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Just been diagnosed with PMR 3 weeks after having Gall Bladder removed??
I’ve just been diagnosed with PMR after 3 weeks of severe pain in shoulders, arm, wrists, hips & thighs. Taking 15mg of Prednisolone & will be starting Cali-D & Alendronic in a few days. My question is and no doctor has told me yes or no is this anyway connected to my bout of gallstones and acute pancreatitis
I’ve just been diagnosed with PMR after 3 weeks of severe pain in shoulders, arm, wrists, hips & thighs. Taking 15mg of Prednisolone & will be starting Cali-D & Alendronic in a few days. My question is and no doctor has told me yes or no is this anyway connected to my bout of gallstones and acute pancreatitis
Shadowboxes
in
PMRGCAuk
5 months ago
Gingko Biloba - Supplement Advice
Hello everyone, I'm reaching out for advice on using Ginkgo Biloba to combat brain fog. My previous experience with the Amitamin Ginkgo complex yielded promising results in boosting mental clarity. However, I've noticed it contains iodine (150ug), which I'd rather steer clear of. With that in mind
Hello everyone, I'm reaching out for advice on using Ginkgo Biloba to combat brain fog. My previous experience with the Amitamin Ginkgo complex yielded promising results in boosting mental clarity. However, I've noticed it contains iodine (150ug), which I'd rather steer clear of. With that in mind
BookLover2020
in
Thyroid UK
3 months ago
Very interesting video on controversial issues regarding managing Parkinson’s at different stages (from 2 guys that seem smart).
Controversies in the Use of Medications, Herbs, and Early DBS for Parkinson's April 2024:
https://youtu.be/RhaUZFczGmc?si=R0Nb5tfh3jFnvZdg Movement Disorders Foundation of Arizona: Movement disorders neurologists Dr. Paarth Shah and Dr. Virgilio Gerald Evidente will be discussing in a panel discussion
Controversies in the Use of Medications, Herbs, and Early DBS for Parkinson's April 2024:
https://youtu.be/RhaUZFczGmc?si=R0Nb5tfh3jFnvZdg Movement Disorders Foundation of Arizona: Movement disorders neurologists Dr. Paarth Shah and Dr. Virgilio Gerald Evidente will be discussing in a panel discussion
Bolt_Upright
in
Cure Parkinson's
4 months ago
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apomorphine, anyone on this?
Hi all, was offered apomorphine with pump not injection. is anyone using this and has it made a difference i know everyone is different just trying to get a bit of perspective before i start it? been having issues with oral forms of medication either dyskinetic on or cant move off not much in the middle
Hi all, was offered apomorphine with pump not injection. is anyone using this and has it made a difference i know everyone is different just trying to get a bit of perspective before i start it? been having issues with oral forms of medication either dyskinetic on or cant move off not much in the middle
Todd-pw
in
Cure Parkinson's
4 months ago
Does anyone with LUPUS get reoccurring Shingles/ Herpes Zoster infections?
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
Severancered9
in
LUPUS UK
4 months ago
Meds not working well again
My PD husband and has been taking 4 or 5 sinemet 50/250 CR for about a year and started using neuropro patch 2mg 6 months ago. He was on madopar for several years prior, but it was never right for him. Suddenly it seems his meds aren't working and the pd symptoms are severe again. The neurologist
My PD husband and has been taking 4 or 5 sinemet 50/250 CR for about a year and started using neuropro patch 2mg 6 months ago. He was on madopar for several years prior, but it was never right for him. Suddenly it seems his meds aren't working and the pd symptoms are severe again. The neurologist
PDsux_10
in
Cure Parkinson's
4 months ago
The things pred does to blood sugar & weight – oh joy…
Apologies in advance to those who may have read a variation on this as a reply to a thread started by Shires123. When I was diagnosed with PMR nearly 4 years ago, I was also about 20kg overweight and I went on a 20gm carbs "keto" diet (based on information on the dietdoctor website recommended by others
Apologies in advance to those who may have read a variation on this as a reply to a thread started by Shires123. When I was diagnosed with PMR nearly 4 years ago, I was also about 20kg overweight and I went on a 20gm carbs "keto" diet (based on information on the dietdoctor website recommended by others
ubaoz
in
PMRGCAuk
5 months ago
Daily Diary w/c 25th March 2024: Part 1
Hello everyone and welcome to this week’s daily diary. I hope you are keeping well and enjoying the start to spring 😊 I am particularly enjoying the magnolias this year, they really are amazing around here. For those new to the diary, this is where we record our eating plans for the day, share ideas
Hello everyone and welcome to this week’s daily diary. I hope you are keeping well and enjoying the start to spring 😊 I am particularly enjoying the magnolias this year, they really are amazing around here. For those new to the diary, this is where we record our eating plans for the day, share ideas
babss
2 stone
in
Weight Loss Support
5 months ago
Shingles jab refused, ( immune suppressed )
I was 64 ( Oct 2023 ) i inquired about the shingles jab, but was refused ???
I was 64 ( Oct 2023 ) i inquired about the shingles jab, but was refused ???
alast1959
in
NRAS
4 months ago
AFib after 2nd Shingles jab
I only occasionally get Afib now following an ablation in 2020, but I had my 2nd shingles jab 3 days ago and it seems to have kicked off my afib again albeit not constantly. I just wondered if anyone else has had the same effect from the 2nd jab (as it is supposedly worse than the 1st) or is it just
I only occasionally get Afib now following an ablation in 2020, but I had my 2nd shingles jab 3 days ago and it seems to have kicked off my afib again albeit not constantly. I just wondered if anyone else has had the same effect from the 2nd jab (as it is supposedly worse than the 1st) or is it just
destiny234
in
Atrial Fibrillation Support
4 months ago
deep brain stimulation
I am considering DBS. Please share any experiences and outcomes that may help me make the decision to whether or not… thanks in advance!
I am considering DBS. Please share any experiences and outcomes that may help me make the decision to whether or not… thanks in advance!
DonnaMc1968
in
Cure Parkinson's
4 months ago
Never feel well
I had an Overactive Thyroid that’s was treated with a mix of Carbimazole and Levothyroxine. Things seemed to settle then around 10 years later I developed an Underactive Thyroid, since then I have never felt 100% well. I am around 17st stone. I have always lost weight then put it back on and more my
I had an Overactive Thyroid that’s was treated with a mix of Carbimazole and Levothyroxine. Things seemed to settle then around 10 years later I developed an Underactive Thyroid, since then I have never felt 100% well. I am around 17st stone. I have always lost weight then put it back on and more my
Janeyf54
in
Thyroid UK
5 months ago
Blueberry keto cake
This is one of the low carb cakes that Fran posted last week. It is surprisingly good! https://girleatsworld.co.uk/keto-cake/
This is one of the low carb cakes that Fran posted last week. It is surprisingly good! https://girleatsworld.co.uk/keto-cake/
Sharitone
in
PMRGCAuk
5 months ago
filgotinib and shingles,
hi everyone Just getting over last 2 weeks of awful shingles ,my god painful or what!! As I am on filgotinib and it lists side effect can be reactivation of shingles virus,I can only assume it is that.Has anyone else had shingles while on any of the JAK meds? Pharmacist prescribed antivirals within
hi everyone Just getting over last 2 weeks of awful shingles ,my god painful or what!! As I am on filgotinib and it lists side effect can be reactivation of shingles virus,I can only assume it is that.Has anyone else had shingles while on any of the JAK meds? Pharmacist prescribed antivirals within
Doodlereggie
in
NRAS
4 months ago
Tremor Assessment
Has anyone had a tremor assessment prior to deep brain stimulation?
Has anyone had a tremor assessment prior to deep brain stimulation?
Ostap
in
Ataxia UK
5 months ago
Iodine and Povidone - A Chemistry Lesson
Over the years, we have seen many mentions of povidone-iodine. This video is the first time I have ever come across a proper explanation as to why povidone-iodine is chosen! It then continues with its aim of extracting pure iodine from povidone-iodine. The video could be very boring if you are
Over the years, we have seen many mentions of povidone-iodine. This video is the first time I have ever come across a proper explanation as to why povidone-iodine is chosen! It then continues with its aim of extracting pure iodine from povidone-iodine. The video could be very boring if you are
helvella
Thyroid UK
in
Thyroid UK
4 months ago
DBS: Medtronic question re. voice
Hi everyone. As many of you know I had DBS last August. Didn’t reverse my symptoms 5 years as was touted by my neuro but patched me up to fight another couple of rounds. When I was switched on, after a day or so I noticed that it was much harder to speak: volume and articulacy were much harder to produce
Hi everyone. As many of you know I had DBS last August. Didn’t reverse my symptoms 5 years as was touted by my neuro but patched me up to fight another couple of rounds. When I was switched on, after a day or so I noticed that it was much harder to speak: volume and articulacy were much harder to produce
jeeves19
in
Cure Parkinson's
5 months ago
Insomnia
Hello, I was diagnosed PD when i was 37, now I'm 46 years old. 5 months ago i was DBS. After surgery, things did not go bad, but not as good I have expected. On March 7th i was reajusted the neurostimulator by my neourologist. On March 15th i started HDT Protocol, 50 mg sublingual on alternative days
Hello, I was diagnosed PD when i was 37, now I'm 46 years old. 5 months ago i was DBS. After surgery, things did not go bad, but not as good I have expected. On March 7th i was reajusted the neurostimulator by my neourologist. On March 15th i started HDT Protocol, 50 mg sublingual on alternative days
carlosgarcia2048
in
Cure Parkinson's
5 months ago
Low dose Naltrexone
I just had a health care person suggest I research Low Dose Naltrexone for my RLS. so I’ve been reading on it a bit and have seen cases where it’s helped people. There was even a post on this site, I believe about 2014, regarding this. But I’ve never seen any current discussion on. Has anyone tried
I just had a health care person suggest I research Low Dose Naltrexone for my RLS. so I’ve been reading on it a bit and have seen cases where it’s helped people. There was even a post on this site, I believe about 2014, regarding this. But I’ve never seen any current discussion on. Has anyone tried
BluGenie
in
Restless Legs Syndrome
6 hours ago
Does the brain need cholesterol?
Does the brain need cholesterol? Answered by Dr. George Yiachos, Cardiologist https://youtu.be/Q_OAzwzUqWQ For information on LDN, go to https://linktr.ee/ldnrt Our webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-courses We have
Does the brain need cholesterol? Answered by Dr. George Yiachos, Cardiologist https://youtu.be/Q_OAzwzUqWQ For information on LDN, go to https://linktr.ee/ldnrt Our webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-courses We have
Shewulf
Administrator
in
LDN Research Trust
15 hours ago
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