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Brain tumours (low-grade/mixed)
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Glaucoma, OCT showing deterioration since starting Pred for PMR
I am on 17mgs Pred for PMR for 6 weeks. I have had glaucoma for 8yrs . At my opthalmology FU today the, OCT showed marked deterioration in one eye since March. The GCC Analysis has gone all red, when it was mildly yellow before. Has anyone else noted the same when they went on steroids? I am off for
I am on 17mgs Pred for PMR for 6 weeks. I have had glaucoma for 8yrs . At my opthalmology FU today the, OCT showed marked deterioration in one eye since March. The GCC Analysis has gone all red, when it was mildly yellow before. Has anyone else noted the same when they went on steroids? I am off for
Sillydogsmum
in
PMRGCAuk
10 months ago
Thyroid cancer
I have a close friend who’s just been diagnosed with thyroid cancer so is waiting for surgery. She has been told this is not the worst cancer to get and it will not kill her. So she is trying to be upbeat about it. Can you live normally without a thyroid please? I’d really like to give her some optimistic
I have a close friend who’s just been diagnosed with thyroid cancer so is waiting for surgery. She has been told this is not the worst cancer to get and it will not kill her. So she is trying to be upbeat about it. Can you live normally without a thyroid please? I’d really like to give her some optimistic
sidneymark70
in
Thyroid UK
10 months ago
Needing to hear some encouraging stories about stage 4 inoperable OC
Hello, everyone, This is my first post here although I’ve been reading everyone’s experiences for a few months. I have HG epithelial serous carcinoma OC stage IVa and had pleural effusion in the lungs and ascites which have both been drained and haven’t so far returned. I was diagnosed in January and
Hello, everyone, This is my first post here although I’ve been reading everyone’s experiences for a few months. I have HG epithelial serous carcinoma OC stage IVa and had pleural effusion in the lungs and ascites which have both been drained and haven’t so far returned. I was diagnosed in January and
Littlefluffycloud
in
My Ovacome
10 months ago
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ctDNA - signatera
has anyone had the signatera bloodwork test? It is somewhat new science and compares a current blood draw to original tumor biopsy tissue. It then look for a match and works to to detect circulating tumor dna (ctDNA) in blood. It assigns a numbers as to how much ctDNA is found. My Mets are bone only
has anyone had the signatera bloodwork test? It is somewhat new science and compares a current blood draw to original tumor biopsy tissue. It then look for a match and works to to detect circulating tumor dna (ctDNA) in blood. It assigns a numbers as to how much ctDNA is found. My Mets are bone only
Gardengirl345
in
SHARE Metastatic Breast Cancer
10 months ago
Going in for a radical Cystectomy, stopping Biologic.
Hello lovely people. My first six monthly Cystoscopy after getting the all clear from bladder cancer in January showed that the cancer was back with a vengeance. So on Monday I'll be undergoing a Radical Cystectomy. I'm OK and positive with the outlook of living without a bladder and lots of other bits
Hello lovely people. My first six monthly Cystoscopy after getting the all clear from bladder cancer in January showed that the cancer was back with a vengeance. So on Monday I'll be undergoing a Radical Cystectomy. I'm OK and positive with the outlook of living without a bladder and lots of other bits
stbernhard
in
NRAS
10 months ago
Starting Enhertu
was on Xeloda. Mets to liver and pleural cavity. Liver tumor increased slightly in size. Changing to Enhertu. More on my progress soon.
was on Xeloda. Mets to liver and pleural cavity. Liver tumor increased slightly in size. Changing to Enhertu. More on my progress soon.
Hotlantaphatz
in
SHARE Metastatic Breast Cancer
10 months ago
PSMA scan costs part 3
So in two prior posts, I wrote about what I was told a PSMA scan would cost. Then I wrote about what the hospital charged for the procedure.Now I have the EOB from insurance. So this is in the USA, for those international patients. So hospital billed $29,610 for the scan plus $7,305.70 for the facility
So in two prior posts, I wrote about what I was told a PSMA scan would cost. Then I wrote about what the hospital charged for the procedure.Now I have the EOB from insurance. So this is in the USA, for those international patients. So hospital billed $29,610 for the scan plus $7,305.70 for the facility
TJGuy
in
Advanced Prostate Cancer
10 months ago
Stopping Letrozole
Good afternoon. My wife had breast cancer 5 years ago. Lorraine was treated in Newcastle with surgery/radiotherapy. Happily all is good. Lorraine has been on Letrozole for nearly five years and here in Scotland the practice is to stop the Letrozole at the five year mark. My wife is nervous about
Good afternoon. My wife had breast cancer 5 years ago. Lorraine was treated in Newcastle with surgery/radiotherapy. Happily all is good. Lorraine has been on Letrozole for nearly five years and here in Scotland the practice is to stop the Letrozole at the five year mark. My wife is nervous about
7164
in
Cancer Support Scotland
10 months ago
Acalabrutinib/COVID/swollen lymph nodes under arm
Hi, I’ve been on Acalabrutinib for almost a year now. I have SLL. Everything had been going wonderfully, my lymph nodes significantly decreased in size, my 3-months follow up scan showed great results, my blood work looked normal, and the side effects were minimal. I recently noticed, however, that
Hi, I’ve been on Acalabrutinib for almost a year now. I have SLL. Everything had been going wonderfully, my lymph nodes significantly decreased in size, my 3-months follow up scan showed great results, my blood work looked normal, and the side effects were minimal. I recently noticed, however, that
Tofa80
in
CLL Support
10 months ago
Palliative care survey for less survivable cancer patients & loved ones (UK)
📣 The Less Survivable Cancers Taskforce have launched a vital survey to amplify the voices of people affected by a diagnosis of liver cancer and the less survivable cancers. The survey aims to provide insights so they can lobby for improvements to palliative care services, and to highlight any good
📣 The Less Survivable Cancers Taskforce have launched a vital survey to amplify the voices of people affected by a diagnosis of liver cancer and the less survivable cancers. The survey aims to provide insights so they can lobby for improvements to palliative care services, and to highlight any good
BritishLiverTrust1
Partner
in
British Liver Trust
10 months ago
from today’s NYT article
Not Everything We Call Cancer Should Be Called Cancer By Laura Esserman and Scott Eggener Dr. Esserman is a surgeon and breast cancer oncologist at the University of California, San Francisco. Dr. Eggener is a surgeon and urologic oncologist at the University of Chicago. “…..Let’s look at two examples
Not Everything We Call Cancer Should Be Called Cancer By Laura Esserman and Scott Eggener Dr. Esserman is a surgeon and breast cancer oncologist at the University of California, San Francisco. Dr. Eggener is a surgeon and urologic oncologist at the University of Chicago. “…..Let’s look at two examples
Dont08759
in
Advanced Prostate Cancer
10 months ago
If it’s not one thing, it's another! Update
Following on from the previous post, I had my appointment with the Ophthalmology Surgical Unit yesterday. Basically appeared to be a couple of pre-op tests to take measurements of my eyes. I’ve been given a contact number to call in a day or two to find out where on the waiting list I am. Hopefully
Following on from the previous post, I had my appointment with the Ophthalmology Surgical Unit yesterday. Basically appeared to be a couple of pre-op tests to take measurements of my eyes. I’ve been given a contact number to call in a day or two to find out where on the waiting list I am. Hopefully
Gulfstream_Maggie
in
Fibromyalgia Action UK
10 months ago
Ibrance and supplements
I belong to those who are very careful in taking food supplements. My oncologist recommended not to take calcium and vitamin D because I have a high level of calcium in my blood. I mainly use vitamin C, and I try to compensate everything else from food. I am 69 years old and use Ibrance 100 + fulvestrant
I belong to those who are very careful in taking food supplements. My oncologist recommended not to take calcium and vitamin D because I have a high level of calcium in my blood. I mainly use vitamin C, and I try to compensate everything else from food. I am 69 years old and use Ibrance 100 + fulvestrant
hopehope67
in
SHARE Metastatic Breast Cancer
10 months ago
Update: Carbo/Etoposide for Dad’s Liver Mets
My dad has his 6th round of Carbo/Etoposide next week. The last 2 rounds have been very difficult on my dad. We thought he was lucky in the beginning as the side effects were manageable and attributed it to my dad being young and previously very active. It’s definitely true that chemo is cumulative.
My dad has his 6th round of Carbo/Etoposide next week. The last 2 rounds have been very difficult on my dad. We thought he was lucky in the beginning as the side effects were manageable and attributed it to my dad being young and previously very active. It’s definitely true that chemo is cumulative.
antisocialsocialwrkr
in
Advanced Prostate Cancer
10 months ago
First bout of Covid
Well controlled 74 year old Asthmatic on Relvar Ellipta. Recently became ill whilst on holiday in Sunny Spain. Peak flow down to 350 normally 550 night of return to UK. Seen in respiratory clinic day after peak flow improved to 425 crackles on lung prescribed Antibiotics and 40mg prednisolone for 5 days
Well controlled 74 year old Asthmatic on Relvar Ellipta. Recently became ill whilst on holiday in Sunny Spain. Peak flow down to 350 normally 550 night of return to UK. Seen in respiratory clinic day after peak flow improved to 425 crackles on lung prescribed Antibiotics and 40mg prednisolone for 5 days
Noddy66
in
Asthma Community Forum
9 months ago
fatigue
i have been taking Firmagon for 3 months Since I started am Lucky i have no more pain or very little. My only problem is fatigue . I am supposed to start next week on Apalutamide. I am wondering it is a good combination . Also if my fatigue will get worse . Does anyone knows Thank you
i have been taking Firmagon for 3 months Since I started am Lucky i have no more pain or very little. My only problem is fatigue . I am supposed to start next week on Apalutamide. I am wondering it is a good combination . Also if my fatigue will get worse . Does anyone knows Thank you
Raminagrobis
in
Advanced Prostate Cancer
10 months ago
mCRPC- What is double negative prostate cancer along with the other 4 subtypes.
In research trying to understand my PSMA-negative FDG-positive current scenario I've come across some interesting articles that I thought I'd share with the group. I'm consulting with a new MO on Wednesday and I'm hoping she can shed some light on my progression. This paper came out 2 weeks ago- it's
In research trying to understand my PSMA-negative FDG-positive current scenario I've come across some interesting articles that I thought I'd share with the group. I'm consulting with a new MO on Wednesday and I'm hoping she can shed some light on my progression. This paper came out 2 weeks ago- it's
V10fanatic
in
Advanced Prostate Cancer
10 months ago
Epstein lab question
Does anyone know if the Epstein Lab at Johns Hopkins has expertise in gynecological cancers comparable to it expertise in prostate cancer?
Does anyone know if the Epstein Lab at Johns Hopkins has expertise in gynecological cancers comparable to it expertise in prostate cancer?
Papa1
in
Advanced Prostate Cancer
10 months ago
Cancer Center Keeps Making Errors that make my application for a Medical Marijuana card get denied
I am so frustrated! My second application for a MMC was denied as the Physicians License # was in error. The first one was denied because their phone number was not included. This is just crazy! I've written a letter about that to them and will be giving it to either my onc or the NP that I see
I am so frustrated! My second application for a MMC was denied as the Physicians License # was in error. The first one was denied because their phone number was not included. This is just crazy! I've written a letter about that to them and will be giving it to either my onc or the NP that I see
PJBinMI
in
SHARE Metastatic Breast Cancer
10 months ago
Treatment wait length- Public Health System Ireland
Hi all, I'm waiting on a scan appointment for suspected Ovarian Cyst and I'm in a lot of pain. I'm paying for it myself as I don't have health insurance and my consultant said I could be waiting 3 months on the Public Health waiting list. My mom had a 1kg cyst removed a few years ago and full hysterectomy
Hi all, I'm waiting on a scan appointment for suspected Ovarian Cyst and I'm in a lot of pain. I'm paying for it myself as I don't have health insurance and my consultant said I could be waiting 3 months on the Public Health waiting list. My mom had a 1kg cyst removed a few years ago and full hysterectomy
MadMadam
in
OvaCare
10 months ago
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