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New to posting, would like input about new diagnosis
She thinks its Dystonia and she sent us to another Neurologist that is more suited to Dystonia and who will perform
Botox
treatments. We met with the new Neurologist on Tuesday. After thorough observational tests and an impressive review of J's med records, he concluded that CBD didn't seem likely.
She thinks its Dystonia and she sent us to another Neurologist that is more suited to Dystonia and who will perform
Botox
treatments. We met with the new Neurologist on Tuesday. After thorough observational tests and an impressive review of J's med records, he concluded that CBD didn't seem likely.
riegerborer
in
PSP Association
8 years ago
Where's the Love?
Have tried
botox
and several medications all for naught and am about to try acupuncture. The anxiety of feeling like I have no control over my body makes it worse. Things are hard.
Have tried
botox
and several medications all for naught and am about to try acupuncture. The anxiety of feeling like I have no control over my body makes it worse. Things are hard.
kmp1960
in
National Migraine Centre
8 years ago
Levator ani
Hoping the doctor will do the
Botox
!!!!
Hoping the doctor will do the
Botox
!!!!
Karen1954
in
Pelvic Pain Support Network
8 years ago
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Levator ani destroying my life
Seeing an ob-gyn in September to ask about the
Botox
for the injections. I cannot live like this for the rest of my life. People say they understand but I don't think so. Any thoughts on the
Botox
and if it will help? R u put out? How fast did it work?
Seeing an ob-gyn in September to ask about the
Botox
for the injections. I cannot live like this for the rest of my life. People say they understand but I don't think so. Any thoughts on the
Botox
and if it will help? R u put out? How fast did it work?
Karen1954
in
Pelvic Pain Support Network
8 years ago
Wondering if anyone has suggestions
I live in Idaho, my Neurologist wants me to start
botox
. problem is, no one in this area does
botox
for my Dystonia. This will make me drive to Portland Oregon, or Salt Lake City , Utah. Not wanting to go this route if I do not totally have to. Any suggestions ?
I live in Idaho, my Neurologist wants me to start
botox
. problem is, no one in this area does
botox
for my Dystonia. This will make me drive to Portland Oregon, or Salt Lake City , Utah. Not wanting to go this route if I do not totally have to. Any suggestions ?
Alley1
in
Dystonia Society
8 years ago
BOTOX
Hi, has anyone tried
BOTOX
injections into the scalp. It is used for pain relief for chronic migrain and fibro nuralga. JoeR.
Hi, has anyone tried
BOTOX
injections into the scalp. It is used for pain relief for chronic migrain and fibro nuralga. JoeR.
JoeR
in
Restless Legs Syndrome
8 years ago
Deep microscopic endo? Prostap? IBS? Confused!
I had
Botox
in my vaginal muscles for the superficial pain which has helped, but the deep pain is still causing problems. I went back to see my specialist today who said I may have deep microscopic endo which they wouldn't have been able to see during he lap.
I had
Botox
in my vaginal muscles for the superficial pain which has helped, but the deep pain is still causing problems. I went back to see my specialist today who said I may have deep microscopic endo which they wouldn't have been able to see during he lap.
steph-89
in
Endometriosis UK
8 years ago
Looking for reviews of specialists in/around London I have normal TSH (1.16mU/L) & T4 (17.2pmol) & ferritin is under at 92ug/L??
My GP has put me on 60mg of propranolol a day which is a God send in honesty and sumatriptan which I'm taking like smarties (my mum gets huge doses of
Botox
for her migraines as well as masses of sumatriptan but it's still not enough) I'm desperate and broke as I'm passing out constantly now with severe
My GP has put me on 60mg of propranolol a day which is a God send in honesty and sumatriptan which I'm taking like smarties (my mum gets huge doses of
Botox
for her migraines as well as masses of sumatriptan but it's still not enough) I'm desperate and broke as I'm passing out constantly now with severe
MrsJim
in
Thyroid UK
8 years ago
My story
I do have a lot of pain in my neck and shoulders, I have
Botox
every 10 weeks which helps but my nurse said she has to gradually up the dose so hopefully will soon get much more bearable. I too need to rest when I can otherwise everything flares up, I try not to let it get me down too much.
I do have a lot of pain in my neck and shoulders, I have
Botox
every 10 weeks which helps but my nurse said she has to gradually up the dose so hopefully will soon get much more bearable. I too need to rest when I can otherwise everything flares up, I try not to let it get me down too much.
sharlynn
in
Dystonia Society
8 years ago
Chronic Pelvic Floor Pain Sufferer
I have tried
Botox
, injections ...you name it... Nothing has helped. I am not sure how I am going to grow old with this,. I cannot sit.
I have tried
Botox
, injections ...you name it... Nothing has helped. I am not sure how I am going to grow old with this,. I cannot sit.
ljlmax
in
Pelvic Pain Support Network
8 years ago
Lou's introduction
It started with a tremor, I am particularly suffering with cervical dystonia (spasmodic torticollis) for which I have been having
botox
injections at charring cross every 3 months to stop me looking like the exorcist.
It started with a tremor, I am particularly suffering with cervical dystonia (spasmodic torticollis) for which I have been having
botox
injections at charring cross every 3 months to stop me looking like the exorcist.
loppylou68
in
Dystonia Society
8 years ago
Botox
I WAS having Botullinum Toxin Injections (
Botox
) every 3 months, which did help but I moved so now take trihexphenidyl pills which are a muscle relaxant, I want to change these as I've been on them for years. My prof of Neurology suggested I go back on
Botox
so we'll see. Keep smiling 😀Berejena
I WAS having Botullinum Toxin Injections (
Botox
) every 3 months, which did help but I moved so now take trihexphenidyl pills which are a muscle relaxant, I want to change these as I've been on them for years. My prof of Neurology suggested I go back on
Botox
so we'll see. Keep smiling 😀Berejena
berejena
in
Dystonia Society
8 years ago
Botox Injections Around the Eyes to help eyelids remain open and Amantidine
I'm very anxious to hear if anyone has any experience with
Botox
injections around the eyes for muscle spasms, and inability to keep the eyes open as a symptom of PSP. I see it as a fairly routine procedure in some areas, but it is not well known here. Also, any experience with Amantidine?
I'm very anxious to hear if anyone has any experience with
Botox
injections around the eyes for muscle spasms, and inability to keep the eyes open as a symptom of PSP. I see it as a fairly routine procedure in some areas, but it is not well known here. Also, any experience with Amantidine?
Greenkerrycounty
in
PSP Association
8 years ago
Lundie Loops
He,s getting
Botox
Injections but still needs something else. Well , he has now got his Ptosis props . His words were "I think they,re magic " They were supplied by Mr Lundie who fitted them to his plastic framed glasses.
He,s getting
Botox
Injections but still needs something else. Well , he has now got his Ptosis props . His words were "I think they,re magic " They were supplied by Mr Lundie who fitted them to his plastic framed glasses.
baird35
in
PSP Association
8 years ago
Side effects of botox for migraine
Hi Had my 1st round of
Botox
just over a week ago. It appears to have helped my headaches quickly, making me think that the muscle tension in my head and neck must be a big cause. Had first migraine today but i am wondering if this is caused by the other side effects.
Hi Had my 1st round of
Botox
just over a week ago. It appears to have helped my headaches quickly, making me think that the muscle tension in my head and neck must be a big cause. Had first migraine today but i am wondering if this is caused by the other side effects.
oldtrout48
in
National Migraine Centre
8 years ago
BOTOX!
Totally off-piste - I've done it! I've had my number 11, scored like twin Grand Canyons down between my eyebrows, stunned into submission. I went to the dentist two weeks ago - yes, the dentist; figured that if anyone will know about facial anatomy it will be a dentist , rather than one of those orange
Totally off-piste - I've done it! I've had my number 11, scored like twin Grand Canyons down between my eyebrows, stunned into submission. I went to the dentist two weeks ago - yes, the dentist; figured that if anyone will know about facial anatomy it will be a dentist , rather than one of those orange
Schenks
in
Thyroid UK
8 years ago
Living nightmare
I was treated for dystonia with no effect from
Botox
. I waiting for proper diagnosis to get on right path of treatment, so I can function and care for my family.
I was treated for dystonia with no effect from
Botox
. I waiting for proper diagnosis to get on right path of treatment, so I can function and care for my family.
Shermag
in
Functional Neurological Disorder - FND Hope
8 years ago
Chronic migraine - some pain - is Botox the answer??
I've been offered
Botox
injections. But I'm concerned, which is why I have detailed my specific symptoms - my primary issues is not really pain, but other symptoms and I wondered whether other people with similar symptoms have had
Botox
and have they found it beneficial to their condition?
I've been offered
Botox
injections. But I'm concerned, which is why I have detailed my specific symptoms - my primary issues is not really pain, but other symptoms and I wondered whether other people with similar symptoms have had
Botox
and have they found it beneficial to their condition?
madcyclistuk
in
National Migraine Centre
8 years ago
Multiple sclerosis
I had bladder
botox
not clinically trialled yet still given and nearly died 2 weeks after in 2010
I had bladder
botox
not clinically trialled yet still given and nearly died 2 weeks after in 2010
Lynnieheal
in
Healthy Evidence
8 years ago
Really scared of going 'Cold Turkey'
Taken so many different preventatives, tried
Botox
, Nerve Blocks, some machine that I had to hold against my head to give me shocks etc etc.
Taken so many different preventatives, tried
Botox
, Nerve Blocks, some machine that I had to hold against my head to give me shocks etc etc.
Daisythesnail
in
National Migraine Centre
8 years ago
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