Wondering if anyone has suggestions

[Alley1]

I live in Idaho, my Neurologist wants me to start botox. problem is, no one in this area does botox for my Dystonia. This will make me drive to Portland Oregon, or Salt Lake City , Utah. Not wanting to go this route if I do not totally have to. Any suggestions ?

[Hidden]

I have dystonia due to Parkinson's. I used cyclobenzaprine for roughly four years and it stopped helping. I then tried gabapentin, baclofin, trihexaphenaryle, all to no avail. Next oxycodone and finally botox. 21 shots in the back. No help. My Doctor said she has a 65% effective rate with botox. I started treatment for anxiety and it was the source of my back pain, I am living life again and have the occasional pain but so much better. I would say give it a try, if it does not work you wont have to worry about it and if it does work you will feel so good you probably wont mind the travel. I would just make sure all other treatments have been tried.

[enjoysalud in reply to Hidden]

If you were given meds for the anxiety, what meds are you taking.

[Hidden in reply to enjoysalud]

175 mg zolof and .25 mg alprazolam 3X daily

[Ali_H]

Hi Alley1,

Unless you can find a med that may relieve your symptoms I suspect that you will have to get your head around the long travelling distances for your treatment. As its about once every 3 months maybe changing your view of the journey and treat it as a day out may help - a nice local coffee shop etc.

My treatment takes place near where I work but I still have time for a 'special' coffee whilst things settle down before going in to work - it's my time!

All the best

Ali

[niecy64]

Hi Alley1 I finally gave in after a year and had botox in September he gave me a low does to start with but i have'nt had an ankle attack, still have my toes attacks. But he said he will up the dosage next time you have it every three months.It helped mine wish i had it earlyer, but i dont like injections but it was ok . Hope this helps.

Niecy

[niecy64]

Hi Alley1 i have had botox in both legs for my feet it does help.

Niecy64