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research summary?
Some asked about my own feelings about the most exciting fields in oncology which could bring results. I should take a long moment to sit and summarize all the papers and also to check the moves of bit pharma companies...but right now I cannot (but I might use some AI to do the job soon!). But for not
Some asked about my own feelings about the most exciting fields in oncology which could bring results. I should take a long moment to sit and summarize all the papers and also to check the moves of bit pharma companies...but right now I cannot (but I might use some AI to do the job soon!). But for not
Maxone73
in
Advanced Prostate Cancer
3 months ago
Iron levels.
Hi . I've had 12 transfusions after internal bleeding and surgery in April. My hb was at 6 before the transfusion. My levels are as below. Is this sufficient or would I still need a supplement. I am weaned off pramipexole now but while is hospital I was given tramacet and that was helping my legs.
Hi . I've had 12 transfusions after internal bleeding and surgery in April. My hb was at 6 before the transfusion. My levels are as below. Is this sufficient or would I still need a supplement. I am weaned off pramipexole now but while is hospital I was given tramacet and that was helping my legs.
AzraCG
in
Restless Legs Syndrome
3 months ago
arranging iron infusion
Hello, I’m having a remote consultation with Dr Toby Richard’s on Thursday with a view to having an iron transfusion in London on 31st May. I am wondering if other people have experienced any negative reactions / side effects from iron infusions ….. or indeed any really positive results! positive stories
Hello, I’m having a remote consultation with Dr Toby Richard’s on Thursday with a view to having an iron transfusion in London on 31st May. I am wondering if other people have experienced any negative reactions / side effects from iron infusions ….. or indeed any really positive results! positive stories
Drls
in
Restless Legs Syndrome
3 months ago
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Momelitinib
Is anyone here with MF taking momelitinib.I'd like to know how you're doing on the drug and if you have any side effects? I may qualify to take it....I've received a letter from my haematology doctor and meet up with him soon.At the.moment I am transfusion dependant . I am Jak 2. Thanks Lynn.
Is anyone here with MF taking momelitinib.I'd like to know how you're doing on the drug and if you have any side effects? I may qualify to take it....I've received a letter from my haematology doctor and meet up with him soon.At the.moment I am transfusion dependant . I am Jak 2. Thanks Lynn.
champ30
in
MPN Voice
3 months ago
Iron results - what would you do?
In the seemingly endless quest to feel properly well I had a full iron panel done. The last one I had done was 2 years ago, 6 months after an iron transfusion. I've got a bit of a mixed bag here so I'd be grateful for some thoughts. It's getting worse, generally, I'm just not sure if now is the right
In the seemingly endless quest to feel properly well I had a full iron panel done. The last one I had done was 2 years ago, 6 months after an iron transfusion. I've got a bit of a mixed bag here so I'd be grateful for some thoughts. It's getting worse, generally, I'm just not sure if now is the right
WitchingHour2point0
in
Thyroid UK
3 months ago
Hi, Im new here! Stage IV Ovarian Ca champion
Hello, My name is Nicole. Im 42 and live in Florida with my husband and our two children 8&9. i had battled and won stage I breast cancer when I was 26 years old in 2009. I had been complaining of all the symptoms in 2022 only to be brushed off and not taken seriously. When my OBGYN took me seriously
Hello, My name is Nicole. Im 42 and live in Florida with my husband and our two children 8&9. i had battled and won stage I breast cancer when I was 26 years old in 2009. I had been complaining of all the symptoms in 2022 only to be brushed off and not taken seriously. When my OBGYN took me seriously
Nlehrer
in
SHARE Ovarian Cancer Support
3 months ago
Sadly Not Just Thyroid Patients
I've been following the infected blood scandal with interest, basically thousands of patients in the 70's, 80's and early 90's were given blood transfusions/ products that were cheaply imported, often from USA, and not screened for Hep C. This was to save the NHS money. Unfortunately many people became
I've been following the infected blood scandal with interest, basically thousands of patients in the 70's, 80's and early 90's were given blood transfusions/ products that were cheaply imported, often from USA, and not screened for Hep C. This was to save the NHS money. Unfortunately many people became
Sparklingsunshine
in
Thyroid UK
3 months ago
iron clinic - transfusions
hello - has anyone accessed an iron transfusion via the Harley street iron clinic? Despite all my other iron readings being fine my ferritin level remains at 56 …. I have tried repeatedly to access a transfusion via the nhs but to no avail - has anyone had experience of going privately via this London
hello - has anyone accessed an iron transfusion via the Harley street iron clinic? Despite all my other iron readings being fine my ferritin level remains at 56 …. I have tried repeatedly to access a transfusion via the nhs but to no avail - has anyone had experience of going privately via this London
Drls
in
Restless Legs Syndrome
3 months ago
Any guidance appreciated!
Hi everyone, My Dad (77) diagnosed in January w/ stage 4 PC, mets to L5 spine. PET scan showed no other spots elsewhere. PSA was 19 at time of diagnosis, Gleason 10. BRCA negative. PSA is now at 0.2 since starting hormone therapy. Feeling good, no pain. Still works (owns his own company). Started
Hi everyone, My Dad (77) diagnosed in January w/ stage 4 PC, mets to L5 spine. PET scan showed no other spots elsewhere. PSA was 19 at time of diagnosis, Gleason 10. BRCA negative. PSA is now at 0.2 since starting hormone therapy. Feeling good, no pain. Still works (owns his own company). Started
LDC2024
in
Advanced Prostate Cancer
3 months ago
Gabapentin and liver resection
The help I have been given from this forum has been invaluable, I don't know where I would be without it. I have weaned myself off of Pramipexole and am now using Gabapentin, I don't think I have suffered anything like some of the other members. My question is, I need to up the dose, I am taking 1 x
The help I have been given from this forum has been invaluable, I don't know where I would be without it. I have weaned myself off of Pramipexole and am now using Gabapentin, I don't think I have suffered anything like some of the other members. My question is, I need to up the dose, I am taking 1 x
Ozzey
in
Restless Legs Syndrome
3 months ago
Pluvicto and Hemaglobin
I had a
blood
transfusion
about 5 weeks ago when the hemoglobin dropped below 7,and another one a week ago. After doing another blood test on Friday, my hemoglobin is already down to 7.9 and the Platelet count is down to 26k.
I had a
blood
transfusion
about 5 weeks ago when the hemoglobin dropped below 7,and another one a week ago. After doing another blood test on Friday, my hemoglobin is already down to 7.9 and the Platelet count is down to 26k.
bglendi53
in
Advanced Prostate Cancer
1 year ago
Beware of Lansoprazole
Last year, during a medical check, it was found that my
blood
count was so low it was almost at needing a
transfusion
level. I was put on Ferrous Fumarate which brought my level up but my ferritin level is still low.
Last year, during a medical check, it was found that my
blood
count was so low it was almost at needing a
transfusion
level. I was put on Ferrous Fumarate which brought my level up but my ferritin level is still low.
Hidden
in
Acid Reflux Support
7 months ago
PSA up to 150 on Olaprib, any insight on what’s next?
He is having his 3rd or 4th
blood
transfusion
due to the Olaprib, did anyone have similar? Any advice or insight is so much appreciated!
He is having his 3rd or 4th
blood
transfusion
due to the Olaprib, did anyone have similar? Any advice or insight is so much appreciated!
StayingSTRNG
in
Advanced Prostate Cancer
11 months ago
Need advice on clinical trial RO7656594
I have updated our profile, but in a nutshell we've gone through abiraterone, Xtandi, docetaxel, Pluvicto , cabazitaxel and carboplatin. My husband's most recent PSA on 4/12 was 79.52. His MO has put a hold on chemo our last 3 appointments due to pancytopenia. He's received 2 blood transfusions on his
I have updated our profile, but in a nutshell we've gone through abiraterone, Xtandi, docetaxel, Pluvicto , cabazitaxel and carboplatin. My husband's most recent PSA on 4/12 was 79.52. His MO has put a hold on chemo our last 3 appointments due to pancytopenia. He's received 2 blood transfusions on his
Yadifan
in
Advanced Prostate Cancer
4 months ago
stage 4 Mets in all his skeleton
my husband who has been on this journey for 4 1/2 years. It has finally taken its toll his platelets and blood counts have been low for the last four months and he has been given transfusions every week. He cannot continue with any more treatments . Psa 1800 Mets in his entire skeleton. has anyone
my husband who has been on this journey for 4 1/2 years. It has finally taken its toll his platelets and blood counts have been low for the last four months and he has been given transfusions every week. He cannot continue with any more treatments . Psa 1800 Mets in his entire skeleton. has anyone
Lakehouse32
in
Advanced Prostate Cancer
5 months ago
New Drug may be relevant to MF, ET
A new drug for pulmonary hypertension, (PAH) Sotatercept, has just been approved. PAH is not a typical MPN worry, but it has side effects that may be relevant to MPN. It can increase Hb and decrease PLT. These are listed as adverse effects in the label. Some researchers made the MPN connection.
A new drug for pulmonary hypertension, (PAH) Sotatercept, has just been approved. PAH is not a typical MPN worry, but it has side effects that may be relevant to MPN. It can increase Hb and decrease PLT. These are listed as adverse effects in the label. Some researchers made the MPN connection.
EPguy
in
MPN Voice
5 months ago
Lupus or another Autoimmune Disease?
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
Milescircus
in
LUPUS UK
5 months ago
Please advise - symptoms worsening
Hi all, As you may remember from previous posts, I’m still borderline anaemic and so I increased my iron dosage as per instructions several weeks ago. My FT3 has also plummeted from a decade average of 6 to now 4.8 (range 3.1-6.8) I’m getting horrific migraines (they start with blinding auras). I stopped
Hi all, As you may remember from previous posts, I’m still borderline anaemic and so I increased my iron dosage as per instructions several weeks ago. My FT3 has also plummeted from a decade average of 6 to now 4.8 (range 3.1-6.8) I’m getting horrific migraines (they start with blinding auras). I stopped
Suzanneharb
in
Thyroid UK
5 months ago
Still on hold for stem cell transplant
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
dwolden
in
CLL Support
5 months ago
Is there hope despite the pain? Is Cabometyx worth it?
My 63 year old husband LD stopped Cabo (Cabometyx) when we had Covid (because we took Paxlovid). Now he doesn't want to start up again because of side effects we believe are caused by the Cabo: jaw pain and numbness, body aches, tingling in extremities, pain in the shoulder joint emanating down his arm
My 63 year old husband LD stopped Cabo (Cabometyx) when we had Covid (because we took Paxlovid). Now he doesn't want to start up again because of side effects we believe are caused by the Cabo: jaw pain and numbness, body aches, tingling in extremities, pain in the shoulder joint emanating down his arm
Chris_Ali
in
Advanced Prostate Cancer
5 months ago
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