Search
Search
About
Log in
Join
Experiences with
Brain arteriovenous malformation (AVM)
Posts
Communities
1,944 public posts
Filter results
Focused Ultrasound Trial Finds Promise for Parkinson’s Patients
Of the 69 patients who received the procedure in the randomized trial, almost 70% responded to the treatment. Thirty-nine participants who received the procedure continued to see significant benefits three months later, and 30 of those assessed at the one-year mark continued to see benefits. The procedure
Of the 69 patients who received the procedure in the randomized trial, almost 70% responded to the treatment. Thirty-nine participants who received the procedure continued to see significant benefits three months later, and 30 of those assessed at the one-year mark continued to see benefits. The procedure
Farooqji
in
Cure Parkinson's
1 year ago
Rheumatoid Meningitis Recovery
Has anyone out there had rheumatoid meningitis? I was recently treated for it and am looking for others who have had this experience or just experience with recovering from aseptic meningitis in general. I was diagnosed with RF positive RA in 2012. My disease has been stable on Cimzia for 6+ years.
Has anyone out there had rheumatoid meningitis? I was recently treated for it and am looking for others who have had this experience or just experience with recovering from aseptic meningitis in general. I was diagnosed with RF positive RA in 2012. My disease has been stable on Cimzia for 6+ years.
ChiChiCo
in
Meningitis Now
1 year ago
DBS procedure
Anyone had a DBS surgery, what type of complications experienced afterwards. I me young on set pd patient, and I got disease 7 years and I me considering to go for DBS operation so info please
Anyone had a DBS surgery, what type of complications experienced afterwards. I me young on set pd patient, and I got disease 7 years and I me considering to go for DBS operation so info please
Arthurtunga
in
Cure Parkinson's
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Shingles vaccine
My wife was refused the shingles vaccine by her GP as she wasn't old enough (not over 70) we asked for it a year after she had shingles which she really suffered from and still has a bit of discomfort from. Has any MPN patients been refused because of their age?
My wife was refused the shingles vaccine by her GP as she wasn't old enough (not over 70) we asked for it a year after she had shingles which she really suffered from and still has a bit of discomfort from. Has any MPN patients been refused because of their age?
jointpain
in
MPN Voice
1 year ago
Looking for a good DBS programmer in upstate New York
DBS Programmers
DBS Programmers
Daniou
in
Cure Parkinson's
1 year ago
Your Complex Brain Podcast: Season 2 Episode 3 – The Future of DBS
https://www.uhn.ca/Krembil/Complex-Brain-Podcast/Pages/season-two.aspx https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5idXp6c3Byb3V0LmNvbS8xOTQ3OTc4LnJzcw==
https://www.uhn.ca/Krembil/Complex-Brain-Podcast/Pages/season-two.aspx https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5idXp6c3Byb3V0LmNvbS8xOTQ3OTc4LnJzcw==
Hidden
in
Cure Parkinson's
1 year ago
Onset/diagnosis after years
Good morning. I welcome you very warmly. This is my first post. I am not from UK, so my English is poor, sorry for any mistakes. In a nutshell: my aunt got sick in 2012. The diagnosis: Parkinson's. Treatment with levodopa had short-lived effects so doctors decided to use DBS therapy. DBS did not have
Good morning. I welcome you very warmly. This is my first post. I am not from UK, so my English is poor, sorry for any mistakes. In a nutshell: my aunt got sick in 2012. The diagnosis: Parkinson's. Treatment with levodopa had short-lived effects so doctors decided to use DBS therapy. DBS did not have
Paulaaaa
in
PSP Association
1 year ago
Has anyone experienced benefits from coq10
According to the following article Comparing the youngest age people to the oldest, the number of striatal dopamine transporters was cut by 46%, or 6.6% per decade of life.3 The rate of loss of dopamine transporters is accelerated in Parkinson's patients, and this age-related factor may suggest why
According to the following article Comparing the youngest age people to the oldest, the number of striatal dopamine transporters was cut by 46%, or 6.6% per decade of life.3 The rate of loss of dopamine transporters is accelerated in Parkinson's patients, and this age-related factor may suggest why
Farooqji
in
Cure Parkinson's
1 year ago
DBS number of surgeries vary so much from 1 to 3. Main reason surgeons say safer less complications. Is there any proof?
my DBS surgery was completed in one hospital stay. The majority of others was 2-3 hospital stays. Is there research to support that there are less complications?
my DBS surgery was completed in one hospital stay. The majority of others was 2-3 hospital stays. Is there research to support that there are less complications?
Lbi1608
in
Cure Parkinson's
1 year ago
Free Counselling Service
At The Brain Tumour Charity, we are offering free telephone or webcam counselling sessions to anyone diagnosed with a brain tumour and their loved ones We’ve heard from those that have already used the service, that having a safe, confidential space, to talk about your experience, can be transformational
At The Brain Tumour Charity, we are offering free telephone or webcam counselling sessions to anyone diagnosed with a brain tumour and their loved ones We’ve heard from those that have already used the service, that having a safe, confidential space, to talk about your experience, can be transformational
Zhaleh_TBTC
Administrator
in
Acoustic Neuroma Support
2 years ago
lupus and shingles
Hey guys, I hope you’re all keeping safe and well. Just wondering if anyone has any tips or advice on how to manage having lupus and shingles! I got diagnosed on Wednesday and it’s safe to say I’m suffering a bit. Is there anything I should be looking out for? Avoiding? Thanks in advance!
Hey guys, I hope you’re all keeping safe and well. Just wondering if anyone has any tips or advice on how to manage having lupus and shingles! I got diagnosed on Wednesday and it’s safe to say I’m suffering a bit. Is there anything I should be looking out for? Avoiding? Thanks in advance!
Krishny18
in
LUPUS UK
1 year ago
dbs and massage chairs
THis might sound trival but I cannot find a good full massage chair which is pacemaker /DBS friendly. They all exclude people with these devices. Same goes for vibration plates. I get it, they both emit electromagnetic fields. So does my microwave and phone. Any suggestions for Massage chairs (Europe
THis might sound trival but I cannot find a good full massage chair which is pacemaker /DBS friendly. They all exclude people with these devices. Same goes for vibration plates. I get it, they both emit electromagnetic fields. So does my microwave and phone. Any suggestions for Massage chairs (Europe
Curious_Fred
in
Cure Parkinson's
1 year ago
15-Year Subthalamic Deep Brain Stimulation outcome in a Parkinson's disease patient with Parkin gene mutation: a case report
https://pubmed.ncbi.nlm.nih.gov/37032388 Case report: In 1993, a 39-year-old male was diagnosed with PD after the onset of resting tremor. Levodopa was started, and during the following 10 years, he reported good motor symptoms control, with only mild modification of levodopa intake and pramipexole
https://pubmed.ncbi.nlm.nih.gov/37032388 Case report: In 1993, a 39-year-old male was diagnosed with PD after the onset of resting tremor. Levodopa was started, and during the following 10 years, he reported good motor symptoms control, with only mild modification of levodopa intake and pramipexole
Hidden
in
Cure Parkinson's
1 year ago
pred and tetanus shot??
I will be speaking to a doctor at an emergency clinic but never confident they are well enough informed about the way PMR patients are dosed on pred. I would so appreciate the wisdom of this community. I got a cat scratch today...my fragile skin readily disintegrate...small amount of bleeding. Is
I will be speaking to a doctor at an emergency clinic but never confident they are well enough informed about the way PMR patients are dosed on pred. I would so appreciate the wisdom of this community. I got a cat scratch today...my fragile skin readily disintegrate...small amount of bleeding. Is
agingfeminist
in
PMRGCAuk
1 year ago
Shingles vaccine
My husband has been called in for a shingles vaccination. Am i correct that he should ask for a non live vaccine as the love vaccine poses a risk to me as I am immune suppressed? I seem to remember hearing this somewhere. Still struggling to get answer fro my nurse advice line. Thanks
My husband has been called in for a shingles vaccination. Am i correct that he should ask for a non live vaccine as the love vaccine poses a risk to me as I am immune suppressed? I seem to remember hearing this somewhere. Still struggling to get answer fro my nurse advice line. Thanks
Gilliancheche
in
NRAS
1 year ago
Deep Brain Stimulation
Does anyone have recent personal experience of DBS for tremors? How successful was it as a treatment? Anecdotal information I can probably research for myself. Thank you. I have Cerabellar Ataxia.
Does anyone have recent personal experience of DBS for tremors? How successful was it as a treatment? Anecdotal information I can probably research for myself. Thank you. I have Cerabellar Ataxia.
Ostap
in
Ataxia UK
1 year ago
Video- a personal story
A moving video diary of one young man’s Parkinson’s journey to DBS. Take a look, it is well worth the time. https://m.youtube.com/watch?v=ZGcSGWenvA8
A moving video diary of one young man’s Parkinson’s journey to DBS. Take a look, it is well worth the time. https://m.youtube.com/watch?v=ZGcSGWenvA8
Buckholt
in
Cure Parkinson's
1 year ago
long-term effects of deepbrainstimulation on brain activity
Researchers led by KBI_UHN Drs. Robert Chen and Ghazaleh Darmani shed light on the long-term effects of #deepbrainstimulation on brain activity in people with #parkinsondisease, laying the groundwork for improved therapies The team discovered that deep brain stimulation increased aperiodic beta activity
Researchers led by KBI_UHN Drs. Robert Chen and Ghazaleh Darmani shed light on the long-term effects of #deepbrainstimulation on brain activity in people with #parkinsondisease, laying the groundwork for improved therapies The team discovered that deep brain stimulation increased aperiodic beta activity
Hidden
in
Cure Parkinson's
1 year ago
DBS and cognition
Does having a diagnosis of "major neurocognitive disorder"-- a DSM diagnosis, usually disqualify someone for DBS? Is it dependent on other factors?
Does having a diagnosis of "major neurocognitive disorder"-- a DSM diagnosis, usually disqualify someone for DBS? Is it dependent on other factors?
Agnes1234
in
Cure Parkinson's
2 years ago
CAPSULOTOMY + OTHER OPTIONS
Hi there! I'm quite new here, but I'm CONVINCED of how important this chat is for all of us as OCD sufferers. There are many of us here who are struggling with OCD symptoms every day. I've been following various comments in this chat. And now, I'm encouraged to write this short contribution. As many
Hi there! I'm quite new here, but I'm CONVINCED of how important this chat is for all of us as OCD sufferers. There are many of us here who are struggling with OCD symptoms every day. I've been following various comments in this chat. And now, I'm encouraged to write this short contribution. As many
languageteacher
in
My OCD Community
2 years ago
1
...
8
9
10
...
98
Next page
10
20
30
40
50
60
70
80
90
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
797 results
Meningitis Now
231 results
Anxiety Support
165 results
View top 10 communities
Sort by
Most Relevant
Newest