished follow up PET/CTs scans 7 weeks after last of three Lu-177 infusion by Prof. Hartenbach in Minute Medical in Austria. Anyone interested in my diagnose and prior treatment choices can find very detailed info in my profile. In the Minute Medical they do Lu-177 infusions every 4 weeks -
I just finished follow up PET/CTs scans 7 weeks after last of three Lu-177 infusion by Prof. Hartenbach in Minute Medical in Austria. Anyone interested in my diagnose and prior treatment choices can find very detailed info in my profile. In the Minute Medical they do Lu-177 infusions every 4 weeks -
CurrentSEO
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Advanced Prostate Cancer
2 years ago
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Anyone Having to change to Verzenio
Hi Ladies, My PET shows bone only disease is stable but markers were up and I have this lymph node in neck that is bulging again. So we quickly changed from Ibrance/ faslodex to Verzenio/ aromasin. Onc says she is trying to get more time( just 18 months so far) out of the CDK 4-6 class before the rear
Hi Ladies, My PET shows bone only disease is stable but markers were up and I have this lymph node in neck that is bulging again. So we quickly changed from Ibrance/ faslodex to Verzenio/ aromasin. Onc says she is trying to get more time( just 18 months so far) out of the CDK 4-6 class before the rear
Bettybuckets
in
SHARE Metastatic Breast Cancer
2 years ago
I’m Allergic to the Preservatives in the generic faslodex and I can’t get approved for a Faslodex by Astra Zeneca. What then? 😭😭😭😭scared
Does anyone have this problem ? What advice , I can’t see straight with all the phone calls I have made and got nowhere . I have Florida blue . They turned me down for a medically necessary drug to keep me alive , the picture below is now , the injection was 5 weeks ago Tuesday . They were all welts
Does anyone have this problem ? What advice , I can’t see straight with all the phone calls I have made and got nowhere . I have Florida blue . They turned me down for a medically necessary drug to keep me alive , the picture below is now , the injection was 5 weeks ago Tuesday . They were all welts
Ycats277
in
SHARE Metastatic Breast Cancer
2 years ago
Verzenio causing pain in joins, taking a break and now NO the pain!
Im interested to hear the follow up to your break from verzenio. I too had a week break and the horrible joint pain and neuropathy went away! Was particularly bad in hands and feet. Pain level 8-9! Rheumatologist gave me voltarian pills 75mg and oncologist took we off the Verzenio. Next day pain at
Im interested to hear the follow up to your break from verzenio. I too had a week break and the horrible joint pain and neuropathy went away! Was particularly bad in hands and feet. Pain level 8-9! Rheumatologist gave me voltarian pills 75mg and oncologist took we off the Verzenio. Next day pain at
2019artist
in
SHARE Metastatic Breast Cancer
2 years ago
PET scan results
My PET scan results came back good. I have been on Ibrance 100mg and Letrozole for 5 years. I was stage 4 at initial diagnosis. I still have the tumor and it appears to have progressed a little in 6 months (4.9-5.3) my oncologist wants to look at me having surgery, I have one leison on my achetableum
My PET scan results came back good. I have been on Ibrance 100mg and Letrozole for 5 years. I was stage 4 at initial diagnosis. I still have the tumor and it appears to have progressed a little in 6 months (4.9-5.3) my oncologist wants to look at me having surgery, I have one leison on my achetableum
Gmaoftriplets
in
SHARE Metastatic Breast Cancer
2 years ago
Xeloda Experiences Please?
My wife is starting to show progression on Talzenna so we’re about to start Xeloda as monotherapy, 1,000mg twice a day. Probably will start with 2 weeks on, one week off. If toxicity becomes an issue we’ll likely try one week on one week off. The literature and studies seem to be all over the place
My wife is starting to show progression on Talzenna so we’re about to start Xeloda as monotherapy, 1,000mg twice a day. Probably will start with 2 weeks on, one week off. If toxicity becomes an issue we’ll likely try one week on one week off. The literature and studies seem to be all over the place
Half-Full
in
SHARE Metastatic Breast Cancer
2 years ago
So glad I found this site
Diagnosed with BC when I was 46, bi lat mastectomy, chemo and tamoxifen. Mets to spine this year after 25 years cancer free. On letrozole and finished radiation. Trying to decide if I really want to take verzenio now or wait a while. The side effects look awful.. I suppose we all debate quality of life
Diagnosed with BC when I was 46, bi lat mastectomy, chemo and tamoxifen. Mets to spine this year after 25 years cancer free. On letrozole and finished radiation. Trying to decide if I really want to take verzenio now or wait a while. The side effects look awful.. I suppose we all debate quality of life
Peggypilot
in
SHARE Metastatic Breast Cancer
2 years ago
Xeloda and tumor markers
Hi everyone, I am on Xeloda now for 6 months. The Pet CT showed some improvement in bones and liver but showed some obstruction in the ureter and thickness in the endometrium. I am going through additional tests now. In my blood test the tumor markers went up from 50th to 70th Another one from 5
Hi everyone, I am on Xeloda now for 6 months. The Pet CT showed some improvement in bones and liver but showed some obstruction in the ureter and thickness in the endometrium. I am going through additional tests now. In my blood test the tumor markers went up from 50th to 70th Another one from 5
Cureforever
in
SHARE Metastatic Breast Cancer
2 years ago
Meningeal Brain Mets
Hi Ladies, I have just been diagnosed with meningeal mets to my brain and also a met in the muscle behind my eye all from ER+/PR+ HER2- breast cancer which has been bone only for two years. This seems to be very rare but I was wondering if anyone else is in the same position? My oncologist wants
Hi Ladies, I have just been diagnosed with meningeal mets to my brain and also a met in the muscle behind my eye all from ER+/PR+ HER2- breast cancer which has been bone only for two years. This seems to be very rare but I was wondering if anyone else is in the same position? My oncologist wants
BoneMetsAussie
in
SHARE Metastatic Breast Cancer
2 years ago
Latest Details on Approval of Oral SERDS - In Place of Faslodex Shots
Hi Fellow MBC’ers: Here is the latest I could find on the approval status of the long-awaited oral SERDs to replace those painful Faslodex shots: Patients with estrogen receptor–positive, HER2-negative advanced or metastatic breast cancer experienced a progression-free survival benefit after being treated
Hi Fellow MBC’ers: Here is the latest I could find on the approval status of the long-awaited oral SERDs to replace those painful Faslodex shots: Patients with estrogen receptor–positive, HER2-negative advanced or metastatic breast cancer experienced a progression-free survival benefit after being treated
hopenowandtomorrow
in
SHARE Metastatic Breast Cancer
2 years ago
Stunned, scared, sad, but grateful and happy to be here!
Hello everyone - I haven’t posted much, but wondering if I can get support, advice, experience. Me: 52yo. Mom of 21yo twins. I hit 10 years “clean” in Aug ‘21 post ER/PR+ IDC in 2011. Double mastectomy with DIEP reconstruction. Chemo and radiation. 7.5 years Tamoxifen then switched to Letrozole
Hello everyone - I haven’t posted much, but wondering if I can get support, advice, experience. Me: 52yo. Mom of 21yo twins. I hit 10 years “clean” in Aug ‘21 post ER/PR+ IDC in 2011. Double mastectomy with DIEP reconstruction. Chemo and radiation. 7.5 years Tamoxifen then switched to Letrozole
Fifilatour
in
SHARE Metastatic Breast Cancer
2 years ago
Are there any members of this group that currently have metastatic breast cancer that has spread to the abdomen/stomach area?"
I would like to get in touch with other survivors who are dealing with metastatic breast cancer that has spread to the stomach/abdomen area--mesentery, omentum and peritoneum. My original diagnosis (1995) was invasive lobular carcinoma (mastectomy, chemotherapy, and tamoxifen), and I had a local recurrence
I would like to get in touch with other survivors who are dealing with metastatic breast cancer that has spread to the stomach/abdomen area--mesentery, omentum and peritoneum. My original diagnosis (1995) was invasive lobular carcinoma (mastectomy, chemotherapy, and tamoxifen), and I had a local recurrence
PeabodyTerrace
in
SHARE Metastatic Breast Cancer
2 years ago
Vitamins on Ibrance and Letrozole
I’m taking Ibrance and Letrozole, any issues with Vitamin C? What vitamins do you take to keep your WBC high?
I’m taking Ibrance and Letrozole, any issues with Vitamin C? What vitamins do you take to keep your WBC high?
DDIL1
in
SHARE Metastatic Breast Cancer
2 years ago
Erolimus and Exemestane Treatment after Palbociclib stops working.
I am reaching out reference feedback on the Exemestane and Everolimus ( EE) treatment for SBC . I have lesions in spine, pelvis, occipital and just recently an additional 2 small ones in my liver. My oncologist had taken me off Palbocyclib and Letrozole ( which had worked successfully for 2 years) and
I am reaching out reference feedback on the Exemestane and Everolimus ( EE) treatment for SBC . I have lesions in spine, pelvis, occipital and just recently an additional 2 small ones in my liver. My oncologist had taken me off Palbocyclib and Letrozole ( which had worked successfully for 2 years) and
POPS60
in
SHARE Metastatic Breast Cancer
2 years ago
Fluctuating CA 15-3 tumor marker
Dx DCIS stage 0. 2/1/21. Lumpectomy, no rads/ chemo. Oncotype test showed low % recurrence. Feel great. Oncologist wants PET/CT due to increase in markers. Mine seemed to go up and down. Also my alka phosphatase level up to 175. Read Anastrozole could be culprit. Extremely high anxiety til scan done
Dx DCIS stage 0. 2/1/21. Lumpectomy, no rads/ chemo. Oncotype test showed low % recurrence. Feel great. Oncologist wants PET/CT due to increase in markers. Mine seemed to go up and down. Also my alka phosphatase level up to 175. Read Anastrozole could be culprit. Extremely high anxiety til scan done
Suz0130
in
My Ovacome
2 years ago
My Current Stack (what is in your stack?)
Update 6/29/22: Berberine may be neurotoxic. It is off of my stack: https://healthunlocked.com/cure-parkinsons/posts/148177820/finding-some-negatives-on-berberine-i-will-keep-digging ========= I have not been diagnosed with PD. I have REM Sleep Behavior Disorder, a sore left shoulder and sore left leg
Update 6/29/22: Berberine may be neurotoxic. It is off of my stack: https://healthunlocked.com/cure-parkinsons/posts/148177820/finding-some-negatives-on-berberine-i-will-keep-digging ========= I have not been diagnosed with PD. I have REM Sleep Behavior Disorder, a sore left shoulder and sore left leg
Bolt_Upright
in
Cure Parkinson's
2 years ago
Bleed at 8+2 - Update: Hematoma around gestational sac
Hi ladies, I’m 8+2 today. I had a scan on 7+3 which showed a lovely embryo measuring spot on and with strong and clear heartbeat. I had another scan yesterday (this time I allowed my husband to attend, I was too scared before) and again it was measuring well and looked line a mini human with head, arms
Hi ladies, I’m 8+2 today. I had a scan on 7+3 which showed a lovely embryo measuring spot on and with strong and clear heartbeat. I had another scan yesterday (this time I allowed my husband to attend, I was too scared before) and again it was measuring well and looked line a mini human with head, arms
FrancyItaly
in
Fertility Network UK - Pregnancy Support
2 years ago
Bleeding at 8+2 - Update: Hematoma around gestational sac
Hi ladies, I’m 8+2 today. I had a scan on 7+3 which showed a lovely embryo measuring spot on and with strong and clear heartbeat. I had another scan yesterday (this time I allowed my husband to attend, I was too scared before) and again it was measuring well and looked line a mini human with head, arms
Hi ladies, I’m 8+2 today. I had a scan on 7+3 which showed a lovely embryo measuring spot on and with strong and clear heartbeat. I had another scan yesterday (this time I allowed my husband to attend, I was too scared before) and again it was measuring well and looked line a mini human with head, arms
FrancyItaly
in
Fertility Network UK
2 years ago
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