Hi! I'm in the midst of getting diagnosed. I had a horrible bout where I was unable to walk without tremoring and doing scissor gait, which was believed from extending my neck and lower back. I was hospitalized for few days and then transferred to inpatient rehab where I had to learn to walk again! I'm currently in outpatient physical therapy and still have episodes especially when I stretch and do strengthening exercises. I've had symptoms for 10+years which seem to progressively worsen. I was treated for dystonia with no effect from Botox. I waiting for proper diagnosis to get on right path of treatment, so I can function and care for my family.