ongoing symptoms

[Tsararab]

Hi I’m new to the group, I had a tumour removed from my Pineal gland in November 2020 since then I have had a VP shunt implanted in April this year because where the tumour was removed a cyst decided to grow which blocked the flow of csf I still have ongoing symptoms like dizziness ,headaches I was hoping that having the shunt put it that it would be the end of it and I can start having some sort of normal life, I see a lot of other people on here are experienced the same sort of systems it’s very frustrating at the best of times

[sashaming1]

Welcome. You'll be able to learn something here.

[lcd8]

Hi there. I have an AVM which blocks the flow of CSF in the same way. I've had a VP Shunt for this since I was 14. I agree, v frustrating.

[spideyman in reply to lcd8]

I’ve got a shunt and in the early years it blocked. The last time it blocked I was in Manchester about 20 yrs ago and it couldn’t be removed so it was “piggy backed”.

I had a cluster of aneurysms that were removed a few yrs later in Sheffield using Stereotactic Radiotherapy.

Doctors said I might not need the shunt but it’s constantly on my mind about it blocking.

Should I worry?

[lcd8 in reply to spideyman]

Please try not to worry. You would know if it blocked, I'm sure. My understanding is that getting a blockage in a Shunt is really common though especially after a period of time. But then on saying that my current Shunt was placed in 2007 and is still going strong

[spideyman in reply to lcd8]

I think the last time was Manchester about 1990