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Brain arteriovenous malformation (AVM)
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blood sugar levels
I read that levodopa carbadopa increases your blood level of glucose does anyone take any non-dopamine therapy that works when I take levadopa I can’t stand up. And all of my te tendons, get weak and burn. I also have Lyme disease I’ll read that to her and dopamine enhance Lyme disease.
I read that levodopa carbadopa increases your blood level of glucose does anyone take any non-dopamine therapy that works when I take levadopa I can’t stand up. And all of my te tendons, get weak and burn. I also have Lyme disease I’ll read that to her and dopamine enhance Lyme disease.
Marcia123
in
Cure Parkinson's
2 years ago
PLEASE REPLY IF YOU ARE A NON TREMOR DOMINANT PARKISON'S PATIENT WHO HAD DEEP BRAIN STIMULATION DONE.
MY QUESTIONS ARE : DID YOU HAVE BALANCE AND GAIT PROBLEMS BEFORE HAVING DBS SURGERY? iF YES,DID DBS HELP WITH IMPROVING YOUR GAIIT AND BALANCE? 2)WHAT ARE THE BENEFITS THAT YOU GAIN FROM DBS? 3) WHEN WAS YOU DBS DONE? 4) WILL YOU DO IT AGAI N?
MY QUESTIONS ARE : DID YOU HAVE BALANCE AND GAIT PROBLEMS BEFORE HAVING DBS SURGERY? iF YES,DID DBS HELP WITH IMPROVING YOUR GAIIT AND BALANCE? 2)WHAT ARE THE BENEFITS THAT YOU GAIN FROM DBS? 3) WHEN WAS YOU DBS DONE? 4) WILL YOU DO IT AGAI N?
OREOLU
in
Cure Parkinson's
2 years ago
Information Packs
Our Information Pack is full of useful knowledge, from practical advice, to tips on where to find the best support. It includes information about tumour types and treatments, what to ask your medical team and important things to consider. While packs may be particularly useful for those who have recently
Our Information Pack is full of useful knowledge, from practical advice, to tips on where to find the best support. It includes information about tumour types and treatments, what to ask your medical team and important things to consider. While packs may be particularly useful for those who have recently
Zhaleh_TBTC
Administrator
in
Acoustic Neuroma Support
2 years ago
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PD-related acronyms
I had compiled this list for another forum. Trust it will be helpful for heathunlocked readers, too. BBB = Blood Brain Barrier CD = Carbidopa CD/LD = Comination of carbidopa and levodopa C/L = Carbidopa/levodopa CNS = Central Nervous System CR = Controlled Relase DA = Dopamine agonist DBS
I had compiled this list for another forum. Trust it will be helpful for heathunlocked readers, too. BBB = Blood Brain Barrier CD = Carbidopa CD/LD = Comination of carbidopa and levodopa C/L = Carbidopa/levodopa CNS = Central Nervous System CR = Controlled Relase DA = Dopamine agonist DBS
Bennorca
in
Cure Parkinson's
2 years ago
Pre-Obstructive Hydrocephalus
My neurosurgeon has diagnosed me with 'pre hydrocephalus'. It's on its way. Saw the annual MRI scan and the 1.9 cm pineal cyst from 2018 has grown, beginning to block and ventricles have begun to swell bigger. I already suffer chronic and hemiplegic migraines and the symptoms from those mix with the
My neurosurgeon has diagnosed me with 'pre hydrocephalus'. It's on its way. Saw the annual MRI scan and the 1.9 cm pineal cyst from 2018 has grown, beginning to block and ventricles have begun to swell bigger. I already suffer chronic and hemiplegic migraines and the symptoms from those mix with the
Decode
in
Headway
2 years ago
Recording now available for NoSilverBullet presentation by Dr A Fasano on "DBS, Focused Ultrasound and Infusion Pumps"
Dr. Fasano is Professor of Neurology at the University of Toronto and one of the world leaders in deep brain stimulation. Watch his presentation on YouTube here https://www.youtube.com/watch?v=g5z7tYJrxsU Or listen to it as a podcast on Spotify here https://open.spotify.com/show/6WIgOhwJemjqE2bnDPu44P
Dr. Fasano is Professor of Neurology at the University of Toronto and one of the world leaders in deep brain stimulation. Watch his presentation on YouTube here https://www.youtube.com/watch?v=g5z7tYJrxsU Or listen to it as a podcast on Spotify here https://open.spotify.com/show/6WIgOhwJemjqE2bnDPu44P
Michel0220
in
Cure Parkinson's
2 years ago
Fantastic series of Videos charting one lady’s DBS journey
Produced by Parkinson’s UK, this fantastic series of 10 videos, (to date), charts the journey of Jo Yaldren from thinking about having DBS , through medical assessments, doctors case discussions, tests, meeting with the surgeon and the surgery itself. Very much a personal record with Jo sharing the
Produced by Parkinson’s UK, this fantastic series of 10 videos, (to date), charts the journey of Jo Yaldren from thinking about having DBS , through medical assessments, doctors case discussions, tests, meeting with the surgeon and the surgery itself. Very much a personal record with Jo sharing the
Buckholt
in
Cure Parkinson's
2 years ago
Deep Brain Stimulation
Study from China on Parkinson's patients with RLS showed Deep Brain Stimulation reduced RLS & helped sleep.I certainly wouldn't consider it. Seems too extreme but if the Parkinson's patients are having the treatment to help tremor, it would be sensible to see if stimulation in another area relieves RLS
Study from China on Parkinson's patients with RLS showed Deep Brain Stimulation reduced RLS & helped sleep.I certainly wouldn't consider it. Seems too extreme but if the Parkinson's patients are having the treatment to help tremor, it would be sensible to see if stimulation in another area relieves RLS
Joolsg
in
Restless Legs Syndrome
2 years ago
Technical ability of surgeon resulted in poor outcomes in DBS patients
"[i]Electrodes have to be put in the correct place or within 1-2mm, otherwise they can damage a person's speech and balance.[/i] [i]It[/i][i] examined 22 cases involving 21 patients between 2017 and 2019 and found in only three the electrodes were placed in a good position. Five were usable and 13 were
"[i]Electrodes have to be put in the correct place or within 1-2mm, otherwise they can damage a person's speech and balance.[/i] [i]It[/i][i] examined 22 cases involving 21 patients between 2017 and 2019 and found in only three the electrodes were placed in a good position. Five were usable and 13 were
Seamus6
in
Cure Parkinson's
2 years ago
Continuous Electrical Neuromodulation of the Globus Pallidus Intern in Parkinson's Disease by the Directional Electrode
https://clinicaltrials.gov/ct2/show/NCT05626608 The hypothesis is that the efficacy of DBS in directional mode will be more effective on the motor signs of Parkinson's disease compared to omnidirectional stimulation and bipolar mode, with a better tolerance profile (fewer side effects).
https://clinicaltrials.gov/ct2/show/NCT05626608 The hypothesis is that the efficacy of DBS in directional mode will be more effective on the motor signs of Parkinson's disease compared to omnidirectional stimulation and bipolar mode, with a better tolerance profile (fewer side effects).
Hidden
in
Cure Parkinson's
2 years ago
video: GNI Grand Rounds: Deep Brain Stimulation for Parkinson’s Disease: Where we are and where we’re going
https://www.youtube.com/watch?v=i5BcRkcocqY
https://www.youtube.com/watch?v=i5BcRkcocqY
Hidden
in
Cure Parkinson's
2 years ago
Driving Licence Application
In Jan 2022 I reapplied for my driving licence having had it revoked due to a brain tumour diagnosis in Dec 2020. I had successful surgery to remove the tumour in Mar 2021 and underwent voluntary radio and chemo therapies, with the latter finishing in Jun this year. My tumour (low grade) caused seizures
In Jan 2022 I reapplied for my driving licence having had it revoked due to a brain tumour diagnosis in Dec 2020. I had successful surgery to remove the tumour in Mar 2021 and underwent voluntary radio and chemo therapies, with the latter finishing in Jun this year. My tumour (low grade) caused seizures
busyfool
in
Headway
2 years ago
brain tumour
Hi, I have a 9mm acoustic neuroma I had a CT scan done this April I was told in July that it has grown but in the last 8 weeks I have had headaches every day and night. I eventually went / got to see my GP who says she is not sure my white cells are down she said she THINKS my CT scan would have
Hi, I have a 9mm acoustic neuroma I had a CT scan done this April I was told in July that it has grown but in the last 8 weeks I have had headaches every day and night. I eventually went / got to see my GP who says she is not sure my white cells are down she said she THINKS my CT scan would have
Ballantyne56
in
Acoustic Neuroma Support
2 years ago
Mything the point: Some Thoughts on Living Well with PD
This sort of thing is a tough sell in the sense that people running the show at PD websites are worried that submissions that aren't predictably positive or upbeat in tone might upset regular readers. In some cases, fundraising' may come into play. As noted in the piece, I'm not trying to stir up a
This sort of thing is a tough sell in the sense that people running the show at PD websites are worried that submissions that aren't predictably positive or upbeat in tone might upset regular readers. In some cases, fundraising' may come into play. As noted in the piece, I'm not trying to stir up a
slapdasch4
in
Cure Parkinson's
2 years ago
Zoom session at 4 pm GMT on Thursday 15th of December: "DBS, Focused Ultrasound and Infusion Pumps: how these technologies can help PwPs"
I am delighted to announce our next NoSilverBullet zoom session that will be taking place at 4pm London time (11am Toronto time) on Thursday, the 15th of December. We will have the pleasure of listening to Dr. Alfonso Fasano, Professor of Neurology at the University of Toronto and one of the world
I am delighted to announce our next NoSilverBullet zoom session that will be taking place at 4pm London time (11am Toronto time) on Thursday, the 15th of December. We will have the pleasure of listening to Dr. Alfonso Fasano, Professor of Neurology at the University of Toronto and one of the world
Michel0220
in
Cure Parkinson's
2 years ago
A Bit Off Topic, FMT In A Single Case Report, Stopped ALS Progression And Improved Symptoms
According to the following case report, the title of this post is correct : http://www.jbr-pub.org.cn/article/doi/10.7555/JBR.36.20220088 Here is a relevant quote from the case report :
' The subsequent rescue WMTs successfully stopped the progression of the disease with quick improvement. The
According to the following case report, the title of this post is correct : http://www.jbr-pub.org.cn/article/doi/10.7555/JBR.36.20220088 Here is a relevant quote from the case report :
' The subsequent rescue WMTs successfully stopped the progression of the disease with quick improvement. The
chartist
in
Cure Parkinson's
2 years ago
Shingles vaccine
Has anyone here has the shingles vaccine? I know that the usual one is a live vaccine but the nurse at the surgery told me that there is a two-dose non-live one I could have if it didn’t compromise my condition. I do have a haematology phone appointment coming up but not for a few weeks yet so I wondered
Has anyone here has the shingles vaccine? I know that the usual one is a live vaccine but the nurse at the surgery told me that there is a two-dose non-live one I could have if it didn’t compromise my condition. I do have a haematology phone appointment coming up but not for a few weeks yet so I wondered
Garstongal
in
MPN Voice
2 years ago
Long-Term Outcomes of Bilateral Subthalamic Nucleus Deep Brain Stimulation for Patients With Parkinson's Disease: 10 Years and Beyond
https://pubmed.ncbi.nlm.nih.gov/36084204/?utm_source=dlvr.it&utm_medium=twitter Methods: We investigated all 81 patients including 37 males and 44 females who underwent bilateral STN DBS from March 2005 to March 2008 at a single institution. The current survival status of the patients was investigated
https://pubmed.ncbi.nlm.nih.gov/36084204/?utm_source=dlvr.it&utm_medium=twitter Methods: We investigated all 81 patients including 37 males and 44 females who underwent bilateral STN DBS from March 2005 to March 2008 at a single institution. The current survival status of the patients was investigated
Hidden
in
Cure Parkinson's
2 years ago
Panic (in the streets of Birmingham)
Couldn’t resist this allusion to a song by the Smiths and I do live in Birmingham (not Alabama!). I was surprised when asking for a search to be done on our site how few posts there were with Panic in the title. I’m panicking quite a lot recently due to obvious progression of the disease. I’m panicking
Couldn’t resist this allusion to a song by the Smiths and I do live in Birmingham (not Alabama!). I was surprised when asking for a search to be done on our site how few posts there were with Panic in the title. I’m panicking quite a lot recently due to obvious progression of the disease. I’m panicking
jeeves19
in
Cure Parkinson's
2 years ago
Shingles vaccine to have or not to have
My rheumie has recommended that I have the shingles jab. and informed the vaccination centre. A lady from there phoned me regarding this and I said I would prefer the non-live vaccine as opposed to the live one. She said that I could not choose as the nurse would decide after seeing me. I was diagnosed
My rheumie has recommended that I have the shingles jab. and informed the vaccination centre. A lady from there phoned me regarding this and I said I would prefer the non-live vaccine as opposed to the live one. She said that I could not choose as the nurse would decide after seeing me. I was diagnosed
PatB1948
in
PMRGCAuk
2 years ago
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