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Major surgery and a Vasovagal event
I’ve been taking 5mg pred for a while. Reduced to 4.5 and after a few weeks began to feel unwell. I told my doctor who said go back on to 5mg. I then went into hospital last week. I had gluteal reconstructive surgery. The anaesthetist suggested I should increase my pred. So I did the sick day rule and
I’ve been taking 5mg pred for a while. Reduced to 4.5 and after a few weeks began to feel unwell. I told my doctor who said go back on to 5mg. I then went into hospital last week. I had gluteal reconstructive surgery. The anaesthetist suggested I should increase my pred. So I did the sick day rule and
Sumojo
in
PMRGCAuk
4 months ago
craniotomy swelling
I had a Craniotomy procedure 10 months ago I still have the right side of my scull exposed awaiting reconstructive surgery My head seems to swell quite a bit at the moment again where it’s exposed does anyone else have this problem
I had a Craniotomy procedure 10 months ago I still have the right side of my scull exposed awaiting reconstructive surgery My head seems to swell quite a bit at the moment again where it’s exposed does anyone else have this problem
Jodieb73
in
Headway
6 months ago
3 year rollercoaster
(Age35) Since then I have completed initial chemotherapy (AC &T), bilateral mastectomy, with
reconstruction
, 25 rounds of radiation to my left
breast
. Found out the cancer had spread to my brain (on my last day of radiation) at least 16 tumors, and lymph nodes in my chest.
(Age35) Since then I have completed initial chemotherapy (AC &T), bilateral mastectomy, with
reconstruction
, 25 rounds of radiation to my left
breast
. Found out the cancer had spread to my brain (on my last day of radiation) at least 16 tumors, and lymph nodes in my chest.
Warrio
in
My Breast Cancer Community
2 months ago
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delayed reconstruction
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
Jodieb73
in
Headway
7 months ago
Hormonal therapy ?
Hi, I was diagnosed with extended DCIS with ER+, PR+.I had a total mastectomy with a diep flap 2 weeks ago, My surgeon referred me to medical oncology for hormonal therapy. I am curious do I still need hormonal therapy as I already had a mastectomy, as far as cancer recurrence and preventing cancer
Hi, I was diagnosed with extended DCIS with ER+, PR+.I had a total mastectomy with a diep flap 2 weeks ago, My surgeon referred me to medical oncology for hormonal therapy. I am curious do I still need hormonal therapy as I already had a mastectomy, as far as cancer recurrence and preventing cancer
Rarlod
in
SHARE Breast Cancer Support
5 months ago
Radiated breast
Can anyone share their experience with
reconstruction
and radiated
breast
? Fluid collection, etc. Thanks in advance, I feel like this process is eternal!
Can anyone share their experience with
reconstruction
and radiated
breast
? Fluid collection, etc. Thanks in advance, I feel like this process is eternal!
mimosa412
in
SHARE Breast Cancer Support
2 months ago
Levo dose advice during IVF cycle - impact of HRT
Hello again 🙂 I’m wondering if anyone has any insight on the impact of HRT on Levo - Estrogen & Progesterone specifically which are the medications given during a Frozen Embryo Transfer cycle. NICE says there is anecdotal evidence of a moderate interaction between the medications. The progesterone
Hello again 🙂 I’m wondering if anyone has any insight on the impact of HRT on Levo - Estrogen & Progesterone specifically which are the medications given during a Frozen Embryo Transfer cycle. NICE says there is anecdotal evidence of a moderate interaction between the medications. The progesterone
StormsPass
in
Thyroid UK
1 day ago
Has anyone tried Celadrin or Glucosamine Sulphate for Fibro?
Hi, I recently read an article about someone with fibromyalgia who said Celadrin cream really helped them with their stiff muscles. I then did some reading of my own about it and found that celadrin works best when combined with glucosamine sulphate. Has anyone tried either of these for their fibro?
Hi, I recently read an article about someone with fibromyalgia who said Celadrin cream really helped them with their stiff muscles. I then did some reading of my own about it and found that celadrin works best when combined with glucosamine sulphate. Has anyone tried either of these for their fibro?
Twin4Life
in
Fibromyalgia Action UK
6 days ago
Evening Primrose update
Hi. I was diagnosed with stage 1 breast cancer a year ago. I had surgery and radiotherapy and was put on Letrozole. I have had a few problems with the Letrozole, which saw me come off it for a while. I was put back on it and the Oncology Nurse told me to take Evening Primrose oil. it’s been 3 months
Hi. I was diagnosed with stage 1 breast cancer a year ago. I had surgery and radiotherapy and was put on Letrozole. I have had a few problems with the Letrozole, which saw me come off it for a while. I was put back on it and the Oncology Nurse told me to take Evening Primrose oil. it’s been 3 months
Tabbycat64
in
My Breast Cancer Community
15 days ago
Lymph node deposits (aka TD's)
Dear all Hoping you are all as OK as possible. Having been originally diagnosed with breast cancer in Feb 2019, after which I had a lumpectomy and 3 lymph nodes removed(the latter were clear), I have been back and forth for many ops due to recurrences including a radical mastectomy after recurrence
Dear all Hoping you are all as OK as possible. Having been originally diagnosed with breast cancer in Feb 2019, after which I had a lumpectomy and 3 lymph nodes removed(the latter were clear), I have been back and forth for many ops due to recurrences including a radical mastectomy after recurrence
DJK99
in
My Breast Cancer Community
16 days ago
Taxol
Well , I had progression on my Liver and my onc wants to put me on Taxol for 3-4 months. I was told I could cold cap. I can also choose Trucap / Faslodex . I’ve been on Ibrance , Piqray, Enhertu and Kisqali . I don’t know why but Taxol sounds terrifying
Well , I had progression on my Liver and my onc wants to put me on Taxol for 3-4 months. I was told I could cold cap. I can also choose Trucap / Faslodex . I’ve been on Ibrance , Piqray, Enhertu and Kisqali . I don’t know why but Taxol sounds terrifying
Adele_Julia
in
My Breast Cancer Community
19 days ago
Taxol
Well , I had progression on my Liver and my onc wants to put me on Taxol for 3-4 months. I was told I could cold cap. I can also choose Trucap / Faslodex . I’ve been on Ibrance , Piqray, Enhertu and Kisqali . I don’t know why but Taxol sounds terrifying
Well , I had progression on my Liver and my onc wants to put me on Taxol for 3-4 months. I was told I could cold cap. I can also choose Trucap / Faslodex . I’ve been on Ibrance , Piqray, Enhertu and Kisqali . I don’t know why but Taxol sounds terrifying
Adele_Julia
in
My Breast Cancer Community
19 days ago
update after 2 yrs on Lynparza and looking for suggestions...
Hello, just wanted to provide an update after meeting my care team today after completing 2 years on Lynparza (after chemo and debulking surgery for hgs stg3b OC) 1. Ca125 very low, that's good. Rest blood parameters are as usual just below normal reference ranges (Rbc, wbc etc; platelets are good though
Hello, just wanted to provide an update after meeting my care team today after completing 2 years on Lynparza (after chemo and debulking surgery for hgs stg3b OC) 1. Ca125 very low, that's good. Rest blood parameters are as usual just below normal reference ranges (Rbc, wbc etc; platelets are good though
Goodgirl98
in
My Ovacome
1 month ago
change of therapy
Rarely post, but try to read as often as I can. Hope to get the advice based on your experience. Based on my scans it looks that I have progression. New bone mets. TM are trending higher, but not significant. No mutations. I’m in US. I’m on palbo+letrozole for almost 4 years, but of course not
Rarely post, but try to read as often as I can. Hope to get the advice based on your experience. Based on my scans it looks that I have progression. New bone mets. TM are trending higher, but not significant. No mutations. I’m in US. I’m on palbo+letrozole for almost 4 years, but of course not
Tolife_18
in
SHARE Metastatic Breast Cancer
1 month ago
Stage 3 Breast Cancer
I discovered a lump in my breast, had an MRI, biopsy, several scans and was diagnosed with stage 3C breast cancer. Started Anastrazole and Ibrance. After 2 weeks was taken off the Ibrance because wbc dropped too low. After 2 weeks off my wbc was still too low so am hoping to start a lower dose of
I discovered a lump in my breast, had an MRI, biopsy, several scans and was diagnosed with stage 3C breast cancer. Started Anastrazole and Ibrance. After 2 weeks was taken off the Ibrance because wbc dropped too low. After 2 weeks off my wbc was still too low so am hoping to start a lower dose of
catfreddie
in
SHARE Breast Cancer Support
1 month ago
Side Effects of Herceptin and Perjeta
I had 1.5 cm local, node negative breast cancer recurrence 3.3 years after my first breast cancer diagnosis. HER2+ PR+ ER+( triple positive). I opted not to have Chemo, but did have targeted therapy for the HER2+ cancer, Herceptin and Perjeta subcutaneous injections for a year. The worst constant side
I had 1.5 cm local, node negative breast cancer recurrence 3.3 years after my first breast cancer diagnosis. HER2+ PR+ ER+( triple positive). I opted not to have Chemo, but did have targeted therapy for the HER2+ cancer, Herceptin and Perjeta subcutaneous injections for a year. The worst constant side
Hidden
in
SHARE Breast Cancer Support
1 month ago
Bisoporol instead of Tildiem
Hoping for some advice. My wife has HCM and has had an ablation a few years ago. Her Afib seemed to calm down but recently it has increased dramatically. The ablation was carried out in London and appointments were not too difficult to obtain. We now live in Gloucestershire and it seems that getting
Hoping for some advice. My wife has HCM and has had an ablation a few years ago. Her Afib seemed to calm down but recently it has increased dramatically. The ablation was carried out in London and appointments were not too difficult to obtain. We now live in Gloucestershire and it seems that getting
sharpedge
in
Atrial Fibrillation Support
2 months ago
Recent diagnosis of MGUS.
I was diagnosed with stage 3 breast cancer 3 years ago ,this was followed by a lumpectomy and several weeks of radiotherapy.12 months ago l was diagnosed with Hypothyroidism and prescribed levothyroxine 75mg. After many more visits to the GP with severe body pains back,legs,feet and loss of muscle l
I was diagnosed with stage 3 breast cancer 3 years ago ,this was followed by a lumpectomy and several weeks of radiotherapy.12 months ago l was diagnosed with Hypothyroidism and prescribed levothyroxine 75mg. After many more visits to the GP with severe body pains back,legs,feet and loss of muscle l
Tilly101
in
My Breast Cancer Community
2 months ago
Importance of CLL Specialist
This excellent study was just published. Why should you get a CLL specialist? My community oncologist gave me a fish and a flow test and told me that I wouldn’t need treatment for 3-5 years. He didn’t test for IGVH and didn’t know that there is a specific TP53 test. My CLL specialist tested for 500 mutations
This excellent study was just published. Why should you get a CLL specialist? My community oncologist gave me a fish and a flow test and told me that I wouldn’t need treatment for 3-5 years. He didn’t test for IGVH and didn’t know that there is a specific TP53 test. My CLL specialist tested for 500 mutations
PennyLane2024
in
CLL Support
2 months ago
Medicare- under 65
Good Morning Everyone, I am under 65 and will be eligible for Medicare in a few short months. I never thought I would get a Medicare card at the age of 51. Anyone out there under the age of 65 (taking Ibrance and Letrozole with Zolodex injections) that would be willing to share the supplemental coverage
Good Morning Everyone, I am under 65 and will be eligible for Medicare in a few short months. I never thought I would get a Medicare card at the age of 51. Anyone out there under the age of 65 (taking Ibrance and Letrozole with Zolodex injections) that would be willing to share the supplemental coverage
Ski2sea
in
SHARE Metastatic Breast Cancer
2 months ago
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